IKNL Profiles > Quality of life thyroid cancer 2010
Publisher
IKNL Profiles study
Creator
Olga Husson, Lonneke van de Poll - Franse
Created
May 29 2012
Description
URL to resource
Panel
iknl
Begin date
Sep 01 2010
| Name | English | Dutch |
|---|---|---|
| intro1 | Please fill in the questionnaire by yourself, in your own pace. You can answer the questions by checking the box/number that applies best t… | |
| 02q01 | What is currently your marital status? | |
| 02q02 | What is the highest education level that you have completed? | |
| 02q03 | Do you have a paid job at this moment? | |
| 02q04 | Paid job hours/week | |
| 02q05 | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| 03q01 | Do you smoke? | |
| 03q02 | Number of cigarettes per day | |
| 03q03 | Number of cigars per week | |
| 03q04 | Number of packages of pipe tobacco (50 grams) per week | |
| 03q05 | Do you drink alcohol? | |
| 03q06 | Number of glasses of beer per week | |
| 03q07 | Number of glasses of wine or port wine per week | |
| 03q08 | Number of glasses of liquor per week (eg cognac, gin, whiskey, liquor) | |
| 04q01-04q08 | Can you indicate in the table below how many hours you have spend on average on a weekly basis on the following activities in the past summ… | |
| 05q01 | How many times did you have contact with your general practitioner in the past 12 months? | |
| 05q02 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q03 | How many times did you have contact with your specialist in the past 12 months? | |
| 05q04 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q05 | Do you still have follow up appointments? | |
| 05q06 | Did you discuss with your specialist how often you have to come back from this moment on? | |
| 05q07 | Do you feel comfortable with this follow up scheme? | |
| 05q08 | Did you receive care after the treatment of your illness? | |
| 05q09-05q19 | Received care from: | |
| 07q01-07q14 | Below you see a list of chronic conditions and diseases. Please indicate for each condition or disease whether you have it now or have had … | |
| 07q15–07q28 | Please indicate for each condition if you are treated for it or not. | |
| 07q29-07q42 | Please indicate for each condition whether it interferes with your activities or not. | |
| 06q01-06q08 | Which changes have you experienced in your work situation due to cancer? | |
| 06q09 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| 06q10 | You have indicated that you have had trouble getting (additional) health insurance. What was the outcome? | |
| 06q11 | Did you have trouble getting life insurance, because of cancer? | |
| 06q12 | You have indicated that you have had trouble getting life insurance. What was the outcome? | |
| 06q13 | Did you have trouble getting mortgage, because of cancer? | |
| 06q14 | You have indicated that you have had trouble getting mortgage. What was the outcome? | |
| intro2 | Now we would like to ask you a few questions about your personal opinion regarding the medication that has been prescribed to you. Below ar… | |
| 08q01-08q11 | How do you feel about the new medication that has been prescribed to you after your cancer? | |
| 08q12-08q16 | Many people find a way of using their medicines which suits them. This may differ from the instructions on the label or from what their doc… | |
| intro3 | We are interested in certain things about you and your health. Please answer all the questions by yourself by checking the box that suits y… | |
| 09q01-09q28 | During the past week | |
| 09q29 | How would you rate your overall health during the past week? | |
| 09q30 | How would you rate your overall quality of life during the past week? | |
| intro4 | Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you have experienced these… | |
| 16q01-16q23 | During the past week: | |
| 16q24 | During the past 4 weeks: to what extent were you interested in sex? | |
| intro5 | These questions ask for your views about your health. This information will keep track of how you feel and how well you are able to do your… | |
| 18q01 | In general, would you say your health is | |
| 18q02 | Does your health limit you in these activities? If so, how much? Moderate activities, such as: moving a table, pushing a vacuum cleaner, bo… | |
| 18q03 | Climbing several flights of stairs | |
| 18q04-18q05 | During the past 4 weeks, have you had any of the following problems with your work or other regular activities as a result of your physical… | |
| 18q06-18q07 | During the past 4 weeks, were you limited in the kind of work you do or other regular activities as a result of any emotional problems? (su… | |
| 18q08 | During the past 4 weeks, how much did pain interfere with your normal work? (including both work outside the home and housework) | |
| 18q09-18q11 | How much of the time during the past 4 weeks… | |
| 18q12 | During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities (like v… | |
| 21q01-21q14 | Below are a number of statements that people often use to describe themselves. Please read each statement and then circle the appropriate n… | |
| 22q01-22q08 | For the following questions, please circle the number that best corresponds to your views. | |
| intro6 | We would like to know in which way cancer influences your life. Please answer the following questions. With every question, check the box t… | |
| 25q01-25q37 | Please check the box that is most applicable to you. | |
| 25q38 | Are you married, living together, or in a LAT-relationship? | |
| 25q39-25q41 | With every question, check the box that is most applicable to you. | |
| 25q42-25q45 | With every question, check the box that is most applicable to you. | |
| 25q46 | Are you completely retired right now? | |
| 25q47 | Did you have a job and income for (part of) the last 12 months? | |
| 25q48-25q50 | With every question, check the box that is most applicable to you. | |
| 23q01-23q10 | The following questions ask you about how you normally feel. You can choose from five response categories, from ‘never’ to ‘always’… | |
| intro7 | The following questions are about how you feel right now. Please choose the answer that best describes your current feeling. Do not think t… | |
| 24q01 | I feel tense or ‘wound up’ | |
| 24q02 | I still enjoy the things I used to enjoy | |
| 24q03 | I get a sort of frightened feeling as if something awful is about to happen | |
| 24q04 | I can laugh and see the funny side of things | |
| 24q05 | Worrying thoughts go through my mind | |
| 24q06 | I feel cheerful | |
| 24q07 | I can sit at ease and feel relaxed | |
| 24q08 | I feel as if I am slowed down | |
| 24q09 | I get a sort of frightened feeling like ‘butterflies’ in the stomach | |
| 24q10 | I have lost interest in my appearance | |
| 24q11 | I feel restless, as if I have to be on the move | |
| 24q12 | I look forward with enjoyment to things | |
| 24q13 | I get sudden feelings of panic | |
| 24q14 | I can enjoy a good book or radio or TV program | |
| intro8 | To improve healthcare, we would like to know what information you received about the various aspects of your illness and its treatment. Ple… | |
| 26q01-26q20 | During your current disease or treatment, how much information have you received on: | |
| 26q21 | Have you received written information? | |
| 26q22 | Have you received information on CD or tape / video? | |
| 26q23 | Were you satisfied with the amount of information you received? | |
| 26q24 | Do you wish to receive more information? | |
| 26q25 | Do you wish that you had received less information? | |
| 26q26 | Overall has the information you have received been helpful? | |
| 27q01 | Do you use the internet? | |
| 27q02 | Did you use the internet to find information about thryroid cancer? |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| th10a01pat_id | Quality of life thyroid cancer 2010 | Study number | |
| th10a01response | Quality of life thyroid cancer 2010 | Response | |
| th10a01gend | Quality of life thyroid cancer 2010 | Gender | |
| th10a01tumor | Quality of life thyroid cancer 2010 | Tumor | |
| th10a01ageques | Quality of life thyroid cancer 2010 | Age category at time of questionnaire (November 2010) | |
| th10a01ageinc | Quality of life thyroid cancer 2010 | Age category at time of diagnosis | |
| th10a01treat | Quality of life thyroid cancer 2010 | Primary treatment | |
| th10a01stage | Quality of life thyroid cancer 2010 | Stage | |
| th10a01yrsdiag | Quality of life thyroid cancer 2010 | Time passed since diagnosis | |
| th10a01BMI | Quality of life thyroid cancer 2010 | BMI | |
| th10a01ses_3 | Quality of life thyroid cancer 2010 | SES status | |
| th10a02q01 | Quality of life thyroid cancer 2010 | What is currently your marital status? | |
| th10a02q02 | Quality of life thyroid cancer 2010 | Indicate below which is your highest education level. | |
| th10a02q03 | Quality of life thyroid cancer 2010 | Do you have a paid job at this moment? | |
| th10a02q04 | Quality of life thyroid cancer 2010 | Paid job hours/week | |
| th10a02q05 | Quality of life thyroid cancer 2010 | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| th10a03q01 | Quality of life thyroid cancer 2010 | Do you smoke? | |
| th10a03q02 | Quality of life thyroid cancer 2010 | Number of cigarettes per day | |
| th10a03q03 | Quality of life thyroid cancer 2010 | Number of cigars per week | |
| th10a03q04 | Quality of life thyroid cancer 2010 | Number of packages of pipe tobacco (50 grams) per week | |
| th10a03q05 | Quality of life thyroid cancer 2010 | Do you drink alcohol? | |
| th10a03q06 | Quality of life thyroid cancer 2010 | Number of glasses of beer per week | |
| th10a03q07 | Quality of life thyroid cancer 2010 | Number of glasses of wine or port wine per week | |
| th10a03q08 | Quality of life thyroid cancer 2010 | Number of glasses of liquor per week (eg cognac, gin, whiskey, liquor) | |
| th10a04q01 | Quality of life thyroid cancer 2010 | Going for a walk in the summer | |
| th10a04q02 | Quality of life thyroid cancer 2010 | Going for a walk in the winter | |
| th10a04q03 | Quality of life thyroid cancer 2010 | Riding a bike in the summer | |
| th10a04q04 | Quality of life thyroid cancer 2010 | Riding a bike in the winter | |
| th10a04q05 | Quality of life thyroid cancer 2010 | Gardening in the summer | |
| th10a04q06 | Quality of life thyroid cancer 2010 | Gardening in the winter | |
| th10a04q07 | Quality of life thyroid cancer 2010 | Keeping house in the summer (for example laundry, cleaning, cooking, taking care of children) | |
| th10a04q08 | Quality of life thyroid cancer 2010 | Keeping house in the winter (for example laundry, cleaning, cooking, taking care of children) | |
| th10a05q01 | Quality of life thyroid cancer 2010 | How many times did you have contact with your general practitioner in the past 12 months? | |
| th10a05q02 | Quality of life thyroid cancer 2010 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| th10a05q03 | Quality of life thyroid cancer 2010 | How many times did you have contact with your specialist in the past 12 months? | |
| th10a05q04 | Quality of life thyroid cancer 2010 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| th10a05q05 | Quality of life thyroid cancer 2010 | Do you still have follow up appointments? | |
| th10a05q06 | Quality of life thyroid cancer 2010 | Did you discuss with your specialist how often you have to come back from this moment on? | |
| th10a05q07 | Quality of life thyroid cancer 2010 | Do you feel comfortable with this follow up scheme? | |
| th10a05q08 | Quality of life thyroid cancer 2010 | Did you receive care after the treatment of your illness? | |
| th10a05q09 | Quality of life thyroid cancer 2010 | Psychologist | |
| th10a05q10 | Quality of life thyroid cancer 2010 | Sexologist | |
| th10a05q11 | Quality of life thyroid cancer 2010 | Social worker | |
| th10a05q12 | Quality of life thyroid cancer 2010 | Pastoral care | |
| th10a05q13 | Quality of life thyroid cancer 2010 | General practitioner | |
| th10a05q14 | Quality of life thyroid cancer 2010 | Dietist | |
| th10a05q15 | Quality of life thyroid cancer 2010 | Physiotherapist | |
| th10a05q16 | Quality of life thyroid cancer 2010 | Recovery program | |
| th10a05q17 | Quality of life thyroid cancer 2010 | Creative therapy | |
| th10a05q18 | Quality of life thyroid cancer 2010 | Oncological nurse | |
| th10a05q19 | Quality of life thyroid cancer 2010 | Peer group | |
| th10a07q01 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Heart condition | |
| th10a07q02 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Stroke | |
| th10a07q03 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: High blood pressure | |
| th10a07q04 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Asthma, chronic bronchitis, COPD | |
| th10a07q05 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Diabetes | |
| th10a07q06 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Ulcer | |
| th10a07q07 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Kidney disease | |
| th10a07q08 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Liver disease | |
| th10a07q09 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Anemia or other blood condition | |
| th10a07q10 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Thyroid disease | |
| th10a07q11 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Depression | |
| th10a07q12 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Arthritis | |
| th10a07q13 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Backache | |
| th10a07q14 | Quality of life thyroid cancer 2010 | Do you have, or did you have in the past 12 months: Rheumatism | |
| th10a07q15 | Quality of life thyroid cancer 2010 | Are you being treated for: Heart condition | |
| th10a07q16 | Quality of life thyroid cancer 2010 | Are you being treated for: Stroke | |
| th10a07q17 | Quality of life thyroid cancer 2010 | Are you being treated for: High blood pressure | |
| th10a07q18 | Quality of life thyroid cancer 2010 | Asthma, chronic bronchitis, COPD | |
| th10a07q19 | Quality of life thyroid cancer 2010 | Are you being treated for: Diabetes | |
| th10a07q20 | Quality of life thyroid cancer 2010 | Are you being treated for: Ulcer | |
| th10a07q21 | Quality of life thyroid cancer 2010 | Are you being treated for: Kidney disease | |
| th10a07q22 | Quality of life thyroid cancer 2010 | Are you being treated for: Liver disease | |
| th10a07q23 | Quality of life thyroid cancer 2010 | Are you being treated for: Anemia or other blood condition | |
| th10a07q24 | Quality of life thyroid cancer 2010 | Are you being treated for: Thyroid disease | |
| th10a07q25 | Quality of life thyroid cancer 2010 | Are you being treated for: Depression | |
| th10a07q26 | Quality of life thyroid cancer 2010 | Are you being treated for: Arthritis | |
| th10a07q27 | Quality of life thyroid cancer 2010 | Are you being treated for: Backache | |
| th10a07q28 | Quality of life thyroid cancer 2010 | Are you being treated for: Rheumatism | |
| th10a07q29 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Heart condition | |
| th10a07q30 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Stroke | |
| th10a07q31 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: High blood pressure | |
| th10a07q32 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Asthma, chronic bronchitis, COPD | |
| th10a07q33 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Diabetes | |
| th10a07q34 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Ulcer | |
| th10a07q35 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Kidney disease | |
| th10a07q36 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Liver disease | |
| th10a07q37 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Anemia or other blood condition | |
| th10a07q38 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Thyroid disease | |
| th10a07q39 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Depression | |
| th10a07q40 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Arthritis | |
| th10a07q41 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Backache | |
| th10a07q42 | Quality of life thyroid cancer 2010 | Does the condition interfere with your activities: Rheumatism | |
| th10a06q01 | Quality of life thyroid cancer 2010 | Nothing has changed | |
| th10a06q02 | Quality of life thyroid cancer 2010 | I have been retrained due to cancer | |
| th10a06q03 | Quality of life thyroid cancer 2010 | I have quit working due to cancer | |
| th10a06q04 | Quality of life thyroid cancer 2010 | I am working more hours due to cancer | |
| th10a06q05 | Quality of life thyroid cancer 2010 | I am working less hours due to cancer | |
| th10a06q06 | Quality of life thyroid cancer 2010 | I am disabled due to cancer | |
| th10a06q07 | Quality of life thyroid cancer 2010 | I have retired early | |
| th10a06q08 | Quality of life thyroid cancer 2010 | I have been fired due to cancer | |
| th10a06q09 | Quality of life thyroid cancer 2010 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| th10a06q10 | Quality of life thyroid cancer 2010 | You have indicated that you have had trouble getting (additional) health insurance. What was the outcome? | |
| th10a06q11 | Quality of life thyroid cancer 2010 | Did you have trouble getting life insurance, because of cancer? | |
| th10a06q12 | Quality of life thyroid cancer 2010 | You have indicated that you have had trouble getting life insurance. What was the outcome? | |
| th10a06q13 | Quality of life thyroid cancer 2010 | Did you have trouble getting mortgage, because of cancer? | |
| th10a06q14 | Quality of life thyroid cancer 2010 | You have indicated that you have had trouble getting mortgage. What was the outcome? | |
| th10a44q01 | Quality of life thyroid cancer 2010 | My health, at present, depends on my medicines | |
| th10a44q02 | Quality of life thyroid cancer 2010 | Having to take medicines worries me | |
| th10a44q03 | Quality of life thyroid cancer 2010 | My life would be impossible without my medicines | |
| th10a44q04 | Quality of life thyroid cancer 2010 | I sometimes worry about the long-term effects of my medicines | |
| th10a44q05 | Quality of life thyroid cancer 2010 | Without my medicines I would become very ill | |
| th10a44q06 | Quality of life thyroid cancer 2010 | My medicines are no mystery to me | |
| th10a44q07 | Quality of life thyroid cancer 2010 | My health in the future will depend on my medicines | |
| th10a44q08 | Quality of life thyroid cancer 2010 | My medicines disrupt my life | |
| th10a44q09 | Quality of life thyroid cancer 2010 | I sometimes worry about becoming too dependent on my medicines | |
| th10a44q10 | Quality of life thyroid cancer 2010 | My medicines protect me from becoming worse | |
| th10a44q11 | Quality of life thyroid cancer 2010 | These medicines have unpleasant side effects | |
| th10a08q01 | Quality of life thyroid cancer 2010 | I forget to take my medicines | |
| th10a08q02 | Quality of life thyroid cancer 2010 | I alter the dose of my medicines | |
| th10a08q03 | Quality of life thyroid cancer 2010 | I stop taking my medicines for a while | |
| th10a08q04 | Quality of life thyroid cancer 2010 | I decide to miss out a dose | |
| th10a08q05 | Quality of life thyroid cancer 2010 | I take less than instructed | |
| th10a09q01 | Quality of life thyroid cancer 2010 | Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase? | |
| th10a09q02 | Quality of life thyroid cancer 2010 | Do you have any trouble taking a long walk? | |
| th10a09q03 | Quality of life thyroid cancer 2010 | Do you have any trouble taking a short walk outside of the house? | |
| th10a09q04 | Quality of life thyroid cancer 2010 | Do you need to stay in bed or a chair during the day? | |
| th10a09q05 | Quality of life thyroid cancer 2010 | Do you need help with eating, dressing, washing yourself or using the toilet? | |
| th10a09q06 | Quality of life thyroid cancer 2010 | Were you limited in doing either your work or other daily activities? | |
| th10a09q07 | Quality of life thyroid cancer 2010 | Were you limited in pursuing your hobbies or other leisure time activities? | |
| th10a09q08 | Quality of life thyroid cancer 2010 | Were you short of breath? | |
| th10a09q09 | Quality of life thyroid cancer 2010 | Have you had pain? | |
| th10a09q10 | Quality of life thyroid cancer 2010 | Did you need to rest? | |
| th10a09q11 | Quality of life thyroid cancer 2010 | Have you had trouble sleeping? | |
| th10a09q12 | Quality of life thyroid cancer 2010 | Have you felt weak? | |
| th10a09q13 | Quality of life thyroid cancer 2010 | Have you lacked appetite? | |
| th10a09q14 | Quality of life thyroid cancer 2010 | Have you felt nauseated? | |
| th10a09q15 | Quality of life thyroid cancer 2010 | Have you vomited? | |
| th10a09q16 | Quality of life thyroid cancer 2010 | Have you been constipated? | |
| th10a09q17 | Quality of life thyroid cancer 2010 | Have you had diarrhea? | |
| th10a09q18 | Quality of life thyroid cancer 2010 | Were you tired? | |
| th10a09q19 | Quality of life thyroid cancer 2010 | Did pain interfere with your daily activities? | |
| th10a09q20 | Quality of life thyroid cancer 2010 | Have you had difficulty in concentrating on things, like reading a newspaper or watching television? | |
| th10a09q21 | Quality of life thyroid cancer 2010 | Did you feel tense? | |
| th10a09q22 | Quality of life thyroid cancer 2010 | Did you worry? | |
| th10a09q23 | Quality of life thyroid cancer 2010 | Did you feel irritable? | |
| th10a09q24 | Quality of life thyroid cancer 2010 | Did you feel depressed? | |
| th10a09q25 | Quality of life thyroid cancer 2010 | Have you had difficulty remembering things? | |
| th10a09q26 | Quality of life thyroid cancer 2010 | Has your physical condition or medical treatment interfered with your family life? | |
| th10a09q27 | Quality of life thyroid cancer 2010 | Has your physical condition or medical treatment interfered with your social activities? | |
| th10a09q28 | Quality of life thyroid cancer 2010 | Has your physical condition or medical treatment caused you financial difficulties? | |
| th10a09q29 | Quality of life thyroid cancer 2010 | How would you rate your overall health during the past week? | |
| th10a09q30 | Quality of life thyroid cancer 2010 | How would you rate your overall quality of life during the past week? | |
| th10a09s01 | Quality of life thyroid cancer 2010 | globalhealth | |
| th10a09s02 | Quality of life thyroid cancer 2010 | physicalfunctioning | |
| th10a09s03 | Quality of life thyroid cancer 2010 | rolefunctioning | |
| th10a09s04 | Quality of life thyroid cancer 2010 | emotionalfunctioning | |
| th10a09s05 | Quality of life thyroid cancer 2010 | cognitivefunctioning | |
| th10a09s06 | Quality of life thyroid cancer 2010 | socialfunctioning | |
| th10a09s07 | Quality of life thyroid cancer 2010 | fatigue | |
| th10a09s08 | Quality of life thyroid cancer 2010 | nausea | |
| th10a09s09 | Quality of life thyroid cancer 2010 | pain | |
| th10a09s10 | Quality of life thyroid cancer 2010 | dyspnoea | |
| th10a09s11 | Quality of life thyroid cancer 2010 | insomnia | |
| th10a09s12 | Quality of life thyroid cancer 2010 | appetite | |
| th10a09s13 | Quality of life thyroid cancer 2010 | constipation | |
| th10a09s14 | Quality of life thyroid cancer 2010 | diarrhoea | |
| th10a09s15 | Quality of life thyroid cancer 2010 | financial | |
| th10a16q01 | Quality of life thyroid cancer 2010 | Did you have a dry mouth? | |
| th10a16q02 | Quality of life thyroid cancer 2010 | Have you had trouble swallowing? | |
| th10a16q03 | Quality of life thyroid cancer 2010 | Have you been hoarse? | |
| th10a16q04 | Quality of life thyroid cancer 2010 | Did you have a weak voice? | |
| th10a16q05 | Quality of life thyroid cancer 2010 | Did you have a lump in your throat? | |
| th10a16q06 | Quality of life thyroid cancer 2010 | Did the scar in your neck bother you? | |
| th10a16q07 | Quality of life thyroid cancer 2010 | Have you felt chilly? | |
| th10a16q08 | Quality of life thyroid cancer 2010 | Have you had difficulty tolerating heat? | |
| th10a16q09 | Quality of life thyroid cancer 2010 | Did you have hot flushes? | |
| th10a16q10 | Quality of life thyroid cancer 2010 | Did you have pain in your muscles and/or joints? | |
| th10a16q11 | Quality of life thyroid cancer 2010 | Did you have tingling hands and/or feet? | |
| th10a16q12 | Quality of life thyroid cancer 2010 | Have you had cramps in your legs? | |
| th10a16q13 | Quality of life thyroid cancer 2010 | Have you felt slowed down? | |
| th10a16q14 | Quality of life thyroid cancer 2010 | Have you gained weight? | |
| th10a16q15 | Quality of life thyroid cancer 2010 | Did you have painful, irritated or dry eyes? | |
| th10a16q16 | Quality of life thyroid cancer 2010 | Have you had skin problems (e.g. itchy, dry)? | |
| th10a16q17 | Quality of life thyroid cancer 2010 | Did you suffer from palpitations? | |
| th10a16q18 | Quality of life thyroid cancer 2010 | Did you have headaches? | |
| th10a16q19 | Quality of life thyroid cancer 2010 | Did you have abrupt attacks from tiredness? | |
| th10a16q20 | Quality of life thyroid cancer 2010 | Did you have troubles with thinking? | |
| th10a16q21 | Quality of life thyroid cancer 2010 | Did you have attention problems? | |
| th10a16q22 | Quality of life thyroid cancer 2010 | Did you feel restless or agitated? | |
| th10a16q23 | Quality of life thyroid cancer 2010 | Have you felt anxious? | |
| th10a16q24 | Quality of life thyroid cancer 2010 | To what extent were you interested in sex? | |
| th10a18q01 | Quality of life thyroid cancer 2010 | In general, would you say your health is | |
| th10a18q02 | Quality of life thyroid cancer 2010 | Moderate activities, such as: moving a table, pushing a vacuum cleaner, bowling, or playing golf | |
| th10a18q03 | Quality of life thyroid cancer 2010 | Climbing several flights of stairs | |
| th10a18q04 | Quality of life thyroid cancer 2010 | During the past 4 weeks, have you had any of the following problems with your work or other regular activities as a result of your physical health? Accomplished less than you would like | |
| th10a18q05 | Quality of life thyroid cancer 2010 | Were limited in the kind of work or other activities | |
| th10a18q06 | Quality of life thyroid cancer 2010 | During the past 4 weeks, were you limited in the kind of work you do or other regular activities as a result of any emotional problems? (such as feeling depressed or anxious) Accomplished less than you would like: | |
| th10a18q07 | Quality of life thyroid cancer 2010 | Didn’t do work or other activities as carefully as usual | |
| th10a18q08 | Quality of life thyroid cancer 2010 | During the past 4 weeks, how much did pain interfere with your normal work? (including both work outside the home and housework) | |
| th10a18q09 | Quality of life thyroid cancer 2010 | How much of the time during the past 4 weeks… Have you felt calm and peaceful? | |
| th10a18q10 | Quality of life thyroid cancer 2010 | Did you have a lot of energy? | |
| th10a18q11 | Quality of life thyroid cancer 2010 | Have you felt downhearted and blue? | |
| th10a18q12 | Quality of life thyroid cancer 2010 | During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities? (like visiting with friends, relatives, etc) | |
| th10a21q01 | Quality of life thyroid cancer 2010 | I make contact easily when I meet people. | |
| th10a21q02 | Quality of life thyroid cancer 2010 | I often make a fuss about unimportant things. | |
| th10a21q03 | Quality of life thyroid cancer 2010 | I often talk to strangers. | |
| th10a21q04 | Quality of life thyroid cancer 2010 | I often feel unhappy. | |
| th10a21q05 | Quality of life thyroid cancer 2010 | I am often irritated. | |
| th10a21q06 | Quality of life thyroid cancer 2010 | I often feel inhibited in social interactions. | |
| th10a21q07 | Quality of life thyroid cancer 2010 | I take a gloomy view on things. | |
| th10a21q08 | Quality of life thyroid cancer 2010 | I find it hard to start a conversation. | |
| th10a21q09 | Quality of life thyroid cancer 2010 | I am often in a bad mood. | |
| th10a21q10 | Quality of life thyroid cancer 2010 | I am a closed kind of person. | |
| th10a21q11 | Quality of life thyroid cancer 2010 | I would rather keep other people at a distance. | |
| th10a21q12 | Quality of life thyroid cancer 2010 | I often find myself worrying about something. | |
| th10a21q13 | Quality of life thyroid cancer 2010 | I am often down in the dumps. | |
| th10a21q14 | Quality of life thyroid cancer 2010 | When socializing, I don’t find the right things to talk about. | |
| th10a21s01 | Quality of life thyroid cancer 2010 | DS14 negative affect | |
| th10a21s02 | Quality of life thyroid cancer 2010 | DS14 social inhibition | |
| th10a21s03 | Quality of life thyroid cancer 2010 | Type D personality | |
| th10a22q01 | Quality of life thyroid cancer 2010 | How much does your illness affect your life? | |
| th10a22q02 | Quality of life thyroid cancer 2010 | How long do you think your illness will continue? | |
| th10a22q03 | Quality of life thyroid cancer 2010 | How much control do you feel you have over your illness? | |
| th10a22q04 | Quality of life thyroid cancer 2010 | How much do you think your treatment can help your illness? | |
| th10a22q05 | Quality of life thyroid cancer 2010 | How much do you experience symptoms from your illness? | |
| th10a22q06 | Quality of life thyroid cancer 2010 | How concerned are you about your illness? | |
| th10a22q07 | Quality of life thyroid cancer 2010 | How well do you feel you understand your illness? | |
| th10a22q08 | Quality of life thyroid cancer 2010 | How much does your illness affect you emotionally? (e.g. does it make you angry, scared, upset or depressed? | |
| th10a25q01 | Quality of life thyroid cancer 2010 | I do not take my body for granted since the cancer. | |
| th10a25q02 | Quality of life thyroid cancer 2010 | Having had cancer has made me more concerned about my health. | |
| th10a25q03 | Quality of life thyroid cancer 2010 | I am more aware of physical problems or changes in my body since having had cancer. | |
| th10a25q04 | Quality of life thyroid cancer 2010 | Having had cancer has made me take better care of myself (my health). | |
| th10a25q05 | Quality of life thyroid cancer 2010 | I consider myself to be a cancer survivor. | |
| th10a25q06 | Quality of life thyroid cancer 2010 | I feel a sense of pride or accomplishment from surviving cancer. | |
| th10a25q07 | Quality of life thyroid cancer 2010 | I learned something about myself because of having had cancer. | |
| th10a25q08 | Quality of life thyroid cancer 2010 | I feel that I am a role model to other people with cancer. | |
| th10a25q09 | Quality of life thyroid cancer 2010 | Having had cancer makes me feel unsure about my future. | |
| th10a25q10 | Quality of life thyroid cancer 2010 | I feel like time in my life is running out. | |
| th10a25q11 | Quality of life thyroid cancer 2010 | I worry about the cancer coming back or about getting another cancer. | |
| th10a25q12 | Quality of life thyroid cancer 2010 | Having had cancer makes me feel uncertain about my health. | |
| th10a25q13 | Quality of life thyroid cancer 2010 | I worry about my future. | |
| th10a25q14 | Quality of life thyroid cancer 2010 | New symptoms make me worry about the cancer coming back. | |
| th10a25q15 | Quality of life thyroid cancer 2010 | I worry about my health. | |
| th10a25q16 | Quality of life thyroid cancer 2010 | I am concerned that my energy has not returned to what it was before I had cancer. | |
| th10a25q17 | Quality of life thyroid cancer 2010 | I am bothered that my body cannot do what it could before having had cancer. | |
| th10a25q18 | Quality of life thyroid cancer 2010 | Having had cancer has made me feel old. | |
| th10a25q19 | Quality of life thyroid cancer 2010 | I worry about how my body looks. | |
| th10a25q20 | Quality of life thyroid cancer 2010 | I feel disfigured. | |
| th10a25q21 | Quality of life thyroid cancer 2010 | I sometimes wear clothing to cover up parts of my body I do not want others to see. | |
| th10a25q22 | Quality of life thyroid cancer 2010 | I feel a special bond with people with cancer. | |
| th10a25q23 | Quality of life thyroid cancer 2010 | Because I had cancer I am more understanding of what other people may feel when they are seriously ill. | |
| th10a25q24 | Quality of life thyroid cancer 2010 | Having had cancer has made me more willing to help others. | |
| th10a25q25 | Quality of life thyroid cancer 2010 | I feel that I should give something back to others because I survived cancer. | |
| th10a25q26 | Quality of life thyroid cancer 2010 | I feel guilty today for not having been available to my family when I had cancer. | |
| th10a25q27 | Quality of life thyroid cancer 2010 | I feel like cancer runs my life. | |
| th10a25q28 | Quality of life thyroid cancer 2010 | Having had cancer has made me feel alone. | |
| th10a25q29 | Quality of life thyroid cancer 2010 | Having had cancer has made me feel like some people (friends, family, co-workers) do not understand me. | |
| th10a25q30 | Quality of life thyroid cancer 2010 | Uncertainty about my future affects my decisions to make plans. | |
| th10a25q31 | Quality of life thyroid cancer 2010 | Having had cancer keeps me from doing activities I enjoy (examples: travel, socializing, recreation, time with family). | |
| th10a25q32 | Quality of life thyroid cancer 2010 | On-going cancer-related or treatment-related symptoms (for example bladder or bowel control, lymphedema, hair loss, scars, infertility, premature menopause, lack of energy, impotence/sexual problems, aches, pain or physical discomfort) interfere with my life | |
| th10a25q33 | Quality of life thyroid cancer 2010 | Having had cancer turned into a reason to make changes in my life. | |
| th10a25q34 | Quality of life thyroid cancer 2010 | Because of cancer I have become better about expressing what I want. | |
| th10a25q35 | Quality of life thyroid cancer 2010 | Because of cancer I have more confidence in myself. | |
| th10a25q36 | Quality of life thyroid cancer 2010 | Having had cancer has given me direction in life. | |
| th10a25q37 | Quality of life thyroid cancer 2010 | Because of having had cancer I feel that I have more control of my life. | |
| th10a25q38 | Quality of life thyroid cancer 2010 | Are you married, living together, or in a LAT-relationship? | |
| th10a25q39 | Quality of life thyroid cancer 2010 | Uncertainties about my health or my future have made me delay getting married or getting involved in a serious relationship. | |
| th10a25q40 | Quality of life thyroid cancer 2010 | I wonder how to tell a potential spouse, partner, boyfriend or girlfriend that I have had cancer. | |
| th10a25q41 | Quality of life thyroid cancer 2010 | I worry about not having a spouse, partner, boyfriend or girlfriend. | |
| th10a25q42 | Quality of life thyroid cancer 2010 | I am open and willing to discuss my cancer with my spouse/partner. | |
| th10a25q43 | Quality of life thyroid cancer 2010 | My spouse/partner is open and willing to discuss my cancer with me. | |
| th10a25q44 | Quality of life thyroid cancer 2010 | Uncertainty about my health has created problems in my relationship with my spouse/partner. | |
| th10a25q45 | Quality of life thyroid cancer 2010 | I worry about my spouse/partner leaving me if I were to become ill again. | |
| th10a25q46 | Quality of life thyroid cancer 2010 | Are you completely retired right now? | |
| th10a25q47 | Quality of life thyroid cancer 2010 | Did you have a job and income for (part of) the last 12 months? | |
| th10a25q48 | Quality of life thyroid cancer 2010 | I am concerned about not being able to work if I become ill again | |
| th10a25q49 | Quality of life thyroid cancer 2010 | Concerns about losing health insurance keep me in the job I have now | |
| th10a25q50 | Quality of life thyroid cancer 2010 | I worry about being forced to retire or quit work before I am ready | |
| th10a25s01 | Quality of life thyroid cancer 2010 | Altruism/empathy scale | |
| th10a25s02 | Quality of life thyroid cancer 2010 | Health awareness scale | |
| th10a25s03 | Quality of life thyroid cancer 2010 | Meaning of cancer scale | |
| th10a25s04 | Quality of life thyroid cancer 2010 | Positive self-evaluation scale | |
| th10a25s05 | Quality of life thyroid cancer 2010 | Positive Impact Scale | |
| th10a25s06 | Quality of life thyroid cancer 2010 | Body change concerns scale | |
| th10a25s07 | Quality of life thyroid cancer 2010 | Life interferences scale | |
| th10a25s08 | Quality of life thyroid cancer 2010 | Appearance concerns scale | |
| th10a25s09 | Quality of life thyroid cancer 2010 | Worry scale | |
| th10a25s10 | Quality of life thyroid cancer 2010 | Negative Impact Scale | |
| th10a25s11 | Quality of life thyroid cancer 2010 | Employment concerns scale, for those currently employed | |
| th10a25s12 | Quality of life thyroid cancer 2010 | Relationship concerns (not partnered) scale | |
| th10a25s13 | Quality of life thyroid cancer 2010 | Relationship concerns (partnered) scale | |
| th10a23q01 | Quality of life thyroid cancer 2010 | I am bothered by fatigue | |
| th10a23q02 | Quality of life thyroid cancer 2010 | I get tired very quickly | |
| th10a23q03 | Quality of life thyroid cancer 2010 | I don’t do much during the day | |
| th10a23q04 | Quality of life thyroid cancer 2010 | I have enough energy for everyday life | |
| th10a23q05 | Quality of life thyroid cancer 2010 | Physically, I feel exhausted | |
| th10a23q06 | Quality of life thyroid cancer 2010 | I have problems starting things | |
| th10a23q07 | Quality of life thyroid cancer 2010 | I have problems thinking clearly | |
| th10a23q08 | Quality of life thyroid cancer 2010 | I feel no desire to do anything | |
| th10a23q09 | Quality of life thyroid cancer 2010 | Mentally, I feel exhausted | |
| th10a23q10 | Quality of life thyroid cancer 2010 | When I am doing something, I can concentrate quite well | |
| th10a23s01 | Quality of life thyroid cancer 2010 | FAS total | |
| th10a24q01 | Quality of life thyroid cancer 2010 | I feel tense or ‘wound up’ | |
| th10a24q02 | Quality of life thyroid cancer 2010 | I still enjoy the things I used to enjoy | |
| th10a24q03 | Quality of life thyroid cancer 2010 | I get a sort of frightened feeling as if something is awful is about to happen | |
| th10a24q04 | Quality of life thyroid cancer 2010 | I can laugh and see the funny side of things | |
| th10a24q05 | Quality of life thyroid cancer 2010 | Worrying thought goes through my mind | |
| th10a24q06 | Quality of life thyroid cancer 2010 | I feel cheerful | |
| th10a24q07 | Quality of life thyroid cancer 2010 | I can seat at ease and feel relaxed | |
| th10a24q08 | Quality of life thyroid cancer 2010 | I feel as I am slowed down | |
| th10a24q09 | Quality of life thyroid cancer 2010 | I get a sort of frightened feeling like butterflies in the stomach | |
| th10a24q10 | Quality of life thyroid cancer 2010 | I have lost interest in my appearance | |
| th10a24q11 | Quality of life thyroid cancer 2010 | I feel restless, as if I had to be on the move | |
| th10a24q12 | Quality of life thyroid cancer 2010 | I look forward with enjoyment to things | |
| th10a24q13 | Quality of life thyroid cancer 2010 | I get sudden feelings of panic | |
| th10a24q14 | Quality of life thyroid cancer 2010 | I can enjoy a good TV or radio program or book | |
| th10a24s01 | Quality of life thyroid cancer 2010 | HADS anxiety | |
| th10a24s02 | Quality of life thyroid cancer 2010 | HADS depression | |
| th10a26q01 | Quality of life thyroid cancer 2010 | The diagnosis of your disease? | |
| th10a26q02 | Quality of life thyroid cancer 2010 | The extent (spread) of your disease? | |
| th10a26q03 | Quality of life thyroid cancer 2010 | The possible causes of your disease? | |
| th10a26q04 | Quality of life thyroid cancer 2010 | Whether the disease is under control? | |
| th10a26q05 | Quality of life thyroid cancer 2010 | The purpose of any medical tests you have had or may undergo? | |
| th10a26q06 | Quality of life thyroid cancer 2010 | The procedures of the medical tests? | |
| th10a26q07 | Quality of life thyroid cancer 2010 | The results of the medical tests you have already received? | |
| th10a26q08 | Quality of life thyroid cancer 2010 | The medical treatment (chemotherapy, radiotherapy, surgery or other treatment modality)? | |
| th10a26q09 | Quality of life thyroid cancer 2010 | Non-medical treatments (for example herbal therapy, homeopathy, relaxation therapy)? | |
| th10a26q10 | Quality of life thyroid cancer 2010 | The expected benefit of the treatment? | |
| th10a26q11 | Quality of life thyroid cancer 2010 | The possible side-effects of your treatment? | |
| th10a26q12 | Quality of life thyroid cancer 2010 | The expected effects of the treatment on disease symptoms? | |
| th10a26q13 | Quality of life thyroid cancer 2010 | The effects of the treatment on social and family life? | |
| th10a26q14 | Quality of life thyroid cancer 2010 | The effects of the treatment on sexual activity? | |
| th10a26q15 | Quality of life thyroid cancer 2010 | Additional help outside the hospital (e.g. help with daily activities, self help groups, district nurses)? | |
| th10a26q16 | Quality of life thyroid cancer 2010 | Rehabilitation services (e. g. physiotherapy, occupational therapy)? | |
| th10a26q17 | Quality of life thyroid cancer 2010 | Aspects of managing your illness at home? | |
| th10a26q18 | Quality of life thyroid cancer 2010 | Possible professional psychological support? | |
| th10a26q19 | Quality of life thyroid cancer 2010 | Different places of care (hospitals/outpatient services/home)? | |
| th10a26q20 | Quality of life thyroid cancer 2010 | Things that you can do to help yourself get well (rest, contact with others..)? | |
| th10a26q21 | Quality of life thyroid cancer 2010 | Have you received written information? | |
| th10a26q22 | Quality of life thyroid cancer 2010 | Have you received information on CD or tape / video? | |
| th10a26q23 | Quality of life thyroid cancer 2010 | Were you satisfied with the amount of information you received? | |
| th10a26q24 | Quality of life thyroid cancer 2010 | Do you wish to receive more information? | |
| th10a26q25 | Quality of life thyroid cancer 2010 | Do you wish that you had received less information? | |
| th10a26q26 | Quality of life thyroid cancer 2010 | Overall has the information you have received been helpful? ? | |
| th10a26s01 | Quality of life thyroid cancer 2010 | information about the disease | |
| th10a26s02 | Quality of life thyroid cancer 2010 | information about medical tests | |
| th10a26s03 | Quality of life thyroid cancer 2010 | information about treatments | |
| th10a26s04 | Quality of life thyroid cancer 2010 | information about other services | |
| th10a26s05 | Quality of life thyroid cancer 2010 | satisfaction with the information received | |
| th10a26s06 | Quality of life thyroid cancer 2010 | helpfulness of information | |
| th10a27q01 | Quality of life thyroid cancer 2010 | Do you use the internet? | |
| th10a27q02 | Quality of life thyroid cancer 2010 | Did you use the internet to find information about thyroid cancer? |