IKNL Profiles > Quality of life lymphoma > Quality of life Hodgkin lymphoma May 2009
Publisher
IKNL Profiles study
Creator
Simone Oerlemans, Lonneke van de Poll - Franse
Created
Jun 06 2012
Description
URL to resource
Panel
iknl
Begin date
May 01 2009
| Name | English | Dutch |
|---|---|---|
| Intro | Life after cancer Please fill in the questionnaire by yourself, in your own pace. You can answer the questions by checking the box/number… | |
| 02q01 | What is currently your marital status? | |
| 02q02 | Indicate below which is your highest education level. | |
| 06q01 | Do you have a paid job at this moment? | |
| 06q02 | Paid job hours/week | |
| 06q03 | If you do not have a paid job, which of the following reasons is most applicable for your situation? | |
| 05q01 | How many times did you have contact with your general practitioner in the past 12 months? | |
| 05q02 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q03 | How many times did you have contact with your specialist in the past 12 months? | |
| 05q04 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q05 | Do you still have follow up appointments? | |
| 05q06 | Did you discuss with your specialist how often you have to come back from this moment on? | |
| 05q07 | Do you feel comfortable with this follow up scheme? | |
| 05q08 | Did you receive care after the treatment of your illness? | |
| 05q09 - 05q19 | If you have had extra care after the treatment of your melanoma, who did you get it from? | |
| 07q01 -07q14 | Below you see a list of chronic conditions and diseases. Please indicate for each condition or disease whether you have it now or have had … | |
| 07q15 - 07q28 | Please indicate for each condition if you are treated for it or not. | |
| 07q29 - 07q42 | Please indicate for each condition whether it interferes with your activities or not. | |
| 06q04 | Which changes have you experienced in your work situation due to cancer? | |
| 06q05 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| 06q06 | You have indicated that you have had trouble getting (additional) health insurance. What was the outcome? | |
| 06q07 | Did you have trouble getting life insurance, because of cancer? | |
| 06q08 | You have indicated that you have had trouble getting life insurance. What was the outcome? | |
| 06q09 | Did you have trouble getting mortgage, because of cancer? | |
| 06q10 | You have indicated that you have had trouble getting mortgage. What was the outcome? | |
| Intro 2 | Instruction: We are interested in certain things about you and your health. Please answer each question by checking the box in the indicate… | |
| 09q01-09q05 | ||
| 09q06 - 09q16 | During the past week: | |
| 09q17 - 09q28 | During the past week: | |
| 09q29 | How would you rate your overall health during the past week? | |
| 09q30 | How would you rate your overall quality of life during the past week? | |
| 11q01 - 11q17 | Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you have experienced these… | |
| 20q01 | Mobility | |
| 20q02 | Self care | |
| 20q03 | Daily affairs (For example work, school, householding, family- and leisure activities) | |
| 20q04 | Pain / troubles | |
| 20q05 | Mood | |
| 21q01 - 21q14 | Below are a number of statements that people often use to describe themselves. Please read each statement and then circle the appropriate n… | |
| Intro 3 | For the following questions, please circle the number that best corresponds to your views. | |
| 22q01 | How much does your illness affect your life? | |
| 22q02 | How long do you think your illness will continue? | |
| 22q03 | How much control do you feel you have over your illness? | |
| 22q04 | How much do you think your treatment can help your illness? | |
| 22q05 | How much do you experience symptoms from your illness? | |
| 22q06 | How concerned are you about your illness? | |
| 22q07 | How well do you feel you understand your illness? | |
| 22q08 | How much does your illness affect you emotionally? (e.g. does it make you angry, scared, upset or depressed? | |
| 23q01 - 23q10 | ||
| Intro 4 | The following questions are about how you feel right now. Please choose the answer that best describes your current feeling. Do not think t… | |
| 24q01 | I feel tense or 'wound up' | |
| 24q02 | I still enjoy the things I used to enjoy | |
| 24q03 | I get a sort of frightened feeling as if something awful is about to happen | |
| 24q04 | I can laugh and see the funny side of things | |
| 24q05 | Worrying thoughts go through my mind | |
| 24q06 | I feel cheerful | |
| 24q07 | I can sit at ease and feel relaxed | |
| 24q08 | I feel as if I am slowed down | |
| 24q09 | I get a sort of frightened feeling like ‘butterflies’ in the stomach | |
| 24q10 | I have lost interest in my appearance | |
| 24q11 | I feel restless, as if I have to be on the move | |
| 24q12 | I look forward with enjoyment to things | |
| 24q13 | I get sudden feelings of panic | |
| 24q14 | I can enjoy a good book or radio or TV program | |
| 25q01 - 25q41 | We would like to know how cancer affects your life. Please answer the following questions. Choose the answer that best applies to you. Ther… | |
| Intro 5 | To improve healthcare, we would like to know what information you received about the various aspects of your illness and its treatment. Ple… | |
| 26q01 -26q20 | During your current disease or treatment, how much information have you received on: | |
| 26q21 | Have you received written information? | |
| 26q22 | Have you received information on CD or tape / video? | |
| 26q23 | Were you satisfied with the amount of information you received? | |
| 26q24 | Do you wish to receive more information? | |
| 26q25 | Do you wish that you had received less information? | |
| 26q26 | Overall has the information you have received been helpful? | |
| 27q01 | Do you use the internet? | |
| 27q02 | Did you use the internet to find information about (non-)Hodgkin lymphoma? | |
| 53q03 | Did you have trouble getting life insurance, because of cancer? | |
| 53q04 | You have indicated that you have had trouble getting life insurance. What was the outcome? | |
| 53q05 | Did you have trouble getting mortgage, because of cancer? | |
| 53q06 | You have indicated that you have had trouble getting mortgage. What was the outcome? |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| hl09a01pat_id | hl09a_EN_1.0.sav | Patiënt identifier | |
| hl09a01response | hl09a_EN_1.0.sav | Response status | |
| hl09a01gend | hl09a_EN_1.0.sav | Gender | |
| hl09a01ageques | hl09a_EN_1.0.sav | Age category at time of questionnaire | |
| hl09a01ageinc | hl09a_EN_1.0.sav | Age category at time of diagnosis | |
| hl09a01yrsdiag | hl09a_EN_1.0.sav | Time passed since diagnosis | |
| hl09a01treatment | hl09a_EN_1.0.sav | Type of treatment | |
| nhl04a01stage | hl09a_EN_1.0.sav | Stage | |
| hl09a01bmi | hl09a_EN_1.0.sav | BMI | |
| hl09a01SES3 | hl09a_EN_1.0.sav | SES status in 3(4) categories | |
| hl09a02q01 | hl09a_EN_1.0.sav | What is currently your marital status? | |
| hl09a02q02 | hl09a_EN_1.0.sav | Indicate below which is your highest education level. | |
| hl09a06q01 | hl09a_EN_1.0.sav | Do you have a paid job at this moment? | |
| hl09a06q02 | hl09a_EN_1.0.sav | Paid job hours/week | |
| hl09a06q03 | hl09a_EN_1.0.sav | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| hl09a05q01 | hl09a_EN_1.0.sav | How many times did you have contact with your general practitioner in the past 12 months? | |
| hl09a05q02 | hl09a_EN_1.0.sav | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| hl09a05q03 | hl09a_EN_1.0.sav | How many times did you have contact with your specialist in the past 12 months? | |
| hl09a05q04 | hl09a_EN_1.0.sav | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| hl09a05q05 | hl09a_EN_1.0.sav | Do you still have follow up appointments? | |
| hl09a05q06 | hl09a_EN_1.0.sav | Did you discuss with your specialist how often you have to come back from this moment on? | |
| hl09a05q07 | hl09a_EN_1.0.sav | Do you feel comfortable with this follow up scheme? | |
| hl09a05q08 | hl09a_EN_1.0.sav | Did you receive care after the treatment of your illness? | |
| hl09a05q09 | hl09a_EN_1.0.sav | Did you receive extra care from a psychologist? | |
| hl09a05q10 | hl09a_EN_1.0.sav | Did you receive extra care from a sexologist? | |
| hl09a05q11 | hl09a_EN_1.0.sav | Did you receive extra care from a social worker? | |
| hl09a05q12 | hl09a_EN_1.0.sav | Did you receive extra care from pastoral care? | |
| hl09a05q13 | hl09a_EN_1.0.sav | Did you receive extra care from a General Practitioner? | |
| hl09a05q14 | hl09a_EN_1.0.sav | Did you receive extra care from a dietist? | |
| hl09a05q15 | hl09a_EN_1.0.sav | Did you receive extra care from a physiotherapist? | |
| hl09a05q16 | hl09a_EN_1.0.sav | Did you receive extra care from a recovery program? | |
| hl09a05q17 | hl09a_EN_1.0.sav | Did you receive extra care from creative therapy? | |
| hl09a05q18 | hl09a_EN_1.0.sav | Did you receive extra care from an oncological nurse? | |
| hl09a05q19 | hl09a_EN_1.0.sav | Did you receive extra care from a peer group? | |
| hl09a07q01 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: heart condition | |
| hl09a07q15 | hl09a_EN_1.0.sav | Are you being treated for: heart condition | |
| hl09a07q29 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: heart condition | |
| hl09a07q02 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: stroke | |
| hl09a07q16 | hl09a_EN_1.0.sav | Are you being treated for: stroke | |
| hl09a07q30 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: stroke | |
| hl09a07q03 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: high blood pressure | |
| hl09a07q17 | hl09a_EN_1.0.sav | Are you being treated for: high blood pressure | |
| hl09a07q31 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: high blood pressure | |
| hl09a07q04 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: asthma, chronic bronchitis, COPD | |
| hl09a07q18 | hl09a_EN_1.0.sav | Are you being treated for: asthma, chronic bronchitis, COPD | |
| hl09a07q32 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: asthma, chronic bronchitis, COPD | |
| hl09a07q05 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: diabetes | |
| hl09a07q19 | hl09a_EN_1.0.sav | Are you being treated for: diabetes | |
| hl09a07q33 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: diabetes | |
| hl09a07q06 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: ulcer | |
| hl09a07q20 | hl09a_EN_1.0.sav | Are you being treated for: ulcer | |
| hl09a07q34 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: ulcer | |
| hl09a07q07 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: kidney disease | |
| hl09a07q21 | hl09a_EN_1.0.sav | Are you being treated for: kidney disease | |
| hl09a07q35 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: kidney disease | |
| hl09a07q08 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: liver disease | |
| hl09a07q22 | hl09a_EN_1.0.sav | Are you being treated for: liver disease | |
| hl09a07q36 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: liver disease | |
| hl09a07q09 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: anemia or other blood condition | |
| hl09a07q23 | hl09a_EN_1.0.sav | Are you being treated for: anemia or other blood condition | |
| hl09a07q37 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: anemia or other blood condition | |
| hl09a07q10 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: thyroid disease | |
| hl09a07q24 | hl09a_EN_1.0.sav | Are you being treated for: thyroid disease | |
| hl09a07q38 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: thyroid disease | |
| hl09a07q11 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: depression | |
| hl09a07q25 | hl09a_EN_1.0.sav | Are you being treated for: depression | |
| hl09a07q39 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: depression | |
| hl09a07q12 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: arthritis | |
| hl09a07q26 | hl09a_EN_1.0.sav | Are you being treated for: arthritis | |
| hl09a07q40 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: arthritis | |
| hl09a07q13 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: backache | |
| hl09a07q27 | hl09a_EN_1.0.sav | Are you being treated for: backache | |
| hl09a07q41 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: backache | |
| hl09a07q14 | hl09a_EN_1.0.sav | Do you have, or did you have in the past 12 months: rheumatism | |
| hl09a07q28 | hl09a_EN_1.0.sav | Are you being treated for: rheumatism | |
| hl09a07q42 | hl09a_EN_1.0.sav | Does the condition interfere with your activities: rheumatism | |
| hl09a06q04 | hl09a_EN_1.0.sav | Which changes have you experienced in your work situation due to cancer? | |
| hl09a06q05 | hl09a_EN_1.0.sav | Did you have trouble finding (additional) health insurance, because of cancer? | |
| hl09a06q06 | hl09a_EN_1.0.sav | You have indicated that you have had trouble getting (additional) health insurance. What was the outcome? | |
| hl09a06q07 | hl09a_EN_1.0.sav | Did you have trouble getting life insurance, because of cancer? | |
| hl09a06q08 | hl09a_EN_1.0.sav | You have indicated that you have had trouble getting life insurance. What was the outcome? | |
| hl09a06q09 | hl09a_EN_1.0.sav | Did you have trouble getting mortgage, because of cancer? | |
| hl09a06q10 | hl09a_EN_1.0.sav | You have indicated that you have had trouble getting mortgage. What was the outcome? | |
| hl09a09q01 | hl09a_EN_1.0.sav | Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase? | |
| hl09a09q02 | hl09a_EN_1.0.sav | Do you have any trouble taking a long walk? | |
| hl09a09q03 | hl09a_EN_1.0.sav | Do you have any trouble taking a short walk outside of the house? | |
| hl09a09q04 | hl09a_EN_1.0.sav | Do you need to stay in bed or a chair during the day? | |
| hl09a09q05 | hl09a_EN_1.0.sav | Do you need help with eating, dressing, washing yourself or using the toilet? | |
| hl09a09q06 | hl09a_EN_1.0.sav | Were you limited in doing either your work or other daily activities during the past week? | |
| hl09a09q07 | hl09a_EN_1.0.sav | Were you limited in pursuing your hobbies or other leisure time activities during the past week? | |
| hl09a09q08 | hl09a_EN_1.0.sav | Were you short of breath during the past week? | |
| hl09a09q09 | hl09a_EN_1.0.sav | Have you had pain during the past week? | |
| hl09a09q10 | hl09a_EN_1.0.sav | Did you need to rest during the past week? | |
| hl09a09q11 | hl09a_EN_1.0.sav | Have you had trouble sleeping during the past week? | |
| hl09a09q12 | hl09a_EN_1.0.sav | Have you felt weak during the past week? | |
| hl09a09q13 | hl09a_EN_1.0.sav | Have you lacked appetite during the past week? | |
| hl09a09q14 | hl09a_EN_1.0.sav | Have you felt nauseated during the past week? | |
| hl09a09q15 | hl09a_EN_1.0.sav | Have you vomited during the past week? | |
| hl09a09q16 | hl09a_EN_1.0.sav | Have you been constipated during the past week? | |
| hl09a09q17 | hl09a_EN_1.0.sav | Have you had diarrhea during the past week? | |
| hl09a09q18 | hl09a_EN_1.0.sav | Were you tired during the past week? | |
| hl09a09q19 | hl09a_EN_1.0.sav | Did pain interfere with your daily activities during the past week? | |
| hl09a09q20 | hl09a_EN_1.0.sav | Have you had difficulty in concentrating on things, like reading a newspaper or watching television during the past week? | |
| hl09a09q21 | hl09a_EN_1.0.sav | Did you feel tense during the past week? | |
| hl09a09q22 | hl09a_EN_1.0.sav | Did you worry during the past week? | |
| hl09a09q23 | hl09a_EN_1.0.sav | Did you feel irritable during the past week? | |
| hl09a09q24 | hl09a_EN_1.0.sav | Did you feel depressed during the past week? | |
| hl09a09q25 | hl09a_EN_1.0.sav | Have you had difficulty remembering things during the past week? | |
| hl09a09q26 | hl09a_EN_1.0.sav | Has your physical condition or medical treatment interfered with your family life during the past week? | |
| hl09a09q27 | hl09a_EN_1.0.sav | Has your physical condition or medical treatment interfered with your social activities during the past week? | |
| hl09a09q28 | hl09a_EN_1.0.sav | Has your physical condition or medical treatment caused you financial difficulties during the past week? | |
| hl09a09q29 | hl09a_EN_1.0.sav | How would you rate your overall health during the past week? | |
| hl09a09q30 | hl09a_EN_1.0.sav | How would you rate your overall quality of life during the past week? | |
| hl09a09s01 | hl09a_EN_1.0.sav | Physical Functioning | |
| hl09a09s02 | hl09a_EN_1.0.sav | Role Functioning | |
| hl09a09s03 | hl09a_EN_1.0.sav | Emotional Functioning | |
| hl09a09s04 | hl09a_EN_1.0.sav | Cognitive Functioning | |
| hl09a09s05 | hl09a_EN_1.0.sav | Social Functioning | |
| hl09a09s06 | hl09a_EN_1.0.sav | Global health status / QoL | |
| hl09a09s07 | hl09a_EN_1.0.sav | Fatigue | |
| hl09a09s08 | hl09a_EN_1.0.sav | Nausea / Vomiting | |
| hl09a09s09 | hl09a_EN_1.0.sav | Pain | |
| hl09a09s10 | hl09a_EN_1.0.sav | Dyspnoea | |
| hl09a09s11 | hl09a_EN_1.0.sav | Insomnia | |
| hl09a09s12 | hl09a_EN_1.0.sav | Appetite loss | |
| hl09a09s13 | hl09a_EN_1.0.sav | Constipation | |
| hl09a09s14 | hl09a_EN_1.0.sav | Diarrhea | |
| hl09a09s15 | hl09a_EN_1.0.sav | Financial Problems | |
| hl09a11q01 | hl09a_EN_1.0.sav | Have you lost weight during the past week? | |
| hl09a11q02 | hl09a_EN_1.0.sav | Have you had a dry mouth during the past week? | |
| hl09a11q03 | hl09a_EN_1.0.sav | Did you bruise during the past week? | |
| hl09a11q04 | hl09a_EN_1.0.sav | Did you have abdominal discomfort during the past week? | |
| hl09a11q05 | hl09a_EN_1.0.sav | Had your temperature been going up and down during the past week? | |
| hl09a11q06 | hl09a_EN_1.0.sav | Did you have night sweats during the past week? | |
| hl09a11q07 | hl09a_EN_1.0.sav | Have you had skin problems (e.g. itchy or dry) during the past week? | |
| hl09a11q08 | hl09a_EN_1.0.sav | Have you felt ill or unwell during the past week? | |
| hl09a11q09 | hl09a_EN_1.0.sav | Have you felt lethargic during the past week? | |
| hl09a11q10 | hl09a_EN_1.0.sav | Have you felt "slowed down" during the past week? | |
| hl09a11q11 | hl09a_EN_1.0.sav | Did you have tingling hands or feet during the past week? | |
| hl09a11q12 | hl09a_EN_1.0.sav | Were you limited in planning activities (for example meeting friends) during the past week? | |
| hl09a11q13 | hl09a_EN_1.0.sav | Have you worried about your health in the future during the past week? | |
| hl09a11q14 | hl09a_EN_1.0.sav | Have you had trouble with chest infections during the past week? | |
| hl09a11q15 | hl09a_EN_1.0.sav | Have you had trouble with other infections during the past week? | |
| hl09a11q16 | hl09a_EN_1.0.sav | Have you needed repeated courses of antibiotics during the past week? | |
| hl09a11q17 | hl09a_EN_1.0.sav | Have you worried about picking up an infection during the past week? | |
| hl09a20q01 | hl09a_EN_1.0.sav | Mobility | |
| hl09a20q02 | hl09a_EN_1.0.sav | Self care | |
| hl09a20q03 | hl09a_EN_1.0.sav | Daily affairs (for example work, school, householding, family- and leisure activities) | |
| hl09a20q04 | hl09a_EN_1.0.sav | Pain / troubles | |
| hl09a20q05 | hl09a_EN_1.0.sav | Mood | |
| hl09a21q01 | hl09a_EN_1.0.sav | I make contact easily when I meet people. | |
| hl09a21q02 | hl09a_EN_1.0.sav | I often make a fuss about unimportant things. | |
| hl09a21q03 | hl09a_EN_1.0.sav | I often talk to strangers. | |
| hl09a21q04 | hl09a_EN_1.0.sav | I often feel unhappy. | |
| hl09a21q05 | hl09a_EN_1.0.sav | I am often irritated. | |
| hl09a21q06 | hl09a_EN_1.0.sav | I often feel inhibited in social interactions. | |
| hl09a21q07 | hl09a_EN_1.0.sav | I take a gloomy view on things. | |
| hl09a21q08 | hl09a_EN_1.0.sav | I find it hard to start a conversation. | |
| hl09a21q09 | hl09a_EN_1.0.sav | I am often in a bad mood. | |
| hl09a21q10 | hl09a_EN_1.0.sav | I am a closed kind of person. | |
| hl09a21q11 | hl09a_EN_1.0.sav | I would rather keep other people at a distance. | |
| hl09a21q12 | hl09a_EN_1.0.sav | I often find myself worrying about something. | |
| hl09a21q13 | hl09a_EN_1.0.sav | I am often down in the dumps. | |
| hl09a21q14 | hl09a_EN_1.0.sav | When socializing, I don’t find the right things to talk about. | |
| hl09a21s01 | hl09a_EN_1.0.sav | Social inhibition subscale | |
| hl09a21s02 | hl09a_EN_1.0.sav | Negative affect subscale | |
| hl09a21s03 | hl09a_EN_1.0.sav | Type D Personality | |
| hl09a22q01 | hl09a_EN_1.0.sav | How much does your illness affect your life? | |
| hl09a22q02 | hl09a_EN_1.0.sav | How long do you think your illness will continue? | |
| hl09a22q03 | hl09a_EN_1.0.sav | How much control do you feel you have over your illness? | |
| hl09a22q04 | hl09a_EN_1.0.sav | How much do you think your treatment can help your illness? | |
| hl09a22q05 | hl09a_EN_1.0.sav | How much do you experience symptoms from your illness? | |
| hl09a22q06 | hl09a_EN_1.0.sav | How concerned are you about your illness? | |
| hl09a22q07 | hl09a_EN_1.0.sav | How well do you feel you understand your illness? | |
| hl09a22q08 | hl09a_EN_1.0.sav | How much does your illness affect you emotionally? (e.g. does it make you angry, scared, upset or depressed? | |
| hl09a23q01 | hl09a_EN_1.0.sav | I am bothered by fatigue | |
| hl09a23q02 | hl09a_EN_1.0.sav | I get tired very quickly | |
| hl09a23q03 | hl09a_EN_1.0.sav | I don’t do much during the day | |
| hl09a23q04 | hl09a_EN_1.0.sav | I have enough energy for everyday life | |
| hl09a23q05 | hl09a_EN_1.0.sav | Physically, I feel exhausted | |
| hl09a23q06 | hl09a_EN_1.0.sav | I have problems starting things | |
| hl09a23q07 | hl09a_EN_1.0.sav | I have problems thinking clearly | |
| hl09a23q08 | hl09a_EN_1.0.sav | I feel no desire to do anything | |
| hl09a23q09 | hl09a_EN_1.0.sav | Mentally, I feel exhausted | |
| hl09a23q10 | hl09a_EN_1.0.sav | When I am doing something, I can concentrate quite well | |
| hl09a23s01 | hl09a_EN_1.0.sav | FAS total score | |
| hl09a24q01 | hl09a_EN_1.0.sav | I feel tense or ‘wound up’ | |
| hl09a24q02 | hl09a_EN_1.0.sav | I still enjoy the things I used to enjoy | |
| hl09a24q03 | hl09a_EN_1.0.sav | I get a sort of frightened feeling as if something awful is about to happen | |
| hl09a24q04 | hl09a_EN_1.0.sav | I can laugh and see the funny side of things | |
| hl09a24q05 | hl09a_EN_1.0.sav | Worrying thoughts go through my mind | |
| hl09a24q06 | hl09a_EN_1.0.sav | I feel cheerful | |
| hl09a24q07 | hl09a_EN_1.0.sav | I can sit at ease and feel relaxed | |
| hl09a24q08 | hl09a_EN_1.0.sav | I feel as if I am slowed down | |
| hl09a24q09 | hl09a_EN_1.0.sav | I get a sort of frightened feeling like ‘butterflies’ in the stomach | |
| hl09a24q10 | hl09a_EN_1.0.sav | I have lost interest in my appearance | |
| hl09a24q11 | hl09a_EN_1.0.sav | I feel restless, as if I have to be on the move | |
| hl09a24q12 | hl09a_EN_1.0.sav | I look forward with enjoyment to things | |
| hl09a24q13 | hl09a_EN_1.0.sav | I get sudden feelings of panic | |
| hl09a24q14 | hl09a_EN_1.0.sav | I can enjoy a good book or radio or TV program | |
| hl09a24s01 | hl09a_EN_1.0.sav | Anxiety total score | |
| hl09a24s02 | hl09a_EN_1.0.sav | Depression total score | |
| hl09a25q01 | hl09a_EN_1.0.sav | I learned something about life because of having had cancer | |
| hl09a25q02 | hl09a_EN_1.0.sav | Having had cancer makes me feel unsure about my future | |
| hl09a25q03 | hl09a_EN_1.0.sav | I worry about my future | |
| hl09a25q04 | hl09a_EN_1.0.sav | I am afraid to die | |
| hl09a25q05 | hl09a_EN_1.0.sav | I feel like time in my life is running out | |
| hl09a25q06 | hl09a_EN_1.0.sav | Having had cancer has made me realize that time is precious | |
| hl09a25q07 | hl09a_EN_1.0.sav | Having had cancer has strengthened my religious faith or my sense of spirituality | |
| hl09a25q08 | hl09a_EN_1.0.sav | I do not take my body for granted since the cancer | |
| hl09a25q09 | hl09a_EN_1.0.sav | Having had cancer has made me more concerned about my health | |
| hl09a25q10 | hl09a_EN_1.0.sav | I am more aware of physical problems or changes in my body since having had cancer | |
| hl09a25q11 | hl09a_EN_1.0.sav | I worry about my health | |
| hl09a25q12 | hl09a_EN_1.0.sav | I worry about the cancer coming back or about getting another cancer | |
| hl09a25q13 | hl09a_EN_1.0.sav | New symptoms (aches, pains, getting sick or the flu) make me worry about the cancer coming back | |
| hl09a25q14 | hl09a_EN_1.0.sav | I am concerned that my energy has not returned to what it was before I had cancer | |
| hl09a25q15 | hl09a_EN_1.0.sav | I am bothered that my body cannot do what it could before having had cancer | |
| hl09a25q16 | hl09a_EN_1.0.sav | I worry about how my body looks | |
| hl09a25q17 | hl09a_EN_1.0.sav | I feel disfigured | |
| hl09a25q18 | hl09a_EN_1.0.sav | I sometimes wear clothing to cover up parts of my body I don’t want others to see | |
| hl09a25q19 | hl09a_EN_1.0.sav | Having had cancer has made me take better care of myself (my health) | |
| hl09a25q20 | hl09a_EN_1.0.sav | Having to pay attention to my physical health interferes with my life | |
| hl09a25q21 | hl09a_EN_1.0.sav | I feel a sense of pride or accomplishment from surviving cancer | |
| hl09a25q22 | hl09a_EN_1.0.sav | I learned something about myself because of having had cancer | |
| hl09a25q24 | hl09a_EN_1.0.sav | I feel guilty for somehow being responsible for getting cancer | |
| hl09a25q25 | hl09a_EN_1.0.sav | I feel that I am a role model to other people with cancer | |
| hl09a25q26 | hl09a_EN_1.0.sav | Having had cancer has made me feel old | |
| hl09a25q27 | hl09a_EN_1.0.sav | I feel guilty today for not having been available to my family when I had cancer | |
| hl09a25q28 | hl09a_EN_1.0.sav | Having had cancer has been the most difficult experience in my life | |
| hl09a25q29 | hl09a_EN_1.0.sav | I wonder why I got cancer | |
| hl09a25q30 | hl09a_EN_1.0.sav | It is important for me to know why I got cancer | |
| hl09a25q31 | hl09a_EN_1.0.sav | Having had cancer turned into a reason to make changes in my life | |
| hl09a25q32 | hl09a_EN_1.0.sav | Because of cancer I have become better about expressing what I want | |
| hl09a25q33 | hl09a_EN_1.0.sav | Because of cancer I have more confidence in myself | |
| hl09a25q34 | hl09a_EN_1.0.sav | Having had cancer has given me direction in life | |
| hl09a25q35 | hl09a_EN_1.0.sav | I place a higher value on my relationships with family or friends than I did before having had cancer | |
| hl09a25q36 | hl09a_EN_1.0.sav | I feel a special bond with people with cancer | |
| hl09a25q37 | hl09a_EN_1.0.sav | Because I had cancer I am more understanding of what other people may feel when they are seriously ill | |
| hl09a25q38 | hl09a_EN_1.0.sav | Having had cancer has made me more willing to help others | |
| hl09a25q39 | hl09a_EN_1.0.sav | I feel that I should give something back to others because I survived cancer | |
| hl09a25q40 | hl09a_EN_1.0.sav | Having had cancer keeps me from doing activities I enjoy (examples: travel, socializing, recreation, time with family) | |
| hl09a25q41 | hl09a_EN_1.0.sav | On-going cancer-related or treatment-related symptoms (for example bladder or bowel control, lymphedema, hair loss, scars, infertility, premature menopause, lack of energy, impotence/sexual problems, aches, pain or physical discomfort) interfere with my life | |
| hl09a25s01 | hl09a_EN_1.0.sav | Physical: health awareness | |
| hl09a25s02 | hl09a_EN_1.0.sav | Physical: body changes | |
| hl09a25s03 | hl09a_EN_1.0.sav | Psychological: positive self-evaluation | |
| hl09a25s04 | hl09a_EN_1.0.sav | Psychological: negative self-evaluation | |
| hl09a25s05 | hl09a_EN_1.0.sav | Existential: positive outlook | |
| hl09a25s06 | hl09a_EN_1.0.sav | Existential: negative outlook | |
| hl09a25s07 | hl09a_EN_1.0.sav | Social: life interferences | |
| hl09a25s08 | hl09a_EN_1.0.sav | Social: value of relationships | |
| hl09a25s09 | hl09a_EN_1.0.sav | IOC meaning of cancer | |
| hl09a25s10 | hl09a_EN_1.0.sav | IOC health worry | |
| hl09a25s11 | hl09a_EN_1.0.sav | IOC higher order positive scale | |
| hl09a25s12 | hl09a_EN_1.0.sav | IOC higher order negative scale | |
| hl09a26q01 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on the diagnosis of your disease? | |
| hl09a26q02 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on the extent (spread) of your disease? | |
| hl09a26q03 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on the possible causes of your disease? | |
| hl09a26q04 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on whether the disease is under control? | |
| hl09a26q05 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on the purpose of any medical tests you have had or may undergo? | |
| hl09a26q06 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on the procedures of the medical tests? | |
| hl09a26q07 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on the results of the medical tests you have already received? | |
| hl09a26q08 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on the medical treatment (chemotherapy, radiotherapy, surgery or other treatment modality)? | |
| hl09a26q09 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on non-medical treatments (for example herbal therapy, homeopathy, relaxation therapy)? | |
| hl09a26q10 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on the expected benefit of the treatment? | |
| hl09a26q11 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on the possible side-effects of your treatment? | |
| hl09a26q12 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on the expected effects of the treatment on disease symptoms? | |
| hl09a26q13 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on the effects of the treatment on social and family life? | |
| hl09a26q14 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on the effects of the treatment on sexual activity? | |
| hl09a26q15 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on additional help outside the hospital (e.g. help with daily activities, self help groups, district nurses)? | |
| hl09a26q16 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on rehabilitation services (e. g. physiotherapy, occupational therapy)? | |
| hl09a26q17 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on aspects of managing your illness at home? | |
| hl09a26q18 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on possible professional psychological support? | |
| hl09a26q19 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on different places of care (hospitals/outpatient services/home)? | |
| hl09a26q20 | hl09a_EN_1.0.sav | During your current disease or treatment, how much information have you received on things that you can do to help yourself get well (rest, contact with others..)? | |
| hl09a26q21 | hl09a_EN_1.0.sav | Have you received written information? | |
| hl09a26q22 | hl09a_EN_1.0.sav | Have you received information on CD or tape / video? | |
| hl09a26q23 | hl09a_EN_1.0.sav | Were you satisfied with the amount of information you received? | |
| hl09a26q24 | hl09a_EN_1.0.sav | Do you wish to receive more information? | |
| hl09a26q25 | hl09a_EN_1.0.sav | Do you wish that you had received less information? | |
| hl09a26q26 | hl09a_EN_1.0.sav | Overall has the information you have received been helpful? | |
| hl09a26s01 | hl09a_EN_1.0.sav | Information on your disease | |
| hl09a26s02 | hl09a_EN_1.0.sav | Information on your medical tests | |
| hl09a26s03 | hl09a_EN_1.0.sav | Information on treatment/your treatments | |
| hl09a26s04 | hl09a_EN_1.0.sav | Information on other services | |
| hl09a26s05 | hl09a_EN_1.0.sav | Information on other areas/places of care | |
| hl09a26s06 | hl09a_EN_1.0.sav | Information on things patient can do to get well | |
| hl09a26s07 | hl09a_EN_1.0.sav | Written information | |
| hl09a26s08 | hl09a_EN_1.0.sav | Information on cd, tape, video | |
| hl09a26s09 | hl09a_EN_1.0.sav | Satisfaction with information | |
| hl09a26s10 | hl09a_EN_1.0.sav | Desire to receive more information | |
| hl09a26s11 | hl09a_EN_1.0.sav | Desire to receive less information | |
| hl09a26s12 | hl09a_EN_1.0.sav | Helpfulness of information | |
| hl09a27q01 | hl09a_EN_1.0.sav | Do you use the internet? | |
| hl09a27q02 | hl09a_EN_1.0.sav | Did you use the internet to find information about Hodgkin lymphoma? |