IKNL Profiles > Quality of life lymphoma > Quality of life non-Hodgkin lymphoma May 2010
Publisher
IKNL Profiles study
Creator
Simone Oerlemans, Lonneke van de Poll - Franse
Created
Oct 27 2015
Description
URL to resource
Panel
iknl
Begin date
May 01 2010
| Name | English | Dutch |
|---|---|---|
| Intro | Life after cancer Please fill in the questionnaire by yourself, in your own pace. You can answer the questions by checking the box/number … | |
| 02q01 | What is currently your marital status? | |
| 02q02 | Indicate below which is your highest education level. | |
| 06q01 | Do you have a paid job at this moment? | |
| 06q02 | Paid job hours/week as employee | |
| 06q06 | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| 06q08 | Percentage of incapacity | |
| 06q09 | Due to cancer? | |
| 03q01 | Do you smoke? | |
| 03q02 | How long has it been you’ve quit smoking? | |
| 03q03 | Number of cigarettes per day | |
| 03q04 | Number of cigars per week | |
| 03q05 | Number of packages of pipe tobacco (50 grams) per week | |
| 03q06 | Can you state how many glasses of alcoholic drinks you drank on average per week in the past 12 months? | |
| 03q07 | How long has it been you’ve quit drinking alcohol? | |
| 03q08 | Number of glasses of beer per week | |
| 03q09 | Number of glasses of wine or port wine per week | |
| 03q10 | Number of glasses of liquor per week (eg. cognac, gin, whiskey, liquor) | |
| 04q01 - 04q08 | Can you indicate in the table below how many hours you have spend on average on a weekly basis on the following activities in the past summ… | |
| 04q09 | Have you done weekly sporting activities in the past year? | |
| 05q01 | How many times did you have contact with your general practitioner in the past 12 months? | |
| 05q02 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q03 | How many times did you have contact with your specialist in the past 12 months? | |
| 05q04 | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| 05q05 | Do you still have follow up appointments? | |
| 05q06 | Did you discuss with your specialist how often you have to come back from this moment on? | |
| 05q07 | Do you feel comfortable with this follow up scheme? | |
| 05q08 | Did you receive care after the treatment of your illness? | |
| 05q09 - 05q20 | From who did you receive care after the treatment of your ilness? | |
| 07q01 - 07q14 | Below you see a list of chronic conditions and diseases. Please indicate for each condition or disease whether you have it now or have had … | |
| 07q15 - 07q28 | Please indicate for each condition if you are treated for it or not. | |
| 07q29 - 07q42 | Please indicate for each condition whether it interferes with your activities or not. | |
| 06q07 | Which changes have you experienced in your work situation due to cancer? | |
| 53q01 | Did you have trouble finding (additional) health insurance, because of cancer? | |
| 53q02 | You have indicated that you have had trouble getting (additional) health insurance. What was the outcome? | |
| 53q03 | Did you have trouble getting life insurance, because of cancer? | |
| 53q04 | You have indicated that you have had trouble getting life insurance. What was the outcome? | |
| 53q05 | Did you have trouble getting mortgage, because of cancer? | |
| 53q06 | You have indicated that you have had trouble getting mortgage. What was the outcome? | |
| 09q01-09q30 | During the past week: | |
| 11q01 - 11q13 | Symptoms or problems. Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you … | |
| 11q14 - 11q17 | Symptoms or problems. Patients sometimes report that they have the following symptoms or problems. Please indicate the extent to which you … | |
| 23q01 - 23q10 | Fatigue | |
| 24q01 | I feel tense or ‘wound up’ | |
| 24q02 | I still enjoy the things I used to enjoy | |
| 24q03 | I get a sort of frightened feeling as if something awful is about to happen | |
| 24q04 | I can laugh and see the funny side of things | |
| 24q05 | Worrying thoughts go through my mind | |
| 24q06 | I feel cheerful | |
| 24q07 | I can sit at ease and feel relaxed | |
| 24q08 | I feel as if I am slowed down | |
| 24q09 | I get a sort of frightened feeling like ‘butterflies’ in the stomach | |
| 24q10 | I have lost interest in my appearance | |
| 24q11 | I feel restless, as if I have to be on the move | |
| 24q12 | I look forward with enjoyment to things | |
| 24q13 | I get sudden feelings of panic | |
| 24q14 | I can enjoy a good book or radio or TV program | |
| 25q01 - 25q41 | We would like to know how cancer affects your life. Please answer the following questions. Choose the answer that best applies to you. Ther… |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| nhl10a01pat_id | nhl10a_EN_1.0.sav | Patient identifier | |
| nhl10a01response | nhl10a_EN_1.0.sav | Response status | |
| nhl10a01gend | nhl10a_EN_1.0.sav | Gender | |
| nhl10a01ageinc | nhl10a_EN_1.0.sav | Age category at time of diagnosis | |
| nhl10a01ageques | nhl10a_EN_1.0.sav | Age category at time of questionnaire | |
| nhl10a01yrsdiag | nhl10a_EN_1.0.sav | Time passed since diagnosis in categories | |
| nhl10a01tumor | nhl10a_EN_1.0.sav | Non-Hodgkin Lymphoma/Chronic Lymfatic Leukemia | |
| nhl10a01treatment | nhl10a_EN_1.0.sav | Primary treatment | |
| nhl10a01stage | nhl10a_EN_1.0.sav | Stage | |
| nhl10a01bmi | nhl10a_EN_1.0.sav | Body Mass Index | |
| nhl10a01SES3 | nhl10a_EN_1.0.sav | SES status in 3(4) categories | |
| nhl10a01mode | nhl10a_EN_1.0.sav | Questionnaire filled in online or on paper | |
| nhl10a02q01 | nhl10a_EN_1.0.sav | What is currently your marital status? | |
| nhl10a02q02 | nhl10a_EN_1.0.sav | Indicate below which is your highest education level. | |
| nhl10a06q01 | nhl10a_EN_1.0.sav | Do you have a paid job at this moment? | |
| nhl10a06q02 | nhl10a_EN_1.0.sav | Paid job hours/week | |
| nhl10a06q06 | nhl10a_EN_1.0.sav | If you do not have a paid job, which of the following reasons is most applicable to your situation? | |
| nhl10a06q08 | nhl10a_EN_1.0.sav | Percentage of incapacity | |
| nhl10a06q09 | nhl10a_EN_1.0.sav | Due to cancer? | |
| nhl10a03q01 | nhl10a_EN_1.0.sav | Do you smoke? | |
| nhl10a03q02 | nhl10a_EN_1.0.sav | How long has it been you've quit smoking? | |
| nhl10a03q03 | nhl10a_EN_1.0.sav | Number of cigarettes per day | |
| nhl10a03q04 | nhl10a_EN_1.0.sav | Number of cigars per week | |
| nhl10a03q05 | nhl10a_EN_1.0.sav | Number of packages of pipe tobacco (50 grams) per week | |
| nhl10a03q06 | nhl10a_EN_1.0.sav | Can you state how many glasses of alcoholic drinks you drank on average per week in the past 12 months? | |
| nhl10a03q07 | nhl10a_EN_1.0.sav | How long has it been you've been quit drinking alcohol? | |
| nhl10a03q08 | nhl10a_EN_1.0.sav | Number of glasses of beer per week | |
| nhl10a03q09 | nhl10a_EN_1.0.sav | Number of glasses of wine or port wine per week | |
| nhl10a03q10 | nhl10a_EN_1.0.sav | Number of glasses of liquor per week (eg. cognac, gin, whiskey, liquor) | |
| nhl10a04q01 | nhl10a_EN_1.0.sav | Going for a walk in the summer (also walking to work, shopping, and walking in leisure time) | |
| nhl10a04q02 | nhl10a_EN_1.0.sav | Going for a walk in the winter (also walking to work, shopping, and walking in leisure time) | |
| nhl10a04q03 | nhl10a_EN_1.0.sav | Riding a bike in the summer (also riding a bike to work, shopping, and cycling in leisure time) | |
| nhl10a04q04 | nhl10a_EN_1.0.sav | Riding a bike in the winter (also riding a bike to work, shopping, and cycling in leisure time) | |
| nhl10a04q05 | nhl10a_EN_1.0.sav | Gardening in the summer | |
| nhl10a04q06 | nhl10a_EN_1.0.sav | Gardening in the winter | |
| nhl10a04q07 | nhl10a_EN_1.0.sav | Keeping house in the summer (for example laundry, cleaning, cooking, taking care of children) | |
| nhl10a04q08 | nhl10a_EN_1.0.sav | Keeping house in the winter (for example laundry, cleaning, cooking, taking care of children) | |
| nhl10a04q09 | nhl10a_EN_1.0.sav | Have you done weekly sporting ativities in the past year? | |
| nhl10a05q01 | nhl10a_EN_1.0.sav | How many times did you have contact with your general practitioner in the past 12 months? | |
| nhl10a05q02 | nhl10a_EN_1.0.sav | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| nhl10a05q03 | nhl10a_EN_1.0.sav | How many times did you have contact with your specialist in the past 12 months? | |
| nhl10a05q04 | nhl10a_EN_1.0.sav | How many of these contact moments had to do with cancer or the aftermath of cancer? | |
| nhl10a05q05 | nhl10a_EN_1.0.sav | Do you still have follow up appointments? | |
| nhl10a05q06 | nhl10a_EN_1.0.sav | Did you discuss with your specialist how often you have to come back from this moment on? | |
| nhl10a05q07 | nhl10a_EN_1.0.sav | Do you feel comfortable with this follow up scheme? | |
| nhl10a05q08 | nhl10a_EN_1.0.sav | Did you receive care after the treatment of your illness? | |
| nhl10a05q09 | nhl10a_EN_1.0.sav | Did you get extra care from a psychologist? | |
| nhl10a05q10 | nhl10a_EN_1.0.sav | Did you get extra care from a sexologist? | |
| nhl10a05q11 | nhl10a_EN_1.0.sav | Did you get extra care from a social worker? | |
| nhl10a05q12 | nhl10a_EN_1.0.sav | Did you get extra care from pastoral care? | |
| nhl10a05q13 | nhl10a_EN_1.0.sav | Did you get extra care from your general practitioner? | |
| nhl10a05q14 | nhl10a_EN_1.0.sav | Did you get extra care from a dietist | |
| nhl10a05q15 | nhl10a_EN_1.0.sav | Did you get extra care from a physiotherapist? | |
| nhl10a05q16 | nhl10a_EN_1.0.sav | Did you get extra care from recovery and balance? | |
| nhl10a05q17 | nhl10a_EN_1.0.sav | Did you get extra care from creative therapy? | |
| nhl10a05q18 | nhl10a_EN_1.0.sav | Did you get extra care from an oncological nurse? | |
| nhl10a05q19 | nhl10a_EN_1.0.sav | Did you get extra care from a peer group | |
| nhl10a05q20 | nhl10a_EN_1.0.sav | Did you get extra care from someone else? | |
| nhl10a07q01 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Heart condition | |
| nhl10a07q02 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Stroke | |
| nhl10a07q03 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: High blood pressure | |
| nhl10a07q04 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Asthma, chonic bronchitis, COPD | |
| nhl10a07q05 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Diabetes | |
| nhl10a07q06 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Ulcer | |
| nhl10a07q07 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Kidney disease | |
| nhl10a07q08 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Liver disease | |
| nhl10a07q09 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Anemia or other blood condition | |
| nhl10a07q10 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Thyroid disease | |
| nhl10a07q11 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Depression | |
| nhl10a07q12 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Arthritis | |
| nhl10a07q13 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Backache | |
| nhl10a07q14 | nhl10a_EN_1.0.sav | Please indicate for each condition or disease whether you have it now or have had it in the past 12 months: Rheumatism | |
| nhl10a07q15 | nhl10a_EN_1.0.sav | Are you being treated for your heart condition? | |
| nhl10a07q16 | nhl10a_EN_1.0.sav | Are you being treated for your stroke? | |
| nhl10a07q17 | nhl10a_EN_1.0.sav | Are you being treated for your high blood pressure? | |
| nhl10a07q18 | nhl10a_EN_1.0.sav | Are you being treated for your asthma, chronic bronchitis or COPD? | |
| nhl10a07q19 | nhl10a_EN_1.0.sav | Are you being treated for your diabetes? | |
| nhl10a07q20 | nhl10a_EN_1.0.sav | Are you being treated for your ulcer? | |
| nhl10a07q21 | nhl10a_EN_1.0.sav | Are you being treated for your kidney disease? | |
| nhl10a07q22 | nhl10a_EN_1.0.sav | Are you being treated for your liver disease? | |
| nhl10a07q23 | nhl10a_EN_1.0.sav | Are you being treated for your anemia or other blood condition? | |
| nhl10a07q24 | nhl10a_EN_1.0.sav | Are you being treated for your thyroid disease? | |
| nhl10a07q25 | nhl10a_EN_1.0.sav | Are you being treated for your depression? | |
| nhl10a07q26 | nhl10a_EN_1.0.sav | Are you being treated for your arthritis? | |
| nhl10a07q27 | nhl10a_EN_1.0.sav | Are you being treated for your backache? | |
| nhl10a07q28 | nhl10a_EN_1.0.sav | Are you being treated for your rheumatism? | |
| nhl10a07q29 | nhl10a_EN_1.0.sav | Does your heart condition interfere with your activities? | |
| nhl10a07q30 | nhl10a_EN_1.0.sav | Does your stroke interfere with your activities? | |
| nhl10a07q31 | nhl10a_EN_1.0.sav | Does your high blood pressure interfere with your activities? | |
| nhl10a07q32 | nhl10a_EN_1.0.sav | Does your asthma, chronic bronchitis or COPD interfere with your activities? | |
| nhl10a07q33 | nhl10a_EN_1.0.sav | Does your diabetes interfere with your activities? | |
| nhl10a07q34 | nhl10a_EN_1.0.sav | Does your ulcer interfere with your activities? | |
| nhl10a07q35 | nhl10a_EN_1.0.sav | Does your kidney disease interfere with your activities? | |
| nhl10a07q36 | nhl10a_EN_1.0.sav | Does your liver disease interfere with your activities? | |
| nhl10a07q37 | nhl10a_EN_1.0.sav | Does your anemia or other blood condition interfere with your activities? | |
| nhl10a07q38 | nhl10a_EN_1.0.sav | Does your thyroid disease interfere with your activities? | |
| nhl10a07q39 | nhl10a_EN_1.0.sav | Does your depression interfere with your activities? | |
| nhl10a07q40 | nhl10a_EN_1.0.sav | Does your arthritis interfere with your activities? | |
| nhl10a07q41 | nhl10a_EN_1.0.sav | Does your backache interfere with your activities? | |
| nhl10a07q42 | nhl10a_EN_1.0.sav | Does your rheumatism interfere with your activities? | |
| nhl10a06q07 | nhl10a_EN_1.0.sav | Which changes have you experienced in your work situation due to cancer? | |
| nhl10a53q01 | nhl10a_EN_1.0.sav | Did you have trouble finding (additional) health insurance, because of cancer? | |
| nhl10a53q02 | nhl10a_EN_1.0.sav | You have indicated that you have had trouble getting (additional) health insurance. What was the outcome? | |
| nhl10a53q03 | nhl10a_EN_1.0.sav | Did you have trouble getting life insurance, because of cancer? | |
| nhl10a53q04 | nhl10a_EN_1.0.sav | You have indicated that you have had trouble getting life insurance. What was the outcome? | |
| nhl10a53q05 | nhl10a_EN_1.0.sav | Did you have trouble getting mortgage, because of cancer? | |
| nhl10a53q06 | nhl10a_EN_1.0.sav | You have indicated that you have had trouble getting mortgage. What was the outcome? | |
| nhl10a09q01 | nhl10a_EN_1.0.sav | Do you have any trouble doing strenuous activities, like carrying a heavy shopping bag or a suitcase? | |
| nhl10a09q02 | nhl10a_EN_1.0.sav | Do you have any trouble taking a long walk? | |
| nhl10a09q03 | nhl10a_EN_1.0.sav | Do you have any trouble taking a short walk outside of the house? | |
| nhl10a09q04 | nhl10a_EN_1.0.sav | Do you need to stay in bed or a chair during the day? | |
| nhl10a09q05 | nhl10a_EN_1.0.sav | Do you need help with eating, dressing, washing yourself or using the toilet? | |
| nhl10a09q06 | nhl10a_EN_1.0.sav | Were you limited in doing either your work or other daily activities? | |
| nhl10a09q07 | nhl10a_EN_1.0.sav | Were you limited in pursuing your hobbies or other leisure time activities | |
| nhl10a09q08 | nhl10a_EN_1.0.sav | Were you short of breath? | |
| nhl10a09q09 | nhl10a_EN_1.0.sav | Have you had pain? | |
| nhl10a09q10 | nhl10a_EN_1.0.sav | Did you need to rest? | |
| nhl10a09q11 | nhl10a_EN_1.0.sav | Have you had trouble sleeping? | |
| nhl10a09q12 | nhl10a_EN_1.0.sav | Have you felt weak? | |
| nhl10a09q13 | nhl10a_EN_1.0.sav | Have you lacked appetite? | |
| nhl10a09q14 | nhl10a_EN_1.0.sav | Have you felt nauseated? | |
| nhl10a09q15 | nhl10a_EN_1.0.sav | Have you vomited? | |
| nhl10a09q16 | nhl10a_EN_1.0.sav | Have you been constipated? | |
| nhl10a09q17 | nhl10a_EN_1.0.sav | Have you had diarrhea? | |
| nhl10a09q18 | nhl10a_EN_1.0.sav | Were you tired? | |
| nhl10a09q19 | nhl10a_EN_1.0.sav | Did pain interfere with your daily activities? | |
| nhl10a09q20 | nhl10a_EN_1.0.sav | Have you had difficulty in concentrating on things, like reading a newspaper or watching television? | |
| nhl10a09q21 | nhl10a_EN_1.0.sav | Did you feel tense? | |
| nhl10a09q22 | nhl10a_EN_1.0.sav | Did you worry? | |
| nhl10a09q23 | nhl10a_EN_1.0.sav | Did you feel irritable? | |
| nhl10a09q24 | nhl10a_EN_1.0.sav | Did you feel depressed? | |
| nhl10a09q25 | nhl10a_EN_1.0.sav | Have you had difficulty remembering things? | |
| nhl10a09q26 | nhl10a_EN_1.0.sav | Has your physical condition or medical treatment interfered with your family life? | |
| nhl10a09q27 | nhl10a_EN_1.0.sav | Has your physical condition or medical treatment interfered with your social activities? | |
| nhl10a09q28 | nhl10a_EN_1.0.sav | Has your physical condition or medical treatment caused you financial difficulties? | |
| nhl10a09q29 | nhl10a_EN_1.0.sav | How would you rate your overall health during the past week? | |
| nhl10a09q30 | nhl10a_EN_1.0.sav | How would you rate your overall quality of life during the past week? | |
| nhl10a09s01 | nhl10a_EN_1.0.sav | Global health status/QoL | |
| nhl10a09s02 | nhl10a_EN_1.0.sav | Physical Function | |
| nhl10a09s03 | nhl10a_EN_1.0.sav | Role Function | |
| nhl10a09s04 | nhl10a_EN_1.0.sav | Emotional Function | |
| nhl10a09s05 | nhl10a_EN_1.0.sav | Cognitive Function | |
| nhl10a09s06 | nhl10a_EN_1.0.sav | Social Function | |
| nhl10a09s07 | nhl10a_EN_1.0.sav | Fatigue | |
| nhl10a09s08 | nhl10a_EN_1.0.sav | Nausea / vomiting | |
| nhl10a09s09 | nhl10a_EN_1.0.sav | Pain | |
| nhl10a09s10 | nhl10a_EN_1.0.sav | Dyspnoea | |
| nhl10a09s11 | nhl10a_EN_1.0.sav | Insomnia | |
| nhl10a09s12 | nhl10a_EN_1.0.sav | Appetite loss | |
| nhl10a09s13 | nhl10a_EN_1.0.sav | Constipation | |
| nhl10a09s14 | nhl10a_EN_1.0.sav | Diarrhea | |
| nhl10a09s15 | nhl10a_EN_1.0.sav | Financial problems | |
| nhl10a11q01 | nhl10a_EN_1.0.sav | Have you lost weight? | |
| nhl10a11q02 | nhl10a_EN_1.0.sav | Have you had a dry mouth? | |
| nhl10a11q03 | nhl10a_EN_1.0.sav | Did you bruise? | |
| nhl10a11q04 | nhl10a_EN_1.0.sav | Did you have abdominal discomfort? | |
| nhl10a11q05 | nhl10a_EN_1.0.sav | Has your temperature been going up and down? | |
| nhl10a11q06 | nhl10a_EN_1.0.sav | Did you have night sweats? | |
| nhl10a11q07 | nhl10a_EN_1.0.sav | Have you had skin problems (e.g. itchy, dry)? | |
| nhl10a11q08 | nhl10a_EN_1.0.sav | Did you feel ill or unwell? | |
| nhl10a11q09 | nhl10a_EN_1.0.sav | Did you feel lethargic? | |
| nhl10a11q10 | nhl10a_EN_1.0.sav | Have you felt “slowed down� | |
| nhl10a11q11 | nhl10a_EN_1.0.sav | Did you have tingling hands or feet? | |
| nhl10a11q12 | nhl10a_EN_1.0.sav | Were you limited in planning activities (for example meeting friends)? | |
| nhl10a11q13 | nhl10a_EN_1.0.sav | Have you worried about your health in the future? | |
| nhl10a11q14 | nhl10a_EN_1.0.sav | Have you had trouble with chest infections? | |
| nhl10a11q15 | nhl10a_EN_1.0.sav | Have you had trouble with other infections? | |
| nhl10a11q16 | nhl10a_EN_1.0.sav | Have you needed repeated courses of antibiotics? | |
| nhl10a11q17 | nhl10a_EN_1.0.sav | Have you worried about picking up an infection? | |
| nhl10a23q01 | nhl10a_EN_1.0.sav | I am bothered by fatigue | |
| nhl10a23q02 | nhl10a_EN_1.0.sav | I get tired very quickly | |
| nhl10a23q03 | nhl10a_EN_1.0.sav | I don’t do much during the day | |
| nhl10a23q04 | nhl10a_EN_1.0.sav | I have enough energy for everyday life | |
| nhl10a23q05 | nhl10a_EN_1.0.sav | Physically, I feel exhausted | |
| nhl10a23q06 | nhl10a_EN_1.0.sav | I have problems starting things | |
| nhl10a23q07 | nhl10a_EN_1.0.sav | I have problems thinking clearly | |
| nhl10a23q08 | nhl10a_EN_1.0.sav | I feel no desire to do anything | |
| nhl10a23q09 | nhl10a_EN_1.0.sav | Mentally, I feel exhausted | |
| nhl10a23q10 | nhl10a_EN_1.0.sav | When I am doing something, I can concentrate quite well | |
| nhl10a23s01 | nhl10a_EN_1.0.sav | FAS total score | |
| nhl10a24q01 | nhl10a_EN_1.0.sav | I feel tense or ‘wound up’ | |
| nhl10a24q02 | nhl10a_EN_1.0.sav | I still enjoy the things I used to enjoy | |
| nhl10a24q03 | nhl10a_EN_1.0.sav | I get a sort of frightened feeling as if something awful is about to happen | |
| nhl10a24q04 | nhl10a_EN_1.0.sav | I can laugh and see the funny side of things | |
| nhl10a24q05 | nhl10a_EN_1.0.sav | Worrying thoughts go through my mind | |
| nhl10a24q06 | nhl10a_EN_1.0.sav | I feel cheerful | |
| nhl10a24q07 | nhl10a_EN_1.0.sav | I can sit at ease and feel relaxed | |
| nhl10a24q08 | nhl10a_EN_1.0.sav | I feel as if I am slowed down | |
| nhl10a24q09 | nhl10a_EN_1.0.sav | I get a sort of frightened feeling like ‘butterflies’ in the stomach | |
| nhl10a24q10 | nhl10a_EN_1.0.sav | I have lost interest in my appearance | |
| nhl10a24q11 | nhl10a_EN_1.0.sav | I feel restless, as if I have to be on the move | |
| nhl10a24q12 | nhl10a_EN_1.0.sav | I look forward with enjoyment to things | |
| nhl10a24q13 | nhl10a_EN_1.0.sav | I get sudden feelings of panic | |
| nhl10a24q14 | nhl10a_EN_1.0.sav | I can enjoy a good book or radio or TV program | |
| nhl10a24s01 | nhl10a_EN_1.0.sav | HADS anxiety | |
| nhl10a24s02 | nhl10a_EN_1.0.sav | HADS depression | |
| nhl10a25q01 | nhl10a_EN_1.0.sav | I learned something about life because of having cancer | |
| nhl10a25q02 | nhl10a_EN_1.0.sav | Having had cancer makes me feel unsure about my future. | |
| nhl10a25q03 | nhl10a_EN_1.0.sav | I worry about my future. | |
| nhl10a25q04 | nhl10a_EN_1.0.sav | I am afraid to die. | |
| nhl10a25q05 | nhl10a_EN_1.0.sav | I feel like time in my life is running out. | |
| nhl10a25q06 | nhl10a_EN_1.0.sav | Having had cancer has made me realize that time is precious. | |
| nhl10a25q07 | nhl10a_EN_1.0.sav | Having had cancer has strengthened my religious faith or my sense of spirituality. | |
| nhl10a25q08 | nhl10a_EN_1.0.sav | I do not take my body for granted since the cancer. | |
| nhl10a25q09 | nhl10a_EN_1.0.sav | Having had cancer has made me more concerned about my health. | |
| nhl10a25q10 | nhl10a_EN_1.0.sav | I am more aware of physical problems or changes in my body since having had cancer. | |
| nhl10a25q11 | nhl10a_EN_1.0.sav | I worry about my health. | |
| nhl10a25q12 | nhl10a_EN_1.0.sav | I worry about the cancer coming back or about getting another cancer. | |
| nhl10a25q13 | nhl10a_EN_1.0.sav | New symptoms (aches, pains, getting sick or the flu) make me worry about the cancer coming back. | |
| nhl10a25q14 | nhl10a_EN_1.0.sav | I am concerned that my energy has not returned to what it was before I had cancer. | |
| nhl10a25q15 | nhl10a_EN_1.0.sav | I am bothered that my body cannot do what it could before having had cancer. | |
| nhl10a25q16 | nhl10a_EN_1.0.sav | I worry about how my body looks. | |
| nhl10a25q17 | nhl10a_EN_1.0.sav | I feel disfigured. | |
| nhl10a25q18 | nhl10a_EN_1.0.sav | I sometimes wear clothing to cover up parts of my body I don’t want others to see. | |
| nhl10a25q19 | nhl10a_EN_1.0.sav | Having had cancer has made me take better care of myself (my health). | |
| nhl10a25q20 | nhl10a_EN_1.0.sav | Having to pay attention to my physical health interferes with my life. | |
| nhl10a25q21 | nhl10a_EN_1.0.sav | I feel a sense of pride or accomplishment from surviving cancer. | |
| nhl10a25q22 | nhl10a_EN_1.0.sav | I learned something about myself because of having had cancer. | |
| nhl10a25q24 | nhl10a_EN_1.0.sav | I feel guilty for somehow being responsible for getting cancer. | |
| nhl10a25q25 | nhl10a_EN_1.0.sav | I feel that I am a role model to other people with cancer. | |
| nhl10a25q26 | nhl10a_EN_1.0.sav | Having had cancer has made me feel old. | |
| nhl10a25q27 | nhl10a_EN_1.0.sav | I feel guilty today for not having been available to my family when I had cancer. | |
| nhl10a25q28 | nhl10a_EN_1.0.sav | Having had cancer has been the most difficult experience in my life. | |
| nhl10a25q29 | nhl10a_EN_1.0.sav | I wonder why I got cancer. | |
| nhl10a25q30 | nhl10a_EN_1.0.sav | It is important for me to know why I got cancer. | |
| nhl10a25q31 | nhl10a_EN_1.0.sav | Having had cancer turned into a reason to make changes in my life | |
| nhl10a25q32 | nhl10a_EN_1.0.sav | Because of cancer I have become better about expressing what I want. | |
| nhl10a25q33 | nhl10a_EN_1.0.sav | Because of cancer I have more confidence in myself. | |
| nhl10a25q34 | nhl10a_EN_1.0.sav | Having had cancer has given me direction in life. | |
| nhl10a25q35 | nhl10a_EN_1.0.sav | I place a higher value on my relationships with family or friends than I did before having had cancer. | |
| nhl10a25q36 | nhl10a_EN_1.0.sav | I feel a special bond with people with cancer. | |
| nhl10a25q37 | nhl10a_EN_1.0.sav | Because I had cancer I am more understanding of what other people may feel when they are seriously ill. | |
| nhl10a25q38 | nhl10a_EN_1.0.sav | Having had cancer has made me more willing to help others. | |
| nhl10a25q39 | nhl10a_EN_1.0.sav | I feel that I should give something back to others because I survived cancer. | |
| nhl10a25q40 | nhl10a_EN_1.0.sav | Having had cancer keeps me from doing activities I enjoy (examples: travel, socializing, recreation, time with family). | |
| nhl10a25q41 | nhl10a_EN_1.0.sav | On-going cancer-related or treatment-related symptoms interfere with my life. | |
| nhl10a25s01 | nhl10a_EN_1.0.sav | Physical: health awareness | |
| nhl10a25s02 | nhl10a_EN_1.0.sav | Physical: body changes | |
| nhl10a25s03 | nhl10a_EN_1.0.sav | Psychological: positive self-evaluation | |
| nhl10a25s04 | nhl10a_EN_1.0.sav | Psychological: negative self-evaluation | |
| nhl10a25s05 | nhl10a_EN_1.0.sav | Existential: positive outlook | |
| nhl10a25s06 | nhl10a_EN_1.0.sav | Existential: negative outlook | |
| nhl10a25s07 | nhl10a_EN_1.0.sav | Social: life interferences | |
| nhl10a25s08 | nhl10a_EN_1.0.sav | Social: value of relationships | |
| nhl10a25s09 | nhl10a_EN_1.0.sav | IOC meaning of cancer | |
| nhl10a25s10 | nhl10a_EN_1.0.sav | IOC health worry | |
| nhl10a25s11 | nhl10a_EN_1.0.sav | IOC positive higher order scale score | |
| nhl10a25s12 | nhl10a_EN_1.0.sav | IOC negative higher order scale score |