IKNL Profiles > Quality of life prostate cancer 2014/2015
Publisher
IKNL Profiles study
Creator
Lonneke van de Poll-Franse
Created
Mar 21 2018
Description
URL to resource
Panel
iknl
Begin date
Oct 10 2014
| Name | English | Dutch |
|---|---|---|
| Intro | Life after cancer Questionnaire about quality of life, use of care, and satisfaction with care, for people who have been diagnosed with pro… | |
| 02q01 | What is currently your marital status? | |
| 02q02 | What is the highest education level that you have completed? | |
| 02q03 | Do you have a partner at this moment? | |
| 06q01 | Do you have a paid job at the moment? | |
| 06q01a | For how many hours per week are you employed? | |
| 06q01b | For how many hours per week are you an entrepreneur? | |
| 06q04 | How many weeks were you unable to work because of cancer? | |
| 06q04a | Number of weeks unable to work | |
| 06q07a - 06q07i | Which changes have you experienced in your work situation due to cancer? | |
| 06q07e1 | Number of hours more working | |
| 06q07f1 | Number of hours less working | |
| 07q01, 07q04, 07q07, 07q10, 07q13, 07q16, 07q19, 07q22, 07q25, 07q28, 07q31, 07q34, 07q37, 07q40, 07q41 | Below you see a list of chronic conditions and diseases. Please indicate for each condition or disease whether you have it now or have had … | |
| 09q01 - 09q05 | We are interested in certain things about you and your health. Please answer each question by checking the box in the indicated manner. If … | |
| 09q06 - 09q15 | During the past week: | Gedurende de afgelopen week: |
| 09q16 - 09q28 | During the past week: | |
| 09q29 | How would you rate your overall health during the past week? | |
| 09q30 | How would you rate your overall quality of life during the past week? | |
| 09S01 | Global Health scale | |
| 09S02 | Physical Functioning scale | |
| 09S03 | Role Functioning scale | |
| 09S04 | Emotional Functioning scale | |
| 09S05 | Cognitive Functioning scale | |
| 09S06 | Social Functioning scale | |
| 09S07 | Fatique scale | |
| 09S08 | Nausea scale | |
| 09S09 | Pain scale | |
| 09S10 | Dyspnoea scale | |
| 09S11 | Insomnia scale | |
| 09S12 | Appetite scale | |
| 09S13 | Constipation scale | |
| 09S14 | Diarrhea scale | |
| 09S15 | Financial scale | |
| 15q01 - 15q25 | Please indicate the extent to which you have experienced these symptoms or problems during the past week. | |
| 25q01 - 25q07 | We would like to know how cancer affects your life. Please answer the following questions. Choose the answer that best applies to you. Ther… | |
| 50q01 - 50q12 | Please indicate to what extent these statements are applicable to you. | |
| 50S01 | Social support scale |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| pr14a01pat_id | Quality of life prostate cancer 2014/2015 | Patient identifier | |
| pr14a01response | Quality of life prostate cancer 2014/2015 | Response status | |
| pr14a01mode | Quality of life prostate cancer 2014/2015 | Questionnaire filled in online or on paper | |
| pr14a01gend | Quality of life prostate cancer 2014/2015 | Gender | |
| pr14a01ageinc | Quality of life prostate cancer 2014/2015 | Age categories at time of diagnosis | |
| pr14a01ageques | Quality of life prostate cancer 2014/2015 | Age categories at time of questionnaire | |
| pr14a01yrsdiag | Quality of life prostate cancer 2014/2015 | Time since diagnosis in categories | |
| pr14a01T_ses3 | Quality of life prostate cancer 2014/2015 | Social economic status | |
| pr14a01stage | Quality of life prostate cancer 2014/2015 | Tumor stage | |
| pr14a01grade | Quality of life prostate cancer 2014/2015 | Tumor differentation | |
| pr14a01sys | Quality of life prostate cancer 2014/2015 | Treatment: Systematic | |
| pr14a01che | Quality of life prostate cancer 2014/2015 | Treatment: Chemo | |
| pr14a01hor | Quality of life prostate cancer 2014/2015 | Treatment: Hormone | |
| pr14a01imm | Quality of life prostate cancer 2014/2015 | Treatment: Immuno | |
| pr14a01sur | Quality of life prostate cancer 2014/2015 | Treatment: Surgery | |
| pr14a01rad | Quality of life prostate cancer 2014/2015 | Treatment: Radiotherapy | |
| pr14a01oth | Quality of life prostate cancer 2014/2015 | Treatment: Other | |
| pr14a01non | Quality of life prostate cancer 2014/2015 | Treatment: None | |
| pr14a01unk | Quality of life prostate cancer 2014/2015 | Treatment: Unknow | |
| pr14a02q01 | Quality of life prostate cancer 2014/2015 | What is currently your marital status? | |
| pr14a02q02 | Quality of life prostate cancer 2014/2015 | What is the highest level of education that you have completed? | |
| pr14a02q03 | Quality of life prostate cancer 2014/2015 | Do you have a partner at this moment? | |
| pr14a06q01 | Quality of life prostate cancer 2014/2015 | Do you have a paid job at the moment? | |
| pr14a06q01a | Quality of life prostate cancer 2014/2015 | For how many hours per week are you employed? | |
| pr14a06q01b | Quality of life prostate cancer 2014/2015 | For how many hours per week are you an entrepeneur? | |
| pr14a06q04 | Quality of life prostate cancer 2014/2015 | How many weeks were you unable to work because of cancer? | |
| pr14a06q04a | Quality of life prostate cancer 2014/2015 | Number of weeks unable to work | |
| pr14a06q07a | Quality of life prostate cancer 2014/2015 | Nothing has changed | |
| pr14a06q07b | Quality of life prostate cancer 2014/2015 | I have been retrained | |
| pr14a06q07c | Quality of life prostate cancer 2014/2015 | I got another job due to cancer | |
| pr14a06q07d | Quality of life prostate cancer 2014/2015 | I have quit working due to cancer | |
| pr14a06q07e | Quality of life prostate cancer 2014/2015 | I am working more hours due to cancer | |
| pr14a06q07f | Quality of life prostate cancer 2014/2015 | I am working less hours due to cancer | |
| pr14a06q07g | Quality of life prostate cancer 2014/2015 | I am disabled due to cancer | |
| pr14a06q07h | Quality of life prostate cancer 2014/2015 | I have retired early | |
| pr14a06q07i | Quality of life prostate cancer 2014/2015 | I have been fired due to cancer | |
| pr14a06q07e1 | Quality of life prostate cancer 2014/2015 | Number of hours more working | |
| pr14a06q07f1 | Quality of life prostate cancer 2014/2015 | Number of hours less working | |
| pr14a07q01 | Quality of life prostate cancer 2014/2015 | Heart condition | |
| pr14a07q04 | Quality of life prostate cancer 2014/2015 | Stroke | |
| pr14a07q07 | Quality of life prostate cancer 2014/2015 | High blood pressure | |
| pr14a07q10 | Quality of life prostate cancer 2014/2015 | Asthma, chronic bronchitis, COPD | |
| pr14a07q13 | Quality of life prostate cancer 2014/2015 | Diabetes | |
| pr14a07q16 | Quality of life prostate cancer 2014/2015 | Ulcer | |
| pr14a07q19 | Quality of life prostate cancer 2014/2015 | Kidney disease | |
| pr14a07q22 | Quality of life prostate cancer 2014/2015 | Liver disease | |
| pr14a07q25 | Quality of life prostate cancer 2014/2015 | Anemia / other blood condition | |
| pr14a07q28 | Quality of life prostate cancer 2014/2015 | Thyroid disease | |
| pr14a07q31 | Quality of life prostate cancer 2014/2015 | Depression | |
| pr14a07q34 | Quality of life prostate cancer 2014/2015 | Arthritis | |
| pr14a07q37 | Quality of life prostate cancer 2014/2015 | Backache | |
| pr14a07q40 | Quality of life prostate cancer 2014/2015 | Rheumatism | |
| pr14a07q41 | Quality of life prostate cancer 2014/2015 | Another medical issue | |
| pr14a09q01 | Quality of life prostate cancer 2014/2015 | Trouble doing strenous activities | |
| pr14a09q02 | Quality of life prostate cancer 2014/2015 | Trouble taking a long walk | |
| pr14a09q03 | Quality of life prostate cancer 2014/2015 | Trouble taking a short walk outside of the house | |
| pr14a09q04 | Quality of life prostate cancer 2014/2015 | Need to stay in bed or chair | |
| pr14a09q05 | Quality of life prostate cancer 2014/2015 | Need help eating, dressing, washing, toilet | |
| pr14a09q06 | Quality of life prostate cancer 2014/2015 | Limited in doing work or daily activities | |
| pr14a09q07 | Quality of life prostate cancer 2014/2015 | Limited in pursuing hobbies | |
| pr14a09q08 | Quality of life prostate cancer 2014/2015 | Short of breath | |
| pr14a09q09 | Quality of life prostate cancer 2014/2015 | Have had pain | |
| pr14a09q10 | Quality of life prostate cancer 2014/2015 | Need to rest | |
| pr14a09q11 | Quality of life prostate cancer 2014/2015 | Trouble sleeping | |
| pr14a09q12 | Quality of life prostate cancer 2014/2015 | Felt weak | |
| pr14a09q13 | Quality of life prostate cancer 2014/2015 | Lacked appetite | |
| pr14a09q14 | Quality of life prostate cancer 2014/2015 | Felt nauseated | |
| pr14a09q15 | Quality of life prostate cancer 2014/2015 | Vomited | |
| pr14a09q16 | Quality of life prostate cancer 2014/2015 | Been constipated | |
| pr14a09q17 | Quality of life prostate cancer 2014/2015 | Had diarrhea | |
| pr14a09q18 | Quality of life prostate cancer 2014/2015 | Tired | |
| pr14a09q19 | Quality of life prostate cancer 2014/2015 | Pain interefered with daily activities | |
| pr14a09q20 | Quality of life prostate cancer 2014/2015 | Difficulty concentrating | |
| pr14a09q21 | Quality of life prostate cancer 2014/2015 | Tense | |
| pr14a09q22 | Quality of life prostate cancer 2014/2015 | Worry | |
| pr14a09q23 | Quality of life prostate cancer 2014/2015 | Feel irritable | |
| pr14a09q24 | Quality of life prostate cancer 2014/2015 | Feel depressed | |
| pr14a09q25 | Quality of life prostate cancer 2014/2015 | Difficulty remembering things | |
| pr14a09q26 | Quality of life prostate cancer 2014/2015 | Interfered with family life | |
| pr14a09q27 | Quality of life prostate cancer 2014/2015 | Interfered with social activities | |
| pr14a09q28 | Quality of life prostate cancer 2014/2015 | Caused financial difficulties | |
| pr14a09q29 | Quality of life prostate cancer 2014/2015 | Rate overall health | |
| pr14a09q30 | Quality of life prostate cancer 2014/2015 | Rate quality of life | |
| pr14a09S01 | Quality of life prostate cancer 2014/2015 | Global Health scale | |
| pr14a09S02 | Quality of life prostate cancer 2014/2015 | Physical Functioning scale | |
| pr14a09S03 | Quality of life prostate cancer 2014/2015 | Role Functioning scale | |
| pr14a09S04 | Quality of life prostate cancer 2014/2015 | Emotional Functioning scale | |
| pr14a09S05 | Quality of life prostate cancer 2014/2015 | Cognitive Functioning scale | |
| pr14a09S06 | Quality of life prostate cancer 2014/2015 | Social Functioning scale | |
| pr14a09S07 | Quality of life prostate cancer 2014/2015 | Fatique scale | |
| pr14a09S08 | Quality of life prostate cancer 2014/2015 | Nausea scale | |
| pr14a09S09 | Quality of life prostate cancer 2014/2015 | Pain scale | |
| pr14a09S10 | Quality of life prostate cancer 2014/2015 | Dyspnoea scale | |
| pr14a09S11 | Quality of life prostate cancer 2014/2015 | Insomnia scale | |
| pr14a09S12 | Quality of life prostate cancer 2014/2015 | Appetite scale | |
| pr14a09S13 | Quality of life prostate cancer 2014/2015 | Constipation scale | |
| pr14a09S14 | Quality of life prostate cancer 2014/2015 | Diarrhea scale | |
| pr14a09S15 | Quality of life prostate cancer 2014/2015 | Financial scale | |
| pr14a15q01 | Quality of life prostate cancer 2014/2015 | Have you had to urinate frequently during the day? | |
| pr14a15q02 | Quality of life prostate cancer 2014/2015 | Have you had to urinate frequently at night? | |
| pr14a15q03 | Quality of life prostate cancer 2014/2015 | When you felt the urge to pass urine, did you have to hurry to get to the toilet? | |
| pr14a15q04 | Quality of life prostate cancer 2014/2015 | Was it difficult for you to get enough sleep, because you needed to get up frequently at night to urinate? | |
| pr14a15q05 | Quality of life prostate cancer 2014/2015 | Have you had difficulty going out of the house because you needed to be close to a toilet | |
| pr14a15q06 | Quality of life prostate cancer 2014/2015 | Have you had any unintentional release (leakage) of urine? | |
| pr14a15q07 | Quality of life prostate cancer 2014/2015 | Did you have pain when you urinated? | |
| pr14a15q08 | Quality of life prostate cancer 2014/2015 | Has wearing an incontinence aid been a problem for you? | |
| pr14a15q09 | Quality of life prostate cancer 2014/2015 | Have your daily activities been limited by your urinary problems? | |
| pr14a15q10 | Quality of life prostate cancer 2014/2015 | Have your daily activities been limited by your bowel problems? | |
| pr14a15q11 | Quality of life prostate cancer 2014/2015 | Have you had any unintentional release (leakage) of stools? | |
| pr14a15q12 | Quality of life prostate cancer 2014/2015 | Have you had blood in your stools? | |
| pr14a15q13 | Quality of life prostate cancer 2014/2015 | Did you have a bloated feeling in your abdomen? | |
| pr14a15q14 | Quality of life prostate cancer 2014/2015 | Did you have hot flushes? | |
| pr14a15q15 | Quality of life prostate cancer 2014/2015 | Have you had sore or enlarged nipples or breasts? | |
| pr14a15q16 | Quality of life prostate cancer 2014/2015 | Have you had swelling in your legs or ankles? | |
| pr14a15q17 | Quality of life prostate cancer 2014/2015 | Has weight loss been a problem for you? | |
| pr14a15q18 | Quality of life prostate cancer 2014/2015 | Has weight gain been a problem for you? | |
| pr14a15q19 | Quality of life prostate cancer 2014/2015 | Have you felt less masculine as a result of your illness or treatment? | |
| pr14a15q20 | Quality of life prostate cancer 2014/2015 | To what extent were you interested in sex? | |
| pr14a15q21 | Quality of life prostate cancer 2014/2015 | To what extent were you sexually active (with or without intercourse)? | |
| pr14a15q22 | Quality of life prostate cancer 2014/2015 | To what extent was sex enjoyable for you? | |
| pr14a15q23 | Quality of life prostate cancer 2014/2015 | Did you have difficulty getting or maintaining an erection? | |
| pr14a15q24 | Quality of life prostate cancer 2014/2015 | Did you have ejaculation problems (eg dry ejaculation)? | |
| pr14a15q25 | Quality of life prostate cancer 2014/2015 | Have you felt uncomfortable about being sexually intimate? | |
| pr14a25q01 | Quality of life prostate cancer 2014/2015 | Unsure about future | |
| pr14a25q02 | Quality of life prostate cancer 2014/2015 | Time is running out | |
| pr14a25q03 | Quality of life prostate cancer 2014/2015 | Worry about cancer coming back | |
| pr14a25q04 | Quality of life prostate cancer 2014/2015 | Concerned about my health | |
| pr14a25q05 | Quality of life prostate cancer 2014/2015 | Worry about future | |
| pr14a25q06 | Quality of life prostate cancer 2014/2015 | Worry about new symptons | |
| pr14a25q07 | Quality of life prostate cancer 2014/2015 | Worry about health | |
| pr14a50q01 | Quality of life prostate cancer 2014/2015 | Special person when in need | |
| pr14a50q02 | Quality of life prostate cancer 2014/2015 | Special person for joys and sorrows | |
| pr14a50q03 | Quality of life prostate cancer 2014/2015 | Family tries to help me | |
| pr14a50q04 | Quality of life prostate cancer 2014/2015 | Emotional help and support | |
| pr14a50q05 | Quality of life prostate cancer 2014/2015 | Source of comfort | |
| pr14a50q06 | Quality of life prostate cancer 2014/2015 | Friends try to help me | |
| pr14a50q07 | Quality of life prostate cancer 2014/2015 | Count on friends | |
| pr14a50q08 | Quality of life prostate cancer 2014/2015 | Talk about problems with family | |
| pr14a50q09 | Quality of life prostate cancer 2014/2015 | Friends for joys and sorrows | |
| pr14a50q10 | Quality of life prostate cancer 2014/2015 | Special person who cares | |
| pr14a50q11 | Quality of life prostate cancer 2014/2015 | Family helps to make decisions | |
| pr14a50q12 | Quality of life prostate cancer 2014/2015 | Talk about problems with friends | |
| pr14a50S01 | Quality of life prostate cancer 2014/2015 | Scale of perceived social support |