IKNL Profiles > Quality of life lymphoma > Quality of life multiple myeloma November 2009
Publisher
IKNL Profiles study
Creator
Simone Oerlemans, Lonneke van de Poll-Franse
Created
May 22 2014
Description
URL to resource
Panel
iknl
Begin date
Nov 01 2009
| Name | English | Dutch |
|---|---|---|
| Intro1 | Life after cancer. Please fill in the questionnaire by yourself, in your own pace. You can answer the questions by checking the box/number … | |
| 02q01 | What is currently your marital status? | |
| 02q02 | Indicate below which is your highest education level. | |
| 06q01 | Do you have a paid job at this moment? | |
| 06q02 | Paid job hours/week | |
| 06q06 | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| 06q08 | Percentage of incapacity | |
| 06q09 | Due to cancer? | |
| 03q01 | Do you smoke? | |
| 03q02 | How long has it been you've quit smoking? | |
| 03q03 | Number of cigarettes per day | |
| 03q04 | Number of cigars per week | |
| 03q05 | Number of packages of pipe tobacco (50 grams) per week | |
| 03q06 | Can you state how many glasses of alcoholic drinks you drank on average per week in the past 12 months? | |
| 03q07 | How long has it been you've quit drinking alcohol? | |
| 03q08 | Number of glasses of beer per week | |
| 03q09 | Number of glasses of wine or port wine per week | |
| 03q10 | Number of glasses of liquor per week (eg. cognac, gin, whiskey, liquor) | |
| 04q01 - 04q08 | Can you indicate in the table below how many hours you have spend on average on a weekly basis on the following activities in the past summ… | |
| 04q09 | Have you done weekly sporting activities in the past year? | |
| 05q01 | How many times did you have contact with your general practitioner in the past 12 months? | |
| 05q02 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q03 | How many times did you have contact with your specialist in the past 12 months? | |
| 05q04 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q05 | Do you still have follow up appointments? | |
| 05q06 | Did you discuss with your specialist how often you have to come back from this moment on? | |
| 05q07 | Do you feel comfortable with this follow up scheme? | |
| 05q08 | Did you receive care after the treatment of your illness? | |
| 05q09 - 05q20 | From who did you receive care after the treatment of your ilness? | |
| 07q01 - 07q14 | Below you see a list of chronic conditions and diseases. Please indicate for each condition or disease whether you have it now or have had … | |
| 07q15 - 07q28 | Please indicate for each condition if you are treated for it or not. | |
| 07q29 - 07q42 | Please indicate for each condition whether it interferes with your activities or not. | |
| 06q07 | Which changes have you experienced in your work situation due to cancer? | |
| 53q01 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| 53q02 | You have indicated that you have had trouble getting (additional) health insurance. What was the outcome? | |
| 53q03 | Did you have trouble getting life insurance, because of cancer? | |
| 53q04 | You have indicated that you have had trouble getting life insurance. What was the outcome? | |
| 53q05 | Did you have trouble getting mortgage, because of cancer? | |
| 53q06 | You have indicated that you have had trouble getting mortgage. What was the outcome? | |
| Intro2 | Instruction: We are interested in certain things about you and your health. Please answer each question by checking the box in the indicate… | |
| 09q01 - 09q30 | During the past week | |
| 12q01 - 12q20 | Symptoms or problems. Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you … | |
| 20q01 | Mobility | |
| 20q02 | Self care | |
| 20q03 | Daily affairs (For example work, school, householding, family- and leisure activities) | |
| 20q04 | Pain / troubles | |
| 20q05 | Mood | |
| 21q01 - 21q14 | Below are a number of statements that people often use to describe themselves. Please read each statement and then circle the appropriate n… | |
| Intro3 | Perception. For the following questions, please circle the number that best corresponds to your views. | |
| 22q01 | How much does your illness affect your life? | |
| 22q02 | How long do you think your illness will continue? | |
| 22q03 | How much control do you feel you have over your illness? | |
| 22q04 | How much do you think your treatment can help your illness? | |
| 22q05 | How much do you experience symptoms from your illness? | |
| 22q06 | How concerned are you about your illness? | |
| 22q07 | How well do you feel you understand your illness? | |
| 22q08 | How much does your illness affect you emotionally? (e.g. does it make you angry, scared, upset or depressed? | |
| 23q01 - 23q10 | Fatique | |
| Intro4 | Anxiety and depression. The following questions are about how you feel right now. Please choose the answer that best describes your current… | |
| 24q01 | I feel tense or ‘wound up’ | |
| 24q02 | I still enjoy the things I used to enjoy | |
| 24q03 | I get a sort of frightened feeling as if something awful is about to happen | |
| 24q04 | I can laugh and see the funny side of things | |
| 24q05 | Worrying thoughts go through my mind | |
| 24q06 | I feel cheerful | |
| 24q07 | I can sit at ease and feel relaxed | |
| 24q08 | I feel as if I am slowed down | |
| 24q09 | I get a sort of frightened feeling like ‘butterflies’ in the stomach | |
| 24q10 | I have lost interest in my appearance | |
| 24q11 | I feel restless, as if I have to be on the move | |
| 24q12 | I look forward with enjoyment to things | |
| 24q13 | I get sudden feelings of panic | |
| 24q14 | I can enjoy a good book or radio or TV program | |
| Intro5 | Information. To improve healthcare, we would like to know what information you received about the various aspects of your illness and its t… | |
| 26q01 - 26q20 | During your current disease or treatment, how much information have you received on: | |
| 26q21 | Have you received written information? | |
| 26q22 | Have you received information on CD or tape / video? | |
| 26q23 | Were you satisfied with the amount of information you received? | |
| 26q24 | Do you wish to receive more information? | |
| 26q25 | Do you wish that you had received less information? | |
| 26q26 | Overall has the information you have received been helpful? | |
| 27q01 | Do you use the Internet? | |
| 27q02 | Did you use the Internet to find information about multiple myeloma? |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| mm09b01pat_id | mm09b_EN_1.0 | Patient identifier | |
| mm09b1response | mm09b_EN_1.0 | Response status | |
| mm09b01gend | mm09b_EN_1.0 | Gender | |
| mm09b01ageinc | mm09b_EN_1.0 | Age category at time of diagnosis | |
| mm09b01ageques | mm09b_EN_1.0 | Age category at time of study | |
| mm09b1yrsdiag | mm09b_EN_1.0 | Time passed since diagnosis | |
| mm09b01treatment | mm09b_EN_1.0 | Primary treatment | |
| mm09b01stage | mm09b_EN_1.0 | Stage | |
| mm09b01BMI | mm09b_EN_1.0 | Body mass index | |
| mm09b01SES3 | mm09b_EN_1.0 | Sociaal Economic Status | |
| mm09b02q01 | mm09b_EN_1.0 | What is currently your marital status? | |
| mm09b02q02 | mm09b_EN_1.0 | Indicate below which is your highest education level. | |
| mm09b06q01 | mm09b_EN_1.0 | Do you have a paid job at this moment? | |
| mm09b06q02 | mm09b_EN_1.0 | Paid job hours/week | |
| mm09b06q06 | mm09b_EN_1.0 | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| mm09b06q08 | mm09b_EN_1.0 | Percentage of incapacity | |
| mm09b06q09 | mm09b_EN_1.0 | Due to cancer? | |
| mm09b03q01 | mm09b_EN_1.0 | Do you smoke? | |
| mm09b03q02 | mm09b_EN_1.0 | How long has it been you've quit smoking? | |
| mm09b03q03 | mm09b_EN_1.0 | Number of cigarettes per day | |
| mm09b03q04 | mm09b_EN_1.0 | Number of cigars per week | |
| mm09b03q05 | mm09b_EN_1.0 | Number of packages of pipe tobacco (50 grams) per week | |
| mm09b03q06 | mm09b_EN_1.0 | Can you state how many glasses of alcoholic drinks you drank on average per week in the past 12 months? | |
| mm09b03q07 | mm09b_EN_1.0 | How long has it been you've quit drinking alcohol? | |
| mm09b03q08 | mm09b_EN_1.0 | Number of glasses of beer per week | |
| mm09b03q09 | mm09b_EN_1.0 | Number of glasses of wine or port wine per week | |
| mm09b03q10 | mm09b_EN_1.0 | Number of glasses of liquor per week (eg. cognac, gin, whiskey, liquor) | |
| mm09b04q01 | mm09b_EN_1.0 | Going for a walk in the summer (also walking to work, shopping, and walking in leisure time) | |
| mm09b04q02 | mm09b_EN_1.0 | Going for a walk in the winter (also walking to work, shopping, and walking in leisure time) | |
| mm09b04q03 | mm09b_EN_1.0 | Riding a bike in the summer (also riding a bike to work, shopping, and cycling in leisure time) | |
| mm09b04q04 | mm09b_EN_1.0 | Riding a bike in the winter (also riding a bike to work, shopping, and cycling in leisure time) | |
| mm09b04q05 | mm09b_EN_1.0 | Gardening in the summer | |
| mm09b04q06 | mm09b_EN_1.0 | Gardening in the winter | |
| mm09b04q07 | mm09b_EN_1.0 | Keeping house in the summer (for example laundry, cleaning, cooking, taking care of children) | |
| mm09b04q08 | mm09b_EN_1.0 | Keeping house in the winter (for example laundry, cleaning, cooking, taking care of children) | |
| mm09b04q09 | mm09b_EN_1.0 | Have you done weekly sporting activities in the past year? | |
| mm09b05q01 | mm09b_EN_1.0 | How many times did you have contact with your general practitioner in the past 12 months? | |
| mm09b05q02 | mm09b_EN_1.0 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| mm09b05q03 | mm09b_EN_1.0 | How many times did you have contact with your specialist in the past 12 months? | |
| mm09b05q04 | mm09b_EN_1.0 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| mm09b05q05 | mm09b_EN_1.0 | Do you still have follow up appointments? | |
| mm09b05q06 | mm09b_EN_1.0 | Did you discuss with your specialist how often you have to come back from this moment on? | |
| mm09b05q07 | mm09b_EN_1.0 | Do you feel comfortable with this follow up scheme? | |
| mm09b05q08 | mm09b_EN_1.0 | Did you receive care after the treatment of your illness? | |
| mm09b05q09 | mm09b_EN_1.0 | Did you get extra care from a psychologist? | |
| mm09b05q10 | mm09b_EN_1.0 | Did you get extra care from a sexologist? | |
| mm09b05q11 | mm09b_EN_1.0 | Did you get extra care from a social worker? | |
| mm09b05q12 | mm09b_EN_1.0 | Did you get extra care from pastoral care? | |
| mm09b05q13 | mm09b_EN_1.0 | Did you get extra care from your general practitioner? | |
| mm09b05q14 | mm09b_EN_1.0 | Did you get extra care from a dietist | |
| mm09b05q15 | mm09b_EN_1.0 | Did you get extra care from a physiotherapist? | |
| mm09b05q16 | mm09b_EN_1.0 | Did you get extra care from recovery and balance? | |
| mm09b05q17 | mm09b_EN_1.0 | Did you get extra care from creative therapy? | |
| mm09b05q18 | mm09b_EN_1.0 | Did you get extra care from an oncological nurse? | |
| mm09b05q19 | mm09b_EN_1.0 | Did you get extra care from a peer group | |
| mm09b05q20 | mm09b_EN_1.0 | Did you get extra care from someone else? | |
| mm09b07q01 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Heart condition | |
| mm09b07q02 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Stroke | |
| mm09b07q03 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: High blood pressure | |
| mm09b07q04 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Asthma, chonic bronchitis, COPD | |
| mm09b07q05 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Diabetes | |
| mm09b07q06 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Ulcer | |
| mm09b07q07 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Kidney disease | |
| mm09b07q08 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Liver disease | |
| mm09b07q09 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Anemia or other blood condition | |
| mm09b07q10 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Thyroid disease | |
| mm09b07q11 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Depression | |
| mm09b07q12 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Arthritis | |
| mm09b07q13 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Backache | |
| mm09b07q14 | mm09b_EN_1.0 | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Rheumatism | |
| mm09b07q15 | mm09b_EN_1.0 | Are you being treated for your heart condition? | |
| mm09b07q16 | mm09b_EN_1.0 | Are you being treated for your stroke? | |
| mm09b07q17 | mm09b_EN_1.0 | Are you being treated for your high blood pressure? | |
| mm09b07q18 | mm09b_EN_1.0 | Are you being treated for your asthma, chronic bronchitis or COPD? | |
| mm09b07q19 | mm09b_EN_1.0 | Are you being treated for your diabetes? | |
| mm09b07q20 | mm09b_EN_1.0 | Are you being treated for your ulcer? | |
| mm09b07q21 | mm09b_EN_1.0 | Are you being treated for your kidney disease? | |
| mm09b07q22 | mm09b_EN_1.0 | Are you being treated for your liver disease? | |
| mm09b07q23 | mm09b_EN_1.0 | Are you being treated for your anemia or other blood condition? | |
| mm09b07q24 | mm09b_EN_1.0 | Are you being treated for your thyroid disease? | |
| mm09b07q25 | mm09b_EN_1.0 | Are you being treated for your depression? | |
| mm09b07q26 | mm09b_EN_1.0 | Are you being treated for your arthritis? | |
| mm09b07q27 | mm09b_EN_1.0 | Are you being treated for your backache? | |
| mm09b07q28 | mm09b_EN_1.0 | Are you being treated for your rheumatism? | |
| mm09b07q29 | mm09b_EN_1.0 | Does your heart condition interfere with your activities? | |
| mm09b07q30 | mm09b_EN_1.0 | Does your stroke interfere with your activities? | |
| mm09b07q31 | mm09b_EN_1.0 | Does your high blood pressure interfere with your activities? | |
| mm09b07q32 | mm09b_EN_1.0 | Does your asthma, chronic bronchitis or COPD interfere with your activities? | |
| mm09b07q33 | mm09b_EN_1.0 | Does your diabetes interfere with your activities? | |
| mm09b07q34 | mm09b_EN_1.0 | Does your ulcer interfere with your activities? | |
| mm09b07q35 | mm09b_EN_1.0 | Does your kidney disease interfere with your activities? | |
| mm09b07q36 | mm09b_EN_1.0 | Does your liver disease interfere with your activities? | |
| mm09b07q37 | mm09b_EN_1.0 | Does your anemia or other blood condition interfere with your activities? | |
| mm09b07q38 | mm09b_EN_1.0 | Does your thyroid disease interfere with your activities? | |
| mm09b07q39 | mm09b_EN_1.0 | Does your depression interfere with your activities? | |
| mm09b07q40 | mm09b_EN_1.0 | Does your arthritis interfere with your activities? | |
| mm09b07q41 | mm09b_EN_1.0 | Does your backache interfere with your activities? | |
| mm09b07q42 | mm09b_EN_1.0 | Does your rheumatism interfere with your activities? | |
| mm09b06q07 | mm09b_EN_1.0 | Which changes have you experienced in your work situation due to cancer? | |
| mm09b53q01 | mm09b_EN_1.0 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| mm09b53q02 | mm09b_EN_1.0 | You have indicated that you have had trouble getting (additional) health insurance. What was the outcome? | |
| mm09b53q03 | mm09b_EN_1.0 | Did you have trouble getting life insurance, because of cancer? | |
| mm09b53q04 | mm09b_EN_1.0 | You have indicated that you have had trouble getting life insurance. What was the outcome? | |
| mm09b53q05 | mm09b_EN_1.0 | Did you have trouble getting mortgage, because of cancer? | |
| mm09b53q06 | mm09b_EN_1.0 | You have indicated that you have had trouble getting mortgage. What was the outcome? | |
| mm09b09q01 | mm09b_EN_1.0 | Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase? | |
| mm09b09q02 | mm09b_EN_1.0 | Do you have any trouble taking a long walk? | |
| mm09b09q03 | mm09b_EN_1.0 | Do you have any trouble taking a short walk outside of the house? | |
| mm09b09q04 | mm09b_EN_1.0 | Do you need to stay in bed or a chair during the day? | |
| mm09b09q05 | mm09b_EN_1.0 | Do you need help with eating, dressing, washing yourself or using the toilet? | |
| mm09b09q06 | mm09b_EN_1.0 | Were you limited in doing either your work or other daily activities? | |
| mm09b09q07 | mm09b_EN_1.0 | Were you limited in pursuing your hobbies or other leisure time activities | |
| mm09b09q08 | mm09b_EN_1.0 | Were you short of breath? | |
| mm09b09q09 | mm09b_EN_1.0 | Have you had pain? | |
| mm09b09q10 | mm09b_EN_1.0 | Did you need to rest? | |
| mm09b09q11 | mm09b_EN_1.0 | Have you had trouble sleeping? | |
| mm09b09q12 | mm09b_EN_1.0 | Have you felt weak? | |
| mm09b09q13 | mm09b_EN_1.0 | Have you lacked appetite? | |
| mm09b09q14 | mm09b_EN_1.0 | Have you felt nauseated? | |
| mm09b09q15 | mm09b_EN_1.0 | Have you vomited? | |
| mm09b09q16 | mm09b_EN_1.0 | Have you been constipated? | |
| mm09b09q17 | mm09b_EN_1.0 | Have you had diarrhea? | |
| mm09b09q18 | mm09b_EN_1.0 | Were you tired? | |
| mm09b09q19 | mm09b_EN_1.0 | Did pain interfere with your daily activities? | |
| mm09b09q20 | mm09b_EN_1.0 | Have you had difficulty in concentrating on things, like reading a newspaper or watching television? | |
| mm09b09q21 | mm09b_EN_1.0 | Did you feel tense? | |
| mm09b09q22 | mm09b_EN_1.0 | Did you worry? | |
| mm09b09q23 | mm09b_EN_1.0 | Did you feel irritable? | |
| mm09b09q24 | mm09b_EN_1.0 | Did you feel depressed? | |
| mm09b09q25 | mm09b_EN_1.0 | Have you had difficulty remembering things? | |
| mm09b09q26 | mm09b_EN_1.0 | Has your physical condition or medical treatment interfered with your family life? | |
| mm09b09q27 | mm09b_EN_1.0 | Has your physical condition or medical treatment interfered with your social activities? | |
| mm09b09q28 | mm09b_EN_1.0 | Has your physical condition or medical treatment caused you financial difficulties? | |
| mm09b09q29 | mm09b_EN_1.0 | How would you rate your overall health during the past week? | |
| mm09b09q30 | mm09b_EN_1.0 | How would you rate your overall quality of life during the past week? | |
| mm09b09s01 | mm09b_EN_1.0 | Global health status/QoL | |
| mm09b09s02 | mm09b_EN_1.0 | Physical Function | |
| mm09b09s03 | mm09b_EN_1.0 | Role Functiong | |
| mm09b09s04 | mm09b_EN_1.0 | Emotional Function | |
| mm09b09s05 | mm09b_EN_1.0 | Cognitive Function | |
| mm09b09s06 | mm09b_EN_1.0 | Social Function | |
| mm09b09s07 | mm09b_EN_1.0 | Fatigue | |
| mm09b09s08 | mm09b_EN_1.0 | Nausea / vomiting | |
| mm09b09s09 | mm09b_EN_1.0 | Pain | |
| mm09b09s10 | mm09b_EN_1.0 | Dyspnoea | |
| mm09b09s11 | mm09b_EN_1.0 | Insomnia | |
| mm09b09s12 | mm09b_EN_1.0 | Appetite loss | |
| mm09b09s13 | mm09b_EN_1.0 | Constipation | |
| mm09b09s14 | mm09b_EN_1.0 | Diarrhea | |
| mm09b09s15 | mm09b_EN_1.0 | Financial problems | |
| mm09b12q01 | mm09b_EN_1.0 | Have you had bone aches or pain? | |
| mm09b12q02 | mm09b_EN_1.0 | Have you had pain in your back? | |
| mm09b12q03 | mm09b_EN_1.0 | Have you had pain in your hip? | |
| mm09b12q04 | mm09b_EN_1.0 | Have you had pain in your arm or shoulder? | |
| mm09b12q05 | mm09b_EN_1.0 | Have you had pain in your chest? | |
| mm09b12q06 | mm09b_EN_1.0 | If you had pain did it increase with activity? | |
| mm09b12q07 | mm09b_EN_1.0 | Did you feel drowsy? | |
| mm09b12q08 | mm09b_EN_1.0 | Did you feel thirsty? | |
| mm09b12q09 | mm09b_EN_1.0 | Have you felt ill? | |
| mm09b12q10 | mm09b_EN_1.0 | Have you had a dry mouth? | |
| mm09b12q11 | mm09b_EN_1.0 | Have you lost any hair? | |
| mm09b12q12 | mm09b_EN_1.0 | Answer this question only if you lost any hair: Were you upset by the loss of your hair? | |
| mm09b12q13 | mm09b_EN_1.0 | Did you have tingling hands or feet? | |
| mm09b12q14 | mm09b_EN_1.0 | Did you feel restless or agitated? | |
| mm09b12q15 | mm09b_EN_1.0 | Have you had acid indigestion or heartburn? | |
| mm09b12q16 | mm09b_EN_1.0 | Have you had burning or sore eyes? | |
| mm09b12q17 | mm09b_EN_1.0 | Have you felt physically less attractive as a result of your disease or treatment? | |
| mm09b12q18 | mm09b_EN_1.0 | Have you been thinking about your illness? | |
| mm09b12q19 | mm09b_EN_1.0 | Have you been worried about dying? | |
| mm09b12q20 | mm09b_EN_1.0 | Have you worried about your health in the future? | |
| mm09b20q01 | mm09b_EN_1.0 | Mobility | |
| mm09b20q02 | mm09b_EN_1.0 | Self care | |
| mm09b20q03 | mm09b_EN_1.0 | Daily affairs (For example work, school, householding, family- and leisure activities) | |
| mm09b20q04 | mm09b_EN_1.0 | Pain / troubles | |
| mm09b20q05 | mm09b_EN_1.0 | Mood | |
| mm09b21q01 | mm09b_EN_1.0 | I make contact easily when I meet people. | |
| mm09b21q02 | mm09b_EN_1.0 | I often make a fuss about unimportant things. | |
| mm09b21q03 | mm09b_EN_1.0 | I often talk to strangers | |
| mm09b21q04 | mm09b_EN_1.0 | I often feel unhappy | |
| mm09b21q05 | mm09b_EN_1.0 | I am often irritated | |
| mm09b21q06 | mm09b_EN_1.0 | I often feel inhibited in social interactions | |
| mm09b21q07 | mm09b_EN_1.0 | I take a gloomy view on things | |
| mm09b21q08 | mm09b_EN_1.0 | I find it hard to start a conversation. | |
| mm09b21q09 | mm09b_EN_1.0 | I am often in a bad mood | |
| mm09b21q10 | mm09b_EN_1.0 | I am a closed kind of person | |
| mm09b21q11 | mm09b_EN_1.0 | I would rather keep other people at a distance | |
| mm09b21q12 | mm09b_EN_1.0 | I often find myself worrying about something | |
| mm09b21q13 | mm09b_EN_1.0 | I am often down in the dumps | |
| mm09b21q14 | mm09b_EN_1.0 | When socializing, I don’t find the right things to talk about. | |
| mm09b21s01 | mm09b_EN_1.0 | Negative affect subscale | |
| mm09b21s02 | mm09b_EN_1.0 | Social inhibition subscale | |
| mm09b21s03 | mm09b_EN_1.0 | Type D personality | |
| mm09b22q01 | mm09b_EN_1.0 | How much does your illness affect your life? | |
| mm09b22q02 | mm09b_EN_1.0 | How long do you think your illness will continue? | |
| mm09b22q03 | mm09b_EN_1.0 | How much control do you feel you have over your illness? | |
| mm09b22q04 | mm09b_EN_1.0 | How much do you think your treatment can help your illness? | |
| mm09b22q05 | mm09b_EN_1.0 | How much do you experience symptoms from your illness? | |
| mm09b22q06 | mm09b_EN_1.0 | How concerned are you about your illness? | |
| mm09b22q07 | mm09b_EN_1.0 | How well do you feel you understand your illness? | |
| mm09b22q08 | mm09b_EN_1.0 | How much does your illness affect you emotionally? (e.g. does it make you angry, scared, upset or depressed? | |
| mm09b23q01 | mm09b_EN_1.0 | I am bothered by fatigue | |
| mm09b23q02 | mm09b_EN_1.0 | I get tired very quickly | |
| mm09b23q03 | mm09b_EN_1.0 | I don’t do much during the day | |
| mm09b23q04 | mm09b_EN_1.0 | I have enough energy for everyday life | |
| mm09b23q05 | mm09b_EN_1.0 | Physically, I feel exhausted | |
| mm09b23q06 | mm09b_EN_1.0 | I have problems starting things | |
| mm09b23q07 | mm09b_EN_1.0 | I have problems thinking clearly | |
| mm09b23q08 | mm09b_EN_1.0 | I feel no desire to do anything | |
| mm09b23q09 | mm09b_EN_1.0 | Mentally, I feel exhausted | |
| mm09b23q10 | mm09b_EN_1.0 | When I am doing something, I can concentrate quite well | |
| mm09b23s01 | mm09b_EN_1.0 | FAS total score | |
| mm09b24q01 | mm09b_EN_1.0 | I feel tense or ‘wound up’ | |
| mm09b24q02 | mm09b_EN_1.0 | I still enjoy the things I used to enjoy | |
| mm09b24q03 | mm09b_EN_1.0 | I get a sort of frightened feeling as if something awful is about to happen | |
| mm09b24q04 | mm09b_EN_1.0 | I can laugh and see the funny side of things | |
| mm09b24q05 | mm09b_EN_1.0 | Worrying thoughts go through my mind | |
| mm09b24q06 | mm09b_EN_1.0 | I feel cheerful | |
| mm09b24q07 | mm09b_EN_1.0 | I can sit at ease and feel relaxed | |
| mm09b24q08 | mm09b_EN_1.0 | I feel as if I am slowed down | |
| mm09b24q09 | mm09b_EN_1.0 | I get a sort of frightened feeling like ‘butterflies’ in the stomach | |
| mm09b24q10 | mm09b_EN_1.0 | I have lost interest in my appearance | |
| mm09b24q11 | mm09b_EN_1.0 | I feel restless, as if I have to be on the move | |
| mm09b24q12 | mm09b_EN_1.0 | I look forward with enjoyment to things | |
| mm09b24q13 | mm09b_EN_1.0 | I get sudden feelings of panic | |
| mm09b24q14 | mm09b_EN_1.0 | I can enjoy a good book or radio or TV program | |
| mm09b24s01 | mm09b_EN_1.0 | Anxiety total score | |
| mm09b24s02 | mm09b_EN_1.0 | Depression total score | |
| mm09b26q01 | mm09b_EN_1.0 | How much information have you received on: The diagnosis of your disease? | |
| mm09b26q02 | mm09b_EN_1.0 | How much information have you received on: The extent (spread) of your disease? | |
| mm09b26q03 | mm09b_EN_1.0 | How much information have you received on: The possible causes of your disease? | |
| mm09b26q04 | mm09b_EN_1.0 | How much information have you received on: Whether the disease is under control? | |
| mm09b26q05 | mm09b_EN_1.0 | How much information have you received on: The purpose of any medical tests you have had or may undergo? | |
| mm09b26q06 | mm09b_EN_1.0 | How much information have you received on: The procedures of the medical tests? | |
| mm09b26q07 | mm09b_EN_1.0 | How much information have you received on: The results of the medical tests you have already received? | |
| mm09b26q08 | mm09b_EN_1.0 | How much information have you received on: The medical treatment (chemotherapy, radiotherapy, surgery or other treatment modality)? | |
| mm09b26q09 | mm09b_EN_1.0 | How much information have you received on: Non-medical treatments (for example herbal therapy, homeopathy, relaxation therapy)? | |
| mm09b26q10 | mm09b_EN_1.0 | How much information have you received on: The expected benefit of the treatment? | |
| mm09b26q11 | mm09b_EN_1.0 | How much information have you received on: The possible side-effects of your treatment? | |
| mm09b26q12 | mm09b_EN_1.0 | How much information have you received on: The expected effects of the treatment on disease symptoms? | |
| mm09b26q13 | mm09b_EN_1.0 | How much information have you received on: The effects of the treatment on social and family life? | |
| mm09b26q14 | mm09b_EN_1.0 | How much information have you received on: The effects of the treatment on sexual activity? | |
| mm09b26q15 | mm09b_EN_1.0 | How much information have you received on: Additional help outside the hospital (e.g. help with daily activities, self help groups, district nurses)? | |
| mm09b26q16 | mm09b_EN_1.0 | How much information have you received on: Rehabilitation services (e. g. physiotherapy, occupational therapy)? | |
| mm09b26q17 | mm09b_EN_1.0 | How much information have you received on: Aspects of managing your illness at home? | |
| mm09b26q18 | mm09b_EN_1.0 | How much information have you received on: Possible professional psychological support? | |
| mm09b26q19 | mm09b_EN_1.0 | How much information have you received on: Different places of care (hospitals/outpatient services/home)? | |
| mm09b26q20 | mm09b_EN_1.0 | How much information have you received on: Things that you can do to help yourself get well (rest, contact with others..)? | |
| mm09b26q21 | mm09b_EN_1.0 | Have you received written information? | |
| mm09b26q22 | mm09b_EN_1.0 | Have you received information on CD or tape / video? | |
| mm09b26q23 | mm09b_EN_1.0 | Were you satisfied with the amount of information you received? | |
| mm09b26q24 | mm09b_EN_1.0 | Do you wish to receive more information? | |
| mm09b26q25 | mm09b_EN_1.0 | Do you wish that you had received less information? | |
| mm09b26q26 | mm09b_EN_1.0 | Overall has the information you have received been helpful? | |
| mm09b26s01 | mm09b_EN_1.0 | Information on your disease | |
| mm09b26s02 | mm09b_EN_1.0 | Information on your medical tests | |
| mm09b26s03 | mm09b_EN_1.0 | Information on treatment/your treatments | |
| mm09b26s04 | mm09b_EN_1.0 | Information on other services | |
| mm09b26s05 | mm09b_EN_1.0 | Information on other areas/places of care | |
| mm09b26s06 | mm09b_EN_1.0 | Information on things patient can do to get well | |
| mm09b26s07 | mm09b_EN_1.0 | Written information | |
| mm09b26s08 | mm09b_EN_1.0 | Information on cd, tape, video | |
| mm09b26s09 | mm09b_EN_1.0 | Satisfaction with information | |
| mm09b26s10 | mm09b_EN_1.0 | Desire to receive more information | |
| mm09b26s11 | mm09b_EN_1.0 | Desire to receive less information | |
| mm09b26s12 | mm09b_EN_1.0 | Helpfulness of information | |
| mm09b27q01 | mm09b_EN_1.0 | Do you use the Internet? | |
| mm09b27q02 | mm09b_EN_1.0 | Did you use the Internet to find information about Multipel Myeloom? |