IKNL Profiles > Quality of life colon/rectal cancer 2009
Publisher
IKNL Profiles study
Creator
Lonneke van de Poll - Franse
Created
Jul 20 2011
Description
In 2009 a questionnaire has been composed treating the subjects health, health related quality of life and health complaints after the diagnosis colon or rectal cancer.
URL to resource
Panel
iknl
Begin date
Jan 01 2009
| Name | English | Dutch |
|---|---|---|
| Intro1 | Please fill in the questionnaire by yourself, in your own pace. You can answer the questions by checking the box/number that applies best t… | |
| a02v01 | What is currently your marital status? | |
| a02v02 | What is the highest educationlevel that you have completed? | |
| a02v03 | Do you have a paid job at this moment? | |
| a02v04 | Paid job hours/week | |
| a02v05 | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| a06v01 | Which changes have you experienced in your work situation due to cancer? | |
| a06v02 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| a06v03 | You have indicated that you have had trouble getting (additional) health insurance. What was the outcome? | |
| a06v04 | Do you have experienced problems with getting life insurance, because of cancer? | |
| a06v05 | You have indicated that you have had trouble getting life insurance. What was the outcome? | |
| a06v06 | Did you have experienced problems with getting mortgage, because of cancer? | |
| a06v07 | You have indicated that you have had trouble getting mortgage. What was the outcome? | |
| a03v01 | Do you smoke? | |
| a03v02 | Number of sigarets per day | |
| a03v03 | Number of sigars per week | |
| a03v04 | Number of packages of pipe tabacco (50 grams) per week | |
| a03v05 | Do you drink alcohol? | |
| a03v06 | Number of glasses of beer per week | |
| a03v07 | Number of glasses of wine or port wine | |
| a03v08 | Number of glasses of liquor per week (eg cognac, gin, whiskey, liquor) | |
| a04v01- a04v08 | Can you indicate in the table below how many hours you have spend on average on a weekly basis on the following activities in the past summ… | |
| a05v01 | How many times did you have contact with your general practitioner in the past 12 months? | |
| a05v02 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| a05v03 | How many times did you have contact with your specialist in the past 12 months? | |
| a05v04 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| a05v05 | Do you still have follow up appointments? | |
| a05v06 | Did you discuss with your specialist how often you have to come back from this moment on? | |
| a05v07 | Do you feel comfortable with this follow up scheme? | |
| a05v08 | Did you receive care after the treatment of your illness? | |
| a05v09 | Psychologist | |
| a05v10 | Sexologist | |
| a05v11 | Social worker | |
| a05v12 | Pastoral care | |
| a05v13 | General practitioner | |
| a05v14 | Dietist | |
| a05v15 | Physiotherapist | |
| a05v16 | Recovery program | |
| a05v17 | Creative therapy | |
| a05v18 | Oncological nurse | |
| a05v19 | Peer group | |
| a07v01 - a07v14 | Below you see a list of chronic conditions and diseases. Please indicate for each condition or disease whether you have it now or have had … | |
| a07v15-a07v28 | Please indicate for each condition if you are treated for it or not. | |
| a07v29-a07v42 | Please indicate for each condition whether it interferes with your activities or not. | |
| a19v01 | In general, would you say your health is | |
| a19v02 | Compared to one year ago, how would you rate your health in general now? | |
| a19v03-a19v12 | The following items are about activities you might do during a typical day. Does your health now limit you in these activities? If so, how … | |
| a19v13-a19v16 | During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of your ph… | |
| a19v17-a19v19 | During the past 4 weeks, have you had any of the following problems with your work or other regular daily activities as a result of any emo… | |
| a19v20 | During the past 4 weeks, to what extent has your physical health or emotional problems interfered with your normal social activities with f… | |
| a19v21 | How much bodily pain have you had during the past 4 weeks? | |
| a19v22 | During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)? | |
| a19v23-a19v31 | These questions are about how you feel and how things have been with you during the past 4 weeks. For each question, please give the one an… | |
| a19v32 | During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities (like v… | |
| a19v33-a19v36 | How true or false is each of the following statements for you? | |
| a10v01-a10v16 | Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you have experienced these… | |
| a10v17-a10v19 | During the past 4 weeks: | |
| a10v20 | Did you have difficulty getting an erection? | |
| a10v21 | Did you have any trouble getting an ejaculation (e.g. so-called dry orgasm)? | |
| a10v22 | Did you have a dry vagina during intercourse? | |
| a10v23 | Did you have pain during intercourse? | |
| a10v24 | Do you have a stoma bag? | |
| a10v25-a10v31 | During the past week | |
| a10v32-a10v38 | During the past week | |
| a21v01-a21v14 | Below are a number of statements that people often use to describe themselves. Please read each statement and then circle the appropriate n… | |
| a22v01 | How much does your illness affect your life? | |
| a22v02 | How long do you think your illness will continue? | |
| a22v03 | How much control do you feel you have over your illness? | |
| a22v04 | How much do you think your treatment can help your illness? | |
| a22v05 | How much do you experience symptoms from your illness? | |
| a22v06 | How concerned are you about your illness? | |
| a22v07 | How well do you feel you understand your illness? | |
| a22v08 | How much does your illness affect you emotionally? (e.g. does it make you angry, scared, upset or depressed? | |
| a23v01- a23v10 | How true or false is each of the following statements for you? | |
| Intro3 | The following questions are about how you feel right now. Please choose the answer that best describes your current feeling. Do not think t… | |
| Intro2 | For the following questions, please circle the number that best corresponds to your views. | |
| a24v01 | I feel tense or 'wound up' | |
| a24v02 | I still enjoy the things I used to enjoy | |
| a24v03 | I get a sort of frightened feeling as if something awful is about to happen | |
| a24v04 | I can laugh and see the funny side of things | |
| a24v05 | Worrying thoughts go through my mind | |
| a24v06 | I feel cheerful | |
| a24v07 | I can sit at ease and feel relaxed | |
| a24v08 | I feel as if I am slowed down | |
| a24v09 | I get a sort of frightened feeling like 'butterflies' in the stomach | |
| a24v10 | I have lost interest in my appearance | |
| a24v11 | I feel restless, as if I have to be on the move | |
| a24v12 | I look forward with enjoyment to things | |
| a24v13 | I get sudden feelings of panic | |
| a24v14 | I can enjoy a good book or radio or TV program | |
| a25v01-a25v41 | We would like to know how cancer affects your life. Please answer the following questions. Choose the answer that best applies to you. Ther… | |
| Intro4 | To improve healthcare, we would like to know what information you received about the various aspects of your illness and its treatment. Ple… | |
| a26v01-a26v20 | During your current disease or treatment, how much information have you received on: | |
| a26v21 | Have you received written information? | |
| a26v22 | Have you received information on CD or tape / video? | |
| a26v23 | Were you satisfied with the amount of information you received? | |
| a26v24 | Do you wish to receive more information? | |
| a26v25 | Do you wish that you had received less information? | |
| a26v26 | Overall has the information you have received been helpful? | |
| a26v27 | Do you use the internet? | |
| a26v28 | Did you use the internet to find information about colon cancer? |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| cr09a01pat_id | Quality of life colon/rectal cancer 2009 | Patient identifier | |
| cr09a01t_gesl | Quality of life colon/rectal cancer 2009 | Gender | |
| cr09a01tumor | Quality of life colon/rectal cancer 2009 | Tumor | |
| cr09a01lftvrg | Quality of life colon/rectal cancer 2009 | Age at time of study | |
| cr09a01treat | Quality of life colon/rectal cancer 2009 | Primary treatment | |
| cr09a01stadkort | Quality of life colon/rectal cancer 2009 | Stage of disease | |
| cr09a01grade | Quality of life colon/rectal cancer 2009 | Grade of tumor | |
| cr09a01ovljrn | Quality of life colon/rectal cancer 2009 | Years since diagnosis | |
| cr09a01BMI | Quality of life colon/rectal cancer 2009 | BMI | |
| cr09a01t_ses3 | Quality of life colon/rectal cancer 2009 | Social Economic Status in 3(4) categories | |
| cr09a02v01 | Quality of life colon/rectal cancer 2009 | What is currently your marital status? | |
| cr09a02v02 | Quality of life colon/rectal cancer 2009 | What is the highest education level that you have completed? | |
| cr09a02v03 | Quality of life colon/rectal cancer 2009 | Do you have a paid job at this moment? | |
| cr09a02v04 | Quality of life colon/rectal cancer 2009 | Paid job hours/week | |
| cr09a02v05 | Quality of life colon/rectal cancer 2009 | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| cr09a06v01 | Quality of life colon/rectal cancer 2009 | Which changes have you experienced in your work situation due to cancer? | |
| cr09a06v02 | Quality of life colon/rectal cancer 2009 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| cr09a06v03 | Quality of life colon/rectal cancer 2009 | What was the outcome? | |
| cr09a06v04 | Quality of life colon/rectal cancer 2009 | Did you have trouble getting life insurance, because of cancer? | |
| cr09a06v05 | Quality of life colon/rectal cancer 2009 | What was the outcome? | |
| cr09a06v06 | Quality of life colon/rectal cancer 2009 | Did you have trouble getting mortgage, because of cancer? | |
| cr09a06v07 | Quality of life colon/rectal cancer 2009 | What was the outcome? | |
| cr09a03v01 | Quality of life colon/rectal cancer 2009 | Do you smoke? | |
| cr09a03v02 | Quality of life colon/rectal cancer 2009 | Number of cigarettes a day | |
| cr09a03v03 | Quality of life colon/rectal cancer 2009 | Number of cigars a day | |
| cr09a03v04 | Quality of life colon/rectal cancer 2009 | Number of packages of pipe tobacco a week | |
| cr09a03v05 | Quality of life colon/rectal cancer 2009 | Do you drink alcohol? | |
| cr09a03v06 | Quality of life colon/rectal cancer 2009 | Number of glasses of beer per week | |
| cr09a03v07 | Quality of life colon/rectal cancer 2009 | Number of glasses of win or port wine per week | |
| cr09a03v08 | Quality of life colon/rectal cancer 2009 | Number of glasses of liquor per week | |
| cr09a04v01 | Quality of life colon/rectal cancer 2009 | Going for a walk in the summer | |
| cr09a04v02 | Quality of life colon/rectal cancer 2009 | Going for a walk in the winter | |
| cr09a04v03 | Quality of life colon/rectal cancer 2009 | Riding a bike in the summer | |
| cr09a04v04 | Quality of life colon/rectal cancer 2009 | Riding a bike in the winter | |
| cr09a04v05 | Quality of life colon/rectal cancer 2009 | Gardening in the summer | |
| cr09a04v06 | Quality of life colon/rectal cancer 2009 | Gardening in the winter | |
| cr09a04v07 | Quality of life colon/rectal cancer 2009 | Keeping house in the summer | |
| cr09a04v08 | Quality of life colon/rectal cancer 2009 | Keeping house in the winter | |
| cr09a05v01 | Quality of life colon/rectal cancer 2009 | How many times did you have contact with your general practitioner in the past 12 months? | |
| cr09a05v02 | Quality of life colon/rectal cancer 2009 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| cr09a05v03 | Quality of life colon/rectal cancer 2009 | How many times did you have contact with your specialist in the past 12 months? | |
| cr09a05v04 | Quality of life colon/rectal cancer 2009 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| cr09a05v05 | Quality of life colon/rectal cancer 2009 | Do you still have follow up appointments? | |
| cr09a05v06 | Quality of life colon/rectal cancer 2009 | Did you discuss with your specialist how often you have to come back from this moment on? | |
| cr09a05v07 | Quality of life colon/rectal cancer 2009 | Do you feel comfortable with this follow up scheme? | |
| cr09a05v08 | Quality of life colon/rectal cancer 2009 | Did you receive care after the treatment of your illness? | |
| cr09a05v09 | Quality of life colon/rectal cancer 2009 | Psychologist | |
| cr09a05v10 | Quality of life colon/rectal cancer 2009 | Sexologist | |
| cr09a05v11 | Quality of life colon/rectal cancer 2009 | Social worker | |
| cr09a05v12 | Quality of life colon/rectal cancer 2009 | Pastoral care | |
| cr09a05v13 | Quality of life colon/rectal cancer 2009 | General practitioner | |
| cr09a05v14 | Quality of life colon/rectal cancer 2009 | Dietist | |
| cr09a05v15 | Quality of life colon/rectal cancer 2009 | Physiotherapist | |
| cr09a05v16 | Quality of life colon/rectal cancer 2009 | Recovery program | |
| cr09a05v17 | Quality of life colon/rectal cancer 2009 | Creative therapy | |
| cr09a05v18 | Quality of life colon/rectal cancer 2009 | Oncological nurse | |
| cr09a05v19 | Quality of life colon/rectal cancer 2009 | Peer group | |
| cr09a07v01 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: heart condition | |
| cr09a07v02 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: stroke | |
| cr09a07v03 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: high blood pressure | |
| cr09a07v04 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: asthma, chronic bronchitis, COPD | |
| cr09a07v05 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: diabetes | |
| cr09a07v06 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: ulcer | |
| cr09a07v07 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: kidney disease | |
| cr09a07v08 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: liver disease | |
| cr09a07v09 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: anemia or other blood condition | |
| cr09a07v10 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: thyroid disease | |
| cr09a07v11 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: depression | |
| cr09a07v12 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: arthritis | |
| cr09a07v13 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: backache | |
| cr09a07v14 | Quality of life colon/rectal cancer 2009 | Do you have now, or did you have in the past 12 months: rheumatism | |
| cr09a07v15 | Quality of life colon/rectal cancer 2009 | Are you being treated for: heart condition | |
| cr09a07v16 | Quality of life colon/rectal cancer 2009 | Are you being treated for: stroke | |
| cr09a07v17 | Quality of life colon/rectal cancer 2009 | Are you being treated for: high blood pressure | |
| cr09a07v18 | Quality of life colon/rectal cancer 2009 | Are you being treated for: asthma, chronic bronchitis, COPD | |
| cr09a07v19 | Quality of life colon/rectal cancer 2009 | Are you being treated for: diabetes | |
| cr09a07v20 | Quality of life colon/rectal cancer 2009 | Are you being treated for: ulcer | |
| cr09a07v21 | Quality of life colon/rectal cancer 2009 | Are you being treated for: kidney disease | |
| cr09a07v22 | Quality of life colon/rectal cancer 2009 | Are you being treated for: liver disease | |
| cr09a07v23 | Quality of life colon/rectal cancer 2009 | Are you being treated for: anemia or other blood condition | |
| cr09a07v24 | Quality of life colon/rectal cancer 2009 | Are you being treated for: thyroid disease | |
| cr09a07v25 | Quality of life colon/rectal cancer 2009 | Are you being treated for: depression | |
| cr09a07v26 | Quality of life colon/rectal cancer 2009 | Are you being treated for: arthritis | |
| cr09a07v27 | Quality of life colon/rectal cancer 2009 | Are you being treated for: backache | |
| cr09a07v28 | Quality of life colon/rectal cancer 2009 | Are you being treated for: rheumatism | |
| cr09a07v29 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: heart condition | |
| cr09a07v30 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: stroke | |
| cr09a07v31 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: high blood pressure | |
| cr09a07v32 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: asthma, chronic bronchitis, COPD | |
| cr09a07v33 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: diabetes | |
| cr09a07v34 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: ulcer | |
| cr09a07v35 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: kidney disease | |
| cr09a07v36 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: liver disease | |
| cr09a07v37 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: anemia or other blood condition | |
| cr09a07v38 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: thyroid disease | |
| cr09a07v39 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: depression | |
| cr09a07v40 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: arthritis | |
| cr09a07v41 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: backache | |
| cr09a07v42 | Quality of life colon/rectal cancer 2009 | Does the condition interfere with your activities: rheumatism | |
| cr09a19v01 | Quality of life colon/rectal cancer 2009 | In general, how would you say your health is? | |
| cr09a19v02 | Quality of life colon/rectal cancer 2009 | Compared to one year ago, how would you rate your health in general now? | |
| cr09a19v03 | Quality of life colon/rectal cancer 2009 | Does your health now limit you in these activities: Vigorous activities, such as running, lifting heavy objects, participating in strenuous sports | |
| cr09a19v04 | Quality of life colon/rectal cancer 2009 | Does your health now limit you in these activities: Moderate activities, such as moving a table, pushing a vacuum cleaner, swimming | |
| cr09a19v05 | Quality of life colon/rectal cancer 2009 | Does your health now limit you in these activities: Lifting or carrying groceries | |
| cr09a19v06 | Quality of life colon/rectal cancer 2009 | Does your health now limit you in these activities: Climbing several flights of stairs | |
| cr09a19v07 | Quality of life colon/rectal cancer 2009 | Does your health now limit you in these activities: Climbing one flight of stairs | |
| cr09a19v08 | Quality of life colon/rectal cancer 2009 | Does your health now limit you in these activities: Bending, kneeling or stooping | |
| cr09a19v09 | Quality of life colon/rectal cancer 2009 | Does your health now limit you in these activities: Walking more than a mile | |
| cr09a19v10 | Quality of life colon/rectal cancer 2009 | Does your health now limit you in these activities: Walking several blocks | |
| cr09a19v11 | Quality of life colon/rectal cancer 2009 | Does your health now limit you in these activities: Walking one block | |
| cr09a19v12 | Quality of life colon/rectal cancer 2009 | Does your health now limit you in these activities: Bathing or dressing yourself | |
| cr09a19v13 | Quality of life colon/rectal cancer 2009 | During the past 4 weeks, as a result of your physical health, did you have any of the following problems: Cut down on the amount of time you spent on work or other activities | |
| cr09a19v14 | Quality of life colon/rectal cancer 2009 | During the past 4 weeks, as a result of your physical health, did you have any of the following problems: Accomplished less than you would like | |
| cr09a19v15 | Quality of life colon/rectal cancer 2009 | During the past 4 weeks, as a result of your physical health, did you have any of the following problems: Were limited in the kind of work or other activities | |
| cr09a19v16 | Quality of life colon/rectal cancer 2009 | During the past 4 weeks, as a result of your physical health, did you have any of the following problems: Had difficulty performing the work or other activities (for example, it took extra effort) | |
| cr09a19v17 | Quality of life colon/rectal cancer 2009 | During the past 4 weeks, as a result of emotional problems, did you have any of the following problems: Cut down the amount of time you spent on work or other activities | |
| cr09a19v18 | Quality of life colon/rectal cancer 2009 | During the past 4 weeks, as a result of emotional problems, did you have any of the following problems: Accomplished less than you would like | |
| cr09a19v19 | Quality of life colon/rectal cancer 2009 | During the past 4 weeks, as a result of emotional problems, did you have any of the following problems: Didn’t do work or other activities as carefully as usual | |
| cr09a19v20 | Quality of life colon/rectal cancer 2009 | During the past 4 weeks, to what extent has your physical health or emotional problems interfered with your normal social activities with family, friends, neighbors or groups? | |
| cr09a19v21 | Quality of life colon/rectal cancer 2009 | How much bodily pain have you had during the past 4 weeks? | |
| cr09a19v22 | Quality of life colon/rectal cancer 2009 | During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)? | |
| cr09a19v23 | Quality of life colon/rectal cancer 2009 | How much of the time during the past 4 weeks: Did you feel full of pep? | |
| cr09a19v24 | Quality of life colon/rectal cancer 2009 | How much of the time during the past 4 weeks: Have you been a very nervous person? | |
| cr09a19v25 | Quality of life colon/rectal cancer 2009 | How much of the time during the past 4 weeks: Have you felt so down in the dumps that nothing could cheer you up? | |
| cr09a19v26 | Quality of life colon/rectal cancer 2009 | How much of the time during the past 4 weeks: Have you felt calm and peaceful? | |
| cr09a19v27 | Quality of life colon/rectal cancer 2009 | How much of the time during the past 4 weeks: Did you have a lot of energy? | |
| cr09a19v28 | Quality of life colon/rectal cancer 2009 | How much of the time during the past 4 weeks: Have you felt downhearted and blue? | |
| cr09a19v29 | Quality of life colon/rectal cancer 2009 | How much of the time during the past 4 weeks: Did you feel worn out? | |
| cr09a19v30 | Quality of life colon/rectal cancer 2009 | How much of the time during the past 4 weeks: Have you been a happy person? | |
| cr09a19v31 | Quality of life colon/rectal cancer 2009 | How much of the time during the past 4 weeks: Did you feel tired? | |
| cr09a19v32 | Quality of life colon/rectal cancer 2009 | During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities (like visiting with friends, relatives, etc.)? | |
| cr09a19v33 | Quality of life colon/rectal cancer 2009 | How true or false is each of the following statements for you: I seem to get sick a little easier than other people | |
| cr09a19v34 | Quality of life colon/rectal cancer 2009 | How true or false is each of the following statements for you: I am as healthy as anybody I know | |
| cr09a19v35 | Quality of life colon/rectal cancer 2009 | How true or false is each of the following statements for you: I expect my health to get worse | |
| cr09a19v36 | Quality of life colon/rectal cancer 2009 | How true or false is each of the following statements for you: My health is excellent | |
| cr09a19s01 | Quality of life colon/rectal cancer 2009 | General health scale | |
| cr09a19s02 | Quality of life colon/rectal cancer 2009 | Physical function scale | |
| cr09a19s03 | Quality of life colon/rectal cancer 2009 | Role functioning - physical scale | |
| cr09a19s04 | Quality of life colon/rectal cancer 2009 | Bodily pain scale | |
| cr09a19s05 | Quality of life colon/rectal cancer 2009 | Vitality scale | |
| cr09a19s06 | Quality of life colon/rectal cancer 2009 | Social functioning scale | |
| cr09a19s07 | Quality of life colon/rectal cancer 2009 | Role functioning - emotional scale | |
| cr09a19s08 | Quality of life colon/rectal cancer 2009 | Mental health scale | |
| cr09a19s09 | Quality of life colon/rectal cancer 2009 | Physical component summary scale | |
| cr09a19s10 | Quality of life colon/rectal cancer 2009 | Mental component summary scale | |
| cr09a10v01 | Quality of life colon/rectal cancer 2009 | During the past week: Did you urinate frequently during the day? | |
| cr09a10v02 | Quality of life colon/rectal cancer 2009 | During the past week: Did you urinate frequently during the night? | |
| cr09a10v03 | Quality of life colon/rectal cancer 2009 | During the past week: Did you have pain when you urinated? | |
| cr09a10v04 | Quality of life colon/rectal cancer 2009 | During the past week: Did you have a bloated feeling in your abdomen? | |
| cr09a10v05 | Quality of life colon/rectal cancer 2009 | During the past week: Did you have abdominal pain? | |
| cr09a10v06 | Quality of life colon/rectal cancer 2009 | During the past week: Did you have pain in your buttocks? | |
| cr09a10v07 | Quality of life colon/rectal cancer 2009 | During the past week: Did you suffer from gas (flatulence)? | |
| cr09a10v08 | Quality of life colon/rectal cancer 2009 | During the past week: Did you have indigestions? | |
| cr09a10v09 | Quality of life colon/rectal cancer 2009 | During the past week: Have you lost weight? | |
| cr09a10v10 | Quality of life colon/rectal cancer 2009 | During the past week: Did you have a dry mouth? | |
| cr09a10v11 | Quality of life colon/rectal cancer 2009 | During the past week: Have you had thin or dull hair because of your illness or treatment? | |
| cr09a10v12 | Quality of life colon/rectal cancer 2009 | During the past week: Did food and drink taste different than usual? | |
| cr09a10v13 | Quality of life colon/rectal cancer 2009 | During the past week: Have you felt physically less attractive as a result of your disease or treatment? | |
| cr09a10v14 | Quality of life colon/rectal cancer 2009 | During the past week: Have you been feeling less feminine/masculine as a result of your disease or treatment? | |
| cr09a10v15 | Quality of life colon/rectal cancer 2009 | During the past week: Have you been dissatisfied with your body? | |
| cr09a10v16 | Quality of life colon/rectal cancer 2009 | During the past week: Were you worried about your health in the future? | |
| cr09a10v17 | Quality of life colon/rectal cancer 2009 | To what extent were you interested in sex? | |
| cr09a10v18 | Quality of life colon/rectal cancer 2009 | To what extent were you sexually active (with or without intercourse)? | |
| cr09a10v19 | Quality of life colon/rectal cancer 2009 | Answer only if you were sexually active: To what extent was sex enjoyable for you? | |
| cr09a10v20 | Quality of life colon/rectal cancer 2009 | Did you have difficulty getting an erection? | |
| cr09a10v21 | Quality of life colon/rectal cancer 2009 | Did you have any trouble getting an ejaculation (e.g. so-called dry orgasm)? | |
| cr09a10v22 | Quality of life colon/rectal cancer 2009 | Did you have a dry vagina during intercourse? | |
| cr09a10v23 | Quality of life colon/rectal cancer 2009 | Did you have pain during intercourse? | |
| cr09a10v24 | Quality of life colon/rectal cancer 2009 | Do you have a stoma bag? | |
| cr09a10v25 | Quality of life colon/rectal cancer 2009 | During the past week: Have you had much defecation during the day? | |
| cr09a10v26 | Quality of life colon/rectal cancer 2009 | During the past week: Have you had much defecation during the night? | |
| cr09a10v27 | Quality of life colon/rectal cancer 2009 | During the past week: Have you had false urge (urge without defecation)? | |
| cr09a10v28 | Quality of life colon/rectal cancer 2009 | During the past week: Have you had leakage of stools from your back passage? | |
| cr09a10v29 | Quality of life colon/rectal cancer 2009 | During the past week: Have you had blood in your stools? | |
| cr09a10v30 | Quality of life colon/rectal cancer 2009 | During the past week: Do you have difficulties with defecating? | |
| cr09a10v31 | Quality of life colon/rectal cancer 2009 | During the past week: Do you have pain when defecating? | |
| cr09a10v32 | Quality of life colon/rectal cancer 2009 | During the past week: Were you afraid that others might hear your stoma? | |
| cr09a10v33 | Quality of life colon/rectal cancer 2009 | During the past week: Were you afraid that others could smell your stools? | |
| cr09a10v34 | Quality of life colon/rectal cancer 2009 | During the past week: Did you worry about possible leakage of the stoma bag? | |
| cr09a10v35 | Quality of life colon/rectal cancer 2009 | During the past week: Did you have problems caring for your stoma? | |
| cr09a10v36 | Quality of life colon/rectal cancer 2009 | During the past week: Have you had sore skin around your stoma? | |
| cr09a10v37 | Quality of life colon/rectal cancer 2009 | During the past week: Did you feel embarrassed because of your stoma? | |
| cr09a10v38 | Quality of life colon/rectal cancer 2009 | During the past week: Have you felt less complete because of your stoma? | |
| cr09a10s01 | Quality of life colon/rectal cancer 2009 | Body image scale | |
| cr09a10s02 | Quality of life colon/rectal cancer 2009 | Future perspective scale | |
| cr09a10s03 | Quality of life colon/rectal cancer 2009 | Sexual function scale | |
| cr09a10s04 | Quality of life colon/rectal cancer 2009 | Sexual enjoyment scale | |
| cr09a10s05 | Quality of life colon/rectal cancer 2009 | Micturition problem scale | |
| cr09a10s06 | Quality of life colon/rectal cancer 2009 | Chemotherapy-related problems scale | |
| cr09a10s07 | Quality of life colon/rectal cancer 2009 | Gastro-intestinal problems scale | |
| cr09a10s08 | Quality of life colon/rectal cancer 2009 | Male-related sexual problems scale | |
| cr09a10s09 | Quality of life colon/rectal cancer 2009 | Female-related sexual problems scale | |
| cr09a10s10 | Quality of life colon/rectal cancer 2009 | Defecation problems scale | |
| cr09a10s11 | Quality of life colon/rectal cancer 2009 | Stoma-related problems scale | |
| cr09a10s12 | Quality of life colon/rectal cancer 2009 | Weight loss scale | |
| cr09a21v01 | Quality of life colon/rectal cancer 2009 | I make contact easily when I meet people. | |
| cr09a21v02 | Quality of life colon/rectal cancer 2009 | I often make a fuss about unimportant things. | |
| cr09a21v03 | Quality of life colon/rectal cancer 2009 | I often talk to strangers. | |
| cr09a21v04 | Quality of life colon/rectal cancer 2009 | I often feel unhappy. | |
| cr09a21v05 | Quality of life colon/rectal cancer 2009 | I am often irritated. | |
| cr09a21v06 | Quality of life colon/rectal cancer 2009 | I often feel inhibited in social interactions. | |
| cr09a21v07 | Quality of life colon/rectal cancer 2009 | I take a gloomy view on things. | |
| cr09a21v08 | Quality of life colon/rectal cancer 2009 | I find it hard to start a conversation. | |
| cr09a21v09 | Quality of life colon/rectal cancer 2009 | I am often in a bad mood. | |
| cr09a21v10 | Quality of life colon/rectal cancer 2009 | I am a closed kind of person. | |
| cr09a21v11 | Quality of life colon/rectal cancer 2009 | I would rather keep other people at a distance. | |
| cr09a21v12 | Quality of life colon/rectal cancer 2009 | I often find myself worrying about something. | |
| cr09a21v13 | Quality of life colon/rectal cancer 2009 | I am often down in the dumps. | |
| cr09a21v14 | Quality of life colon/rectal cancer 2009 | When socializing, I don’t find the right things to talk about. | |
| cr09a21s01 | Quality of life colon/rectal cancer 2009 | Negative affect subscale | |
| cr09a21s02 | Quality of life colon/rectal cancer 2009 | Social inhibition subscale | |
| cr09a21s03 | Quality of life colon/rectal cancer 2009 | Type D personality scale | |
| cr09a22v01 | Quality of life colon/rectal cancer 2009 | How much does your illness affect your life? | |
| cr09a22v02 | Quality of life colon/rectal cancer 2009 | How long do you think your illness will continue? | |
| cr09a22v03 | Quality of life colon/rectal cancer 2009 | How much control do you feel you have over your illness? | |
| cr09a22v04 | Quality of life colon/rectal cancer 2009 | How much do you think your treatment can help your illness? | |
| cr09a22v05 | Quality of life colon/rectal cancer 2009 | How much do you experience symptoms from your illness? | |
| cr09a22v06 | Quality of life colon/rectal cancer 2009 | How concerned are you about your illness? | |
| cr09a22v07 | Quality of life colon/rectal cancer 2009 | How well do you feel you understand your illness? | |
| cr09a22v08 | Quality of life colon/rectal cancer 2009 | How much does your illness affect you emotionally? (e.g. does it make you angry, scared, upset or depressed? | |
| cr09a23v01 | Quality of life colon/rectal cancer 2009 | I am bothered by fatigue | |
| cr09a23v02 | Quality of life colon/rectal cancer 2009 | I get tired very quickly | |
| cr09a23v03 | Quality of life colon/rectal cancer 2009 | I don’t do much during the day | |
| cr09a23v04 | Quality of life colon/rectal cancer 2009 | I have enough energy for everyday life | |
| cr09a23v05 | Quality of life colon/rectal cancer 2009 | Physically, I feel exhausted | |
| cr09a23v06 | Quality of life colon/rectal cancer 2009 | I have problems starting things | |
| cr09a23v07 | Quality of life colon/rectal cancer 2009 | I have problems thinking clearly | |
| cr09a23v08 | Quality of life colon/rectal cancer 2009 | I feel no desire to do anything | |
| cr09a23v09 | Quality of life colon/rectal cancer 2009 | Mentally, I feel exhausted | |
| cr09a23v10 | Quality of life colon/rectal cancer 2009 | When I am doing something, I can concentrate quite well | |
| cr09a23s01 | Quality of life colon/rectal cancer 2009 | FAS total score | |
| cr09a24v01 | Quality of life colon/rectal cancer 2009 | I feel tense or 'wound up' | |
| cr09a24v02 | Quality of life colon/rectal cancer 2009 | I still enjoy the things I used to enjoy | |
| cr09a24v03 | Quality of life colon/rectal cancer 2009 | I get a sort of frightened feeling as if something awful is about to happen | |
| cr09a24v04 | Quality of life colon/rectal cancer 2009 | I can laugh and see the funny side of things | |
| cr09a24v05 | Quality of life colon/rectal cancer 2009 | Worrying thoughts go through my mind | |
| cr09a24v06 | Quality of life colon/rectal cancer 2009 | I feel cheerful | |
| cr09a24v07 | Quality of life colon/rectal cancer 2009 | I can sit at ease and feel relaxed | |
| cr09a24v08 | Quality of life colon/rectal cancer 2009 | I feel as if I am slowed down | |
| cr09a24v09 | Quality of life colon/rectal cancer 2009 | I get a sort of frightened feeling like 'butterflies' in the stomach | |
| cr09a24v10 | Quality of life colon/rectal cancer 2009 | I have lost interest in my appearance | |
| cr09a24v11 | Quality of life colon/rectal cancer 2009 | I feel restless, as if I have to be on the move | |
| cr09a24v12 | Quality of life colon/rectal cancer 2009 | I look forward with enjoyment to things | |
| cr09a24v13 | Quality of life colon/rectal cancer 2009 | I get sudden feelings of panic | |
| cr09a24v14 | Quality of life colon/rectal cancer 2009 | I can enjoy a good book or radio or TV program | |
| cr09a24s01 | Quality of life colon/rectal cancer 2009 | Anxiety total score | |
| cr09a24s02 | Quality of life colon/rectal cancer 2009 | Depression total score | |
| cr09a25v01 | Quality of life colon/rectal cancer 2009 | I learned something about life because of having had cancer | |
| cr09a25v02 | Quality of life colon/rectal cancer 2009 | Having had cancer makes me feel unsure about my future | |
| cr09a25v03 | Quality of life colon/rectal cancer 2009 | I worry about my future | |
| cr09a25v04 | Quality of life colon/rectal cancer 2009 | I am afraid to die | |
| cr09a25v05 | Quality of life colon/rectal cancer 2009 | I feel like time in my life is running out | |
| cr09a25v06 | Quality of life colon/rectal cancer 2009 | Having had cancer has made me realize that time is precious | |
| cr09a25v07 | Quality of life colon/rectal cancer 2009 | Having had cancer has strengthened my religious faith or my sense of spirituality | |
| cr09a25v08 | Quality of life colon/rectal cancer 2009 | I do not take my body for granted since the cancer | |
| cr09a25v09 | Quality of life colon/rectal cancer 2009 | Having had cancer has made me more concerned about my health | |
| cr09a25v10 | Quality of life colon/rectal cancer 2009 | I am more aware of physical problems or changes in my body since having had cancer | |
| cr09a25v11 | Quality of life colon/rectal cancer 2009 | I worry about my health | |
| cr09a25v12 | Quality of life colon/rectal cancer 2009 | I worry about the cancer coming back or about getting another cancer | |
| cr09a25v13 | Quality of life colon/rectal cancer 2009 | New symptoms (aches, pains, getting sick or the flu) make me worry about the cancer coming back | |
| cr09a25v14 | Quality of life colon/rectal cancer 2009 | I am concerned that my energy has not returned to what it was before I had cancer | |
| cr09a25v15 | Quality of life colon/rectal cancer 2009 | I am bothered that my body cannot do what it could before having had cancer | |
| cr09a25v16 | Quality of life colon/rectal cancer 2009 | I worry about how my body looks | |
| cr09a25v17 | Quality of life colon/rectal cancer 2009 | I feel disfigured | |
| cr09a25v18 | Quality of life colon/rectal cancer 2009 | I sometimes wear clothing to cover up parts of my body I don’t want others to see | |
| cr09a25v19 | Quality of life colon/rectal cancer 2009 | Having had cancer has made me take better care of myself (my health) | |
| cr09a25v20 | Quality of life colon/rectal cancer 2009 | Having to pay attention to my physical health interferes with my life | |
| cr09a25v21 | Quality of life colon/rectal cancer 2009 | I feel a sense of pride or accomplishment from surviving cancer | |
| cr09a25v22 | Quality of life colon/rectal cancer 2009 | I learned something about myself because of having had cancer | |
| cr09a25v23 | Quality of life colon/rectal cancer 2009 | I am angry about having had cancer | |
| cr09a25v24 | Quality of life colon/rectal cancer 2009 | I feel guilty for somehow being responsible for getting cancer | |
| cr09a25v25 | Quality of life colon/rectal cancer 2009 | I feel that I am a role model to other people with cancer | |
| cr09a25v26 | Quality of life colon/rectal cancer 2009 | Having had cancer has made me feel old | |
| cr09a25v27 | Quality of life colon/rectal cancer 2009 | I feel guilty today for not having been available to my family when I had cancer | |
| cr09a25v28 | Quality of life colon/rectal cancer 2009 | Having had cancer has been the most difficult experience in my life | |
| cr09a25v29 | Quality of life colon/rectal cancer 2009 | I wonder why I got cancer | |
| cr09a25v30 | Quality of life colon/rectal cancer 2009 | It is important for me to know why I got cancer | |
| cr09a25v31 | Quality of life colon/rectal cancer 2009 | Having had cancer turned into a reason to make changes in my life | |
| cr09a25v32 | Quality of life colon/rectal cancer 2009 | Because of cancer I have become better about expressing what I want | |
| cr09a25v33 | Quality of life colon/rectal cancer 2009 | Because of cancer I have more confidence in myself | |
| cr09a25v34 | Quality of life colon/rectal cancer 2009 | Having had cancer has given me direction in life | |
| cr09a25v35 | Quality of life colon/rectal cancer 2009 | I place a higher value on my relationships with family or friends than I did before having had cancer | |
| cr09a25v36 | Quality of life colon/rectal cancer 2009 | I feel a special bond with people with cancer | |
| cr09a25v37 | Quality of life colon/rectal cancer 2009 | Because I had cancer I am more understanding of what other people may feel when they are seriously ill | |
| cr09a25v38 | Quality of life colon/rectal cancer 2009 | Having had cancer has made me more willing to help others | |
| cr09a25v39 | Quality of life colon/rectal cancer 2009 | I feel that I should give something back to others because I survived cancer | |
| cr09a25v40 | Quality of life colon/rectal cancer 2009 | Having had cancer keeps me from doing activities I enjoy (examples: travel, socializing, recreation, time with family) | |
| cr09a25v41 | Quality of life colon/rectal cancer 2009 | On-going cancer-related or treatment-related symptoms (for example bladder or bowel control, lymphedema, hair loss, scars, infertility, premature menopause, lack of energy, impotence/sexual problems, aches, pain or physical discomfort) interfere with my life | |
| cr09a25s01 | Quality of life colon/rectal cancer 2009 | Physical: health awareness scale | |
| cr09a25s02 | Quality of life colon/rectal cancer 2009 | Physical: body changes scale | |
| cr09a25s03 | Quality of life colon/rectal cancer 2009 | Psychological: positive self-evaluation scale | |
| cr09a25s04 | Quality of life colon/rectal cancer 2009 | Psychological: negative self-evaluation scale | |
| cr09a25s05 | Quality of life colon/rectal cancer 2009 | Existential: positive outlook scale | |
| cr09a25s06 | Quality of life colon/rectal cancer 2009 | Existential: negative outlook scale | |
| cr09a25s07 | Quality of life colon/rectal cancer 2009 | Social: life interferences scale | |
| cr09a25s08 | Quality of life colon/rectal cancer 2009 | Social: value of relationships scale | |
| cr09a25s09 | Quality of life colon/rectal cancer 2009 | Meaning of cancer scale | |
| cr09a25s10 | Quality of life colon/rectal cancer 2009 | Health worry scale | |
| cr09a25s11 | Quality of life colon/rectal cancer 2009 | Positive higher order scale score | |
| cr09a25s12 | Quality of life colon/rectal cancer 2009 | Negative higher order scale score | |
| cr09a26v01 | Quality of life colon/rectal cancer 2009 | How much information have you received on: The diagnosis of your disease? | |
| cr09a26v02 | Quality of life colon/rectal cancer 2009 | How much information have you received on: The extent (spread) of your disease? | |
| cr09a26v03 | Quality of life colon/rectal cancer 2009 | How much information have you received on: The possible causes of your disease? | |
| cr09a26v04 | Quality of life colon/rectal cancer 2009 | How much information have you received on: Whether the disease is under control? | |
| cr09a26v05 | Quality of life colon/rectal cancer 2009 | How much information have you received on: The purpose of any medical tests you have had or may undergo? | |
| cr09a26v06 | Quality of life colon/rectal cancer 2009 | How much information have you received on: The procedures of the medical tests? | |
| cr09a26v07 | Quality of life colon/rectal cancer 2009 | How much information have you received on: The results of the medical tests you have already received? | |
| cr09a26v08 | Quality of life colon/rectal cancer 2009 | How much information have you received on: The medical treatment (chemotherapy, radiotherapy, surgery or other treatment modality)? | |
| cr09a26v09 | Quality of life colon/rectal cancer 2009 | How much information have you received on: Non-medical treatments (for example herbal therapy, homeopathy, relaxation therapy)? | |
| cr09a26v10 | Quality of life colon/rectal cancer 2009 | How much information have you received on: The expected benefit of the treatment? | |
| cr09a26v11 | Quality of life colon/rectal cancer 2009 | How much information have you received on: The possible side-effects of your treatment? | |
| cr09a26v12 | Quality of life colon/rectal cancer 2009 | How much information have you received on: The expected effects of the treatment on disease symptoms? | |
| cr09a26v13 | Quality of life colon/rectal cancer 2009 | How much information have you received on: The effects of the treatment on social and family life? | |
| cr09a26v14 | Quality of life colon/rectal cancer 2009 | How much information have you received on: The effects of the treatment on sexual activity? | |
| cr09a26v15 | Quality of life colon/rectal cancer 2009 | How much information have you received on: Additional help outside the hospital (e.g. help with daily activities, self help groups, district nurses)? | |
| cr09a26v16 | Quality of life colon/rectal cancer 2009 | How much information have you received on: Rehabilitation services (e. g. physiotherapy, occupational therapy)? | |
| cr09a26v17 | Quality of life colon/rectal cancer 2009 | How much information have you received on: Aspects of managing your illness at home? | |
| cr09a26v18 | Quality of life colon/rectal cancer 2009 | How much information have you received on: Possible professional psychological support? | |
| cr09a26v19 | Quality of life colon/rectal cancer 2009 | How much information have you received on: Different places of care (hospitals/outpatient services/home)? | |
| cr09a26v20 | Quality of life colon/rectal cancer 2009 | How much information have you received on: Things that you can do to help yourself get well (rest, contact with others..)? | |
| cr09a26v21 | Quality of life colon/rectal cancer 2009 | Have you received written information? | |
| cr09a26v22 | Quality of life colon/rectal cancer 2009 | Have you received information on CD or tape / video? | |
| cr09a26v23 | Quality of life colon/rectal cancer 2009 | Were you satisfied with the amount of information you received? | |
| cr09a26v24 | Quality of life colon/rectal cancer 2009 | Do you wish to receive more information? | |
| cr09a26v25 | Quality of life colon/rectal cancer 2009 | Do you wish that you had received less information? | |
| cr09a26v26 | Quality of life colon/rectal cancer 2009 | Overall has the information you have received been helpful? | |
| cr09a26v27 | Quality of life colon/rectal cancer 2009 | Do you use the internet? | |
| cr09a26v28 | Quality of life colon/rectal cancer 2009 | Did you use the internet to find information about colon cancer? | |
| cr09a26s01 | Quality of life colon/rectal cancer 2009 | Information on your disease scale | |
| cr09a26s02 | Quality of life colon/rectal cancer 2009 | Information on your medical tests scale | |
| cr09a26s03 | Quality of life colon/rectal cancer 2009 | Information on treatment/your treatments scale | |
| cr09a26s04 | Quality of life colon/rectal cancer 2009 | Information on other services scale | |
| cr09a26s05 | Quality of life colon/rectal cancer 2009 | Information on other areas/places of care scale | |
| cr09a26s06 | Quality of life colon/rectal cancer 2009 | Information on things patient can do to get well scale | |
| cr09a26s07 | Quality of life colon/rectal cancer 2009 | Written information scale | |
| cr09a26s08 | Quality of life colon/rectal cancer 2009 | Information on cd, tape, video scale | |
| cr09a26s09 | Quality of life colon/rectal cancer 2009 | Satisfaction with information scale | |
| cr09a26s10 | Quality of life colon/rectal cancer 2009 | Desire to receive more information scale | |
| cr09a26s11 | Quality of life colon/rectal cancer 2009 | Desire to receive less information scale | |
| cr09a26s12 | Quality of life colon/rectal cancer 2009 | Helpfulness of information scale |