IKNL Profiles > Life after the diagnosis of Hodgkin lymphoma 2004

Publisher
IKNL Profiles study
Creator
Floortje Mols, Lonneke van de Poll - Franse
Created
Jun 26 2012
Description
Panel
iknl
Begin date
Nov 01 2004

Name English Dutch
05q08 Did you receive care after the treatment of your illness?

Variable Dataset English Dutch
hl04a01pat_id Life after the diagnosis of Hodgkin lymphoma 2004 Patient identifier
hl04a01gend Life after the diagnosis of Hodgkin lymphoma 2004 Gender
hl04a01timediag Life after the diagnosis of Hodgkin lymphoma 2004 Time passed since diagnosis
hl04a01lftcatageques Life after the diagnosis of Hodgkin lymphoma 2004 Age category at time of study
hl04a01lftcatincage Life after the diagnosis of Hodgkin lymphoma 2004 Age category at time of diagnosis
hl04a01stage Life after the diagnosis of Hodgkin lymphoma 2004 Stage of disease
hl04a01grade Life after the diagnosis of Hodgkin lymphoma 2004 Grade of tumor
hl04a01syst Life after the diagnosis of Hodgkin lymphoma 2004 Systemic therapy
hl04a01surg Life after the diagnosis of Hodgkin lymphoma 2004 Surgical treatment
hl04a01radioth Life after the diagnosis of Hodgkin lymphoma 2004 Radiotherapy
hl04a01ther_oth Life after the diagnosis of Hodgkin lymphoma 2004 Other therapy
hl04a01ther_no Life after the diagnosis of Hodgkin lymphoma 2004 No therapy
hl04a01unknown Life after the diagnosis of Hodgkin lymphoma 2004 Treatment unknown
hl04a01comb Life after the diagnosis of Hodgkin lymphoma 2004 Combination of treatments
hl04a01ses Life after the diagnosis of Hodgkin lymphoma 2004 SES value (Social Economic Status)
hl04a01response Life after the diagnosis of Hodgkin lymphoma 2004 Response
hl04a02q01 Life after the diagnosis of Hodgkin lymphoma 2004 What is currently your marital status?
hl04a02q02 Life after the diagnosis of Hodgkin lymphoma 2004 Do you currently have a steady partner?
hl04a02q03 Life after the diagnosis of Hodgkin lymphoma 2004 Do you have children?
hl04a02q04 Life after the diagnosis of Hodgkin lymphoma 2004 Do you live in the same house with your child(ren)?
hl04a02q05 Life after the diagnosis of Hodgkin lymphoma 2004 Did cancer affect the relationship with your (former) partner?
hl04a02q06 Life after the diagnosis of Hodgkin lymphoma 2004 Indicate below which is your highest education level
hl04a06q01 Life after the diagnosis of Hodgkin lymphoma 2004 I have no job
hl04a06q02 Life after the diagnosis of Hodgkin lymphoma 2004 I am looking for a job
hl04a06q03 Life after the diagnosis of Hodgkin lymphoma 2004 I am a student
hl04a06q04 Life after the diagnosis of Hodgkin lymphoma 2004 I am a housewife/man
hl04a06q05 Life after the diagnosis of Hodgkin lymphoma 2004 I am disabled
hl04a06q06 Life after the diagnosis of Hodgkin lymphoma 2004 I am retired
hl04a06q07 Life after the diagnosis of Hodgkin lymphoma 2004 I work 1-16 hours a week
hl04a06q08 Life after the diagnosis of Hodgkin lymphoma 2004 I work 17-32 hours a week
hl04a06q09 Life after the diagnosis of Hodgkin lymphoma 2004 I work 33-40 hours a week
hl04a06q10 Life after the diagnosis of Hodgkin lymphoma 2004 I work more than 40 hours a week
hl04a06q11 Life after the diagnosis of Hodgkin lymphoma 2004 Nothing has changed
hl04a06q12 Life after the diagnosis of Hodgkin lymphoma 2004 I have been retrained due to cancer
hl04a06q13 Life after the diagnosis of Hodgkin lymphoma 2004 I have quit working due to cancer
hl04a06q14 Life after the diagnosis of Hodgkin lymphoma 2004 I am working more hours due to cancer
hl04a06q15 Life after the diagnosis of Hodgkin lymphoma 2004 I am working less hours due to cancer
hl04a06q16 Life after the diagnosis of Hodgkin lymphoma 2004 I am disabled due to cancer
hl04a06q17 Life after the diagnosis of Hodgkin lymphoma 2004 I have retired early
hl04a06q18 Life after the diagnosis of Hodgkin lymphoma 2004 I have been fired due to cancer
hl04a06q19 Life after the diagnosis of Hodgkin lymphoma 2004 Did you have trouble finding (additional) health insurance, because of cancer?
hl04a06q20 Life after the diagnosis of Hodgkin lymphoma 2004 Do you have experienced problems with getting life insurance, because of cancer?
hl04a06q21 Life after the diagnosis of Hodgkin lymphoma 2004 Did you have experienced problems with getting mortgage, because of cancer?
hl04a05q01 Life after the diagnosis of Hodgkin lymphoma 2004 How many times did you have contact with your general practitioner in the past 12 months?
hl04a05q02 Life after the diagnosis of Hodgkin lymphoma 2004 How many times did you have contact with your specialist in the past 12 months?
hl04a05q03 Life after the diagnosis of Hodgkin lymphoma 2004 How many of these contact moments had to do with cancer or the aftermath of cancer?
hl04a05q04 Life after the diagnosis of Hodgkin lymphoma 2004 Do you still have follow up appointments?
hl04a05q05 Life after the diagnosis of Hodgkin lymphoma 2004 What do you or did you, in general, think about the follow up appointments?
hl04a05q06 Life after the diagnosis of Hodgkin lymphoma 2004 Did you have a need for care after the treatment of your illness?
hl04a05q07 Life after the diagnosis of Hodgkin lymphoma 2004 Did you receive care after the treatment of your illness?
hl04a05q08 Life after the diagnosis of Hodgkin lymphoma 2004 Psychologist
hl04a05q09 Life after the diagnosis of Hodgkin lymphoma 2004 Sexologist
hl04a05q10 Life after the diagnosis of Hodgkin lymphoma 2004 Social worker
hl04a05q11 Life after the diagnosis of Hodgkin lymphoma 2004 Pastoral care
hl04a05q12 Life after the diagnosis of Hodgkin lymphoma 2004 General practitioner
hl04a05q13 Life after the diagnosis of Hodgkin lymphoma 2004 Dietist
hl04a05q14 Life after the diagnosis of Hodgkin lymphoma 2004 Physiotherapist
hl04a05q15 Life after the diagnosis of Hodgkin lymphoma 2004 Recovery program
hl04a05q16 Life after the diagnosis of Hodgkin lymphoma 2004 Creative therapy
hl04a05q17 Life after the diagnosis of Hodgkin lymphoma 2004 Oncological nurse
hl04a05q18 Life after the diagnosis of Hodgkin lymphoma 2004 Peer group
hl04a05q19 Life after the diagnosis of Hodgkin lymphoma 2004 How was the aftercare of your illness in general?
hl04a05q20 Life after the diagnosis of Hodgkin lymphoma 2004 What do you think, in general, of the healtcare that you reveived from the moment you were diagnosed with cancer up to today?
hl04a32q01 Life after the diagnosis of Hodgkin lymphoma 2004 Do you currently suffer much from your illness?
hl04a07q01 Life after the diagnosis of Hodgkin lymphoma 2004 Asthma, chronic bronchitis, COPD
hl04a07q02 Life after the diagnosis of Hodgkin lymphoma 2004 Heart condition
hl04a07q03 Life after the diagnosis of Hodgkin lymphoma 2004 High blood pressure
hl04a07q04 Life after the diagnosis of Hodgkin lymphoma 2004 Stroke
hl04a07q05 Life after the diagnosis of Hodgkin lymphoma 2004 Kidney disease
hl04a07q06 Life after the diagnosis of Hodgkin lymphoma 2004 Diabetes
hl04a07q07 Life after the diagnosis of Hodgkin lymphoma 2004 Malignancies
hl04a07q08 Life after the diagnosis of Hodgkin lymphoma 2004 Arthritis
hl04a07q09 Life after the diagnosis of Hodgkin lymphoma 2004 Skin condition
hl04a07q10 Life after the diagnosis of Hodgkin lymphoma 2004 Liver disease
hl04a07q11 Life after the diagnosis of Hodgkin lymphoma 2004 Thyroid disease
hl04a07q12 Life after the diagnosis of Hodgkin lymphoma 2004 Other condition
hl04a07q13 Life after the diagnosis of Hodgkin lymphoma 2004 I don’t have any of these diseases / conditions
hl04a07q14 Life after the diagnosis of Hodgkin lymphoma 2004 Do you use medication for the disease(s) that you have indicated in the previous question?
hl04a19q01 Life after the diagnosis of Hodgkin lymphoma 2004 In general, would you say your health is
hl04a19q02 Life after the diagnosis of Hodgkin lymphoma 2004 Compared to one year ago, how would you rate your health in general now?
hl04a19q03 Life after the diagnosis of Hodgkin lymphoma 2004 Vigorous activities, such as running, lifting heavy objects, participating in
hl04a19q04 Life after the diagnosis of Hodgkin lymphoma 2004 Moderate activities, such as moving a table, pushing a vacuum cleaner, swimming
hl04a19q05 Life after the diagnosis of Hodgkin lymphoma 2004 Lifting or carrying groceries
hl04a19q06 Life after the diagnosis of Hodgkin lymphoma 2004 Climbing several flights of stairs
hl04a19q07 Life after the diagnosis of Hodgkin lymphoma 2004 Climbing one flight of stairs
hl04a19q08 Life after the diagnosis of Hodgkin lymphoma 2004 Bending, kneeling or stooping
hl04a19q09 Life after the diagnosis of Hodgkin lymphoma 2004 Walking more than a mile
hl04a19q10 Life after the diagnosis of Hodgkin lymphoma 2004 Walking several blocks
hl04a19q11 Life after the diagnosis of Hodgkin lymphoma 2004 Walking one block
hl04a19q12 Life after the diagnosis of Hodgkin lymphoma 2004 Bathing or dressing yourself
hl04a19q13 Life after the diagnosis of Hodgkin lymphoma 2004 Cut down on the amount of time you spent on work or other activites
hl04a19q14 Life after the diagnosis of Hodgkin lymphoma 2004 Accomplished less than you would like
hl04a19q15 Life after the diagnosis of Hodgkin lymphoma 2004 Were limited in the kind of work or other activities
hl04a19q16 Life after the diagnosis of Hodgkin lymphoma 2004 Had difficulty performing the work or other activities (for example, it took extra effort)
hl04a19q17 Life after the diagnosis of Hodgkin lymphoma 2004 Cut down the amount of time you spent on work or other activities
hl04a19q18 Life after the diagnosis of Hodgkin lymphoma 2004 Accomplished less than you would like
hl04a19q19 Life after the diagnosis of Hodgkin lymphoma 2004 Didn’t do work or other activities as carefully as usual
hl04a19q20 Life after the diagnosis of Hodgkin lymphoma 2004 During the past 4 weeks, to what extent has your physical health or emotional problems interfered with your normal social activities with family, friends, neighbors or groups?
hl04a19q21 Life after the diagnosis of Hodgkin lymphoma 2004 How much physical pain have you had during the past 4 weeks?
hl04a19q22 Life after the diagnosis of Hodgkin lymphoma 2004 During the past 4 weeks, how much did pain interfere with your normal work (including both work outside the home and housework)?
hl04a19q23 Life after the diagnosis of Hodgkin lymphoma 2004 Did you feel full of pep?
hl04a19q24 Life after the diagnosis of Hodgkin lymphoma 2004 Have you been a very nervous person?
hl04a19q25 Life after the diagnosis of Hodgkin lymphoma 2004 Have you felt so down in the dumps that nothing could cheer you up?
hl04a19q26 Life after the diagnosis of Hodgkin lymphoma 2004 Have you felt calm and peaceful?
hl04a19q27 Life after the diagnosis of Hodgkin lymphoma 2004 Did you have a lot of energy?
hl04a19q28 Life after the diagnosis of Hodgkin lymphoma 2004 Have you felt downhearted and blue?
hl04a19q29 Life after the diagnosis of Hodgkin lymphoma 2004 Did you feel worn out?
hl04a19q30 Life after the diagnosis of Hodgkin lymphoma 2004 Have you been a happy person?
hl04a19q31 Life after the diagnosis of Hodgkin lymphoma 2004 Did you feel tired?
hl04a19q32 Life after the diagnosis of Hodgkin lymphoma 2004 During the past 4 weeks, how much of the time has your physical health or emotional problems interfered with your social activities (like visiting with friends, relatives, etc.)?
hl04a19q33 Life after the diagnosis of Hodgkin lymphoma 2004 I seem to get sick a little easier than other people
hl04a19q34 Life after the diagnosis of Hodgkin lymphoma 2004 I am as healthy as anybody I know
hl04a19q35 Life after the diagnosis of Hodgkin lymphoma 2004 I expect my health to get worse
hl04a19q36 Life after the diagnosis of Hodgkin lymphoma 2004 My health is excellent
hl04a19s01 Life after the diagnosis of Hodgkin lymphoma 2004 Physical function scale
hl04a19s02 Life after the diagnosis of Hodgkin lymphoma 2004 Role functioning – physical scale
hl04a19s03 Life after the diagnosis of Hodgkin lymphoma 2004 Role functioning – emotional scale
hl04a19s04 Life after the diagnosis of Hodgkin lymphoma 2004 Vitality / Fatigue scale
hl04a19s05 Life after the diagnosis of Hodgkin lymphoma 2004 Mental health / well being scale
hl04a19s06 Life after the diagnosis of Hodgkin lymphoma 2004 Social functioning scale
hl04a19s07 Life after the diagnosis of Hodgkin lymphoma 2004 Bodily pain scale
hl04a19s08 Life after the diagnosis of Hodgkin lymphoma 2004 General health scale
hl04a19s09 Life after the diagnosis of Hodgkin lymphoma 2004 Mental component summary scale
hl04a19s10 Life after the diagnosis of Hodgkin lymphoma 2004 Physical component summary scale
hl04a33q01 Life after the diagnosis of Hodgkin lymphoma 2004 Problem: Fatigue
hl04a33q02 Life after the diagnosis of Hodgkin lymphoma 2004 Problem: Appetite changes
hl04a33q03 Life after the diagnosis of Hodgkin lymphoma 2004 Problem: Aches or pain
hl04a33q04 Life after the diagnosis of Hodgkin lymphoma 2004 Problem: Sleep changes
hl04a33q05 Life after the diagnosis of Hodgkin lymphoma 2004 Problem: Constipation
hl04a33q06 Life after the diagnosis of Hodgkin lymphoma 2004 Problem: Nausea
hl04a33q07 Life after the diagnosis of Hodgkin lymphoma 2004 Problem: Menstruation
hl04a33q08 Life after the diagnosis of Hodgkin lymphoma 2004 Problem: Neuropathy
hl04a33q09 Life after the diagnosis of Hodgkin lymphoma 2004 Rate your overall physical health
hl04a33q10 Life after the diagnosis of Hodgkin lymphoma 2004 How difficult is it for you to cope today as a result of your disease and treatment?
hl04a33q11 Life after the diagnosis of Hodgkin lymphoma 2004 How good is your quality of life?
hl04a33q12 Life after the diagnosis of Hodgkin lymphoma 2004 How much happiness do you feel?
hl04a33q13 Life after the diagnosis of Hodgkin lymphoma 2004 Do you feel like you are in control of things in your life?
hl04a33q14 Life after the diagnosis of Hodgkin lymphoma 2004 How satisfying is your life?
hl04a33q15 Life after the diagnosis of Hodgkin lymphoma 2004 How is your present ability to concentrate or to remember things?
hl04a33q16 Life after the diagnosis of Hodgkin lymphoma 2004 How useful do you feel?
hl04a33q17 Life after the diagnosis of Hodgkin lymphoma 2004 Has your illness or treatment caused changes in your appearance?
hl04a33q18 Life after the diagnosis of Hodgkin lymphoma 2004 Has your illness or treatment caused changes in your self concept (the way you see yourself)?
hl04a33q19 Life after the diagnosis of Hodgkin lymphoma 2004 Distressing: Initial diagnosis
hl04a33q20 Life after the diagnosis of Hodgkin lymphoma 2004 Distressing: Cancer treatments (i.e. chemotherapy, radiation, or surgery)
hl04a33q21 Life after the diagnosis of Hodgkin lymphoma 2004 Distressing: Time since my treatment was completed
hl04a33q22 Life after the diagnosis of Hodgkin lymphoma 2004 How much anxiety do you have?
hl04a33q23 Life after the diagnosis of Hodgkin lymphoma 2004 How much depression do you have?
hl04a33q24 Life after the diagnosis of Hodgkin lymphoma 2004 Fear: Future diagnostic tests
hl04a33q25 Life after the diagnosis of Hodgkin lymphoma 2004 Fear: A second cancer
hl04a33q26 Life after the diagnosis of Hodgkin lymphoma 2004 Fear: Recurrence or spreading (metastatis) of your cancer
hl04a33q27 Life after the diagnosis of Hodgkin lymphoma 2004 Fear: Dying
hl04a33q28 Life after the diagnosis of Hodgkin lymphoma 2004 How distressing has illness been for your family?
hl04a33q29 Life after the diagnosis of Hodgkin lymphoma 2004 Is the amount of support you receive from others sufficient to meet your needs?
hl04a33q30 Life after the diagnosis of Hodgkin lymphoma 2004 Is your continuing health care interfering with your personal relationships?
hl04a33q31 Life after the diagnosis of Hodgkin lymphoma 2004 Is your sexuality impacted by your illness?
hl04a33q32 Life after the diagnosis of Hodgkin lymphoma 2004 To what extent do you have worries about your fertility?
hl04a33q33 Life after the diagnosis of Hodgkin lymphoma 2004 To what degree has your illness and treatment interfered with your employment?
hl04a33q34 Life after the diagnosis of Hodgkin lymphoma 2004 To what degree has your illness and treatment interfered with your activities at home?
hl04a33q35 Life after the diagnosis of Hodgkin lymphoma 2004 How much isolation do you feel is caused by your illness or treatment?
hl04a33q36 Life after the diagnosis of Hodgkin lymphoma 2004 How much financial burden have you incurred as a result of your illness and treatment?
hl04a33q37 Life after the diagnosis of Hodgkin lymphoma 2004 To what extent do you have worries about family members getting cancer?
hl04a33q38 Life after the diagnosis of Hodgkin lymphoma 2004 How important to you is your participation in religious activities such as praying, going to church?
hl04a33q39 Life after the diagnosis of Hodgkin lymphoma 2004 How important to you are other spiritual activities such as meditation?
hl04a33q40 Life after the diagnosis of Hodgkin lymphoma 2004 How much has your spiritual life changed as a result of cancer diagnosis?
hl04a33q41 Life after the diagnosis of Hodgkin lymphoma 2004 How much uncertainty do you feel about your future?
hl04a33q42 Life after the diagnosis of Hodgkin lymphoma 2004 To what extent has your illness made positive changes in your life?
hl04a33q43 Life after the diagnosis of Hodgkin lymphoma 2004 Do you sense a purpose/mission for your life or a reason for being alive?
hl04a33q44 Life after the diagnosis of Hodgkin lymphoma 2004 How hopeful do you feel?
hl04a33q45 Life after the diagnosis of Hodgkin lymphoma 2004 To what extent have you been bothered by “survival guilt”? (that is, you felt guilty because you survived and others have not)
hl04a33s01 Life after the diagnosis of Hodgkin lymphoma 2004 Physical well-being scale
hl04a33s02 Life after the diagnosis of Hodgkin lymphoma 2004 Psychological well-being scale
hl04a33s03 Life after the diagnosis of Hodgkin lymphoma 2004 Social well-being scale
hl04a33s04 Life after the diagnosis of Hodgkin lymphoma 2004 Spiritual well-being scale
hl04a33s05 Life after the diagnosis of Hodgkin lymphoma 2004 Quality of life total score scale
hl04a27q01 Life after the diagnosis of Hodgkin lymphoma 2004 Do you use the internet?
hl04a27q02 Life after the diagnosis of Hodgkin lymphoma 2004 How often do you use the internet?
hl04a27q03 Life after the diagnosis of Hodgkin lymphoma 2004 Sending and receiving e-mail
hl04a27q04 Life after the diagnosis of Hodgkin lymphoma 2004 Searching for information
hl04a27q05 Life after the diagnosis of Hodgkin lymphoma 2004 Participating in chat groups
hl04a27q06 Life after the diagnosis of Hodgkin lymphoma 2004 Asking questions to experts
hl04a27q07 Life after the diagnosis of Hodgkin lymphoma 2004 Participating in user groups
hl04a27q08 Life after the diagnosis of Hodgkin lymphoma 2004 Do you use the internet with regard to information about cancer and the consequences of cancer?
hl04a27q09 Life after the diagnosis of Hodgkin lymphoma 2004 Your doctor
hl04a27q10 Life after the diagnosis of Hodgkin lymphoma 2004 An internet doctor
hl04a27q11 Life after the diagnosis of Hodgkin lymphoma 2004 Peers
hl04a27q12 Life after the diagnosis of Hodgkin lymphoma 2004 Members of a discussion group
hl04a27q13 Life after the diagnosis of Hodgkin lymphoma 2004 Cancer
hl04a27q14 Life after the diagnosis of Hodgkin lymphoma 2004 Possible treatments
hl04a27q15 Life after the diagnosis of Hodgkin lymphoma 2004 Possible alternative therapies
hl04a27q16 Life after the diagnosis of Hodgkin lymphoma 2004 Where to find a good doctor
hl04a27q17 Life after the diagnosis of Hodgkin lymphoma 2004 What the best hospital is
hl04a27q18 Life after the diagnosis of Hodgkin lymphoma 2004 What patient groups have to offer
hl04a27q19 Life after the diagnosis of Hodgkin lymphoma 2004 Which activities there are in the region for patients
hl04a27q20 Life after the diagnosis of Hodgkin lymphoma 2004 Which trials/studies there are
hl04a27q21 Life after the diagnosis of Hodgkin lymphoma 2004 Treatment guidelines
hl04a27q22 Life after the diagnosis of Hodgkin lymphoma 2004 Peer groups
hl04a27q23 Life after the diagnosis of Hodgkin lymphoma 2004 What you can do yourself
hl04a27q24 Life after the diagnosis of Hodgkin lymphoma 2004 Consequences for my partner
hl04a27q25 Life after the diagnosis of Hodgkin lymphoma 2004 Consequences for my children
hl04a27q26 Life after the diagnosis of Hodgkin lymphoma 2004 Cancer
hl04a27q27 Life after the diagnosis of Hodgkin lymphoma 2004 Possible treatments
hl04a27q28 Life after the diagnosis of Hodgkin lymphoma 2004 Possible alternative therapies
hl04a27q29 Life after the diagnosis of Hodgkin lymphoma 2004 Where to find a good doctor
hl04a27q30 Life after the diagnosis of Hodgkin lymphoma 2004 What the best hospital is
hl04a27q31 Life after the diagnosis of Hodgkin lymphoma 2004 What patient groups have to offer
hl04a27q32 Life after the diagnosis of Hodgkin lymphoma 2004 Which activities there are in the region for patients
hl04a27q33 Life after the diagnosis of Hodgkin lymphoma 2004 Which trials/studies there are
hl04a27q34 Life after the diagnosis of Hodgkin lymphoma 2004 Treatment guidelines
hl04a27q35 Life after the diagnosis of Hodgkin lymphoma 2004 Peer groups
hl04a27q36 Life after the diagnosis of Hodgkin lymphoma 2004 What you can do yourself
hl04a27q37 Life after the diagnosis of Hodgkin lymphoma 2004 Consequences for my partner
hl04a27q38 Life after the diagnosis of Hodgkin lymphoma 2004 Consequences for my children
hl04a34q01 Life after the diagnosis of Hodgkin lymphoma 2004 Size of the chosen sticker
hl04a34s01 Life after the diagnosis of Hodgkin lymphoma 2004 Distance in millimeters from the center of the sticker to the center of the yellow circle