IKNL Profiles > Life after the diagnosis of melanoma 2014/2015
Publisher
IKNL Profiles study
Creator
Lonneke van de Poll-Franse
Created
Apr 13 2018
Description
The questionnaire focuses on quality of life, complaints, social support and influence of cancer on patients who have been diagnosed with melanoma.
URL to resource
Panel
iknl
Begin date
Oct 01 2014
| Name | English | Dutch |
|---|---|---|
| Intro | Life after cancer Questionnaire about quality of life, use of care, and satisfaction with care, for people who have been diagnosed with pro… | |
| 02q01 | What is currently your marital status? | |
| 02q02 | What is the highest education level that you have completed? | |
| 02q03 | Do you have a partner at this moment? | |
| 06q01 | Do you have a paid job at the moment? | |
| 06q01a | For how many hours per week are you employed? | |
| 06q01b | For how many hours per week are you an entrepreneur? | |
| 06q04 | How many weeks were you unable to work because of cancer? | |
| 06q04a | Number of weeks unable to work | |
| 06q07a - 06q07i | Which changes have you experienced in your work situation due to cancer? | |
| 06q07e1 | Number of hours more working | |
| 06q07f1 | Number of hours less working | |
| 07q01, 07q04, 07q07, 07q10, 07q13, 07q16, 07q19, 07q22, 07q25, 07q28, 07q31, 07q34, 07q37, 07q40, 07q41 | Below you see a list of chronic conditions and diseases. Please indicate for each condition or disease whether you have it now or have had … | |
| 09q01 - 09q05 | We are interested in certain things about you and your health. Please answer each question by checking the box in the indicated manner. If … | |
| 09q06 - 09q15 | During the past week: | |
| 09q16 - 09q28 | During the past week: | |
| 09q29 | How would you rate your overall health during the past week? | |
| 09q30 | How would you rate your overall quality of life during the past week? | |
| 09S01 | Global Health scale | |
| 09S02 | Physical Functioning scale | |
| 09S03 | Role Functioning scale | |
| 09S04 | Emotional Functioning scale | |
| 09S05 | Cognitive Functioning scale | |
| 09S06 | Social Functioning scale | |
| 09S07 | Fatique scale | |
| 09S08 | Nausea scale | |
| 09S09 | Pain scale | |
| 09S10 | Dyspnoea scale | |
| 09S11 | Insomnia scale | |
| 09S12 | Appetite scale | |
| 09S13 | Constipation scale | |
| 09S14 | Diarrhea scale | |
| 09S15 | Financial scale | |
| 25q01 - 25q07 | We would like to know how cancer affects your life. Please answer the following questions. Choose the answer that best applies to you. Ther… | |
| 50q01 - 50q12 | Please indicate to what extent these statements are applicable to you. | |
| 50S01 | Social support scale |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| ml14a01pat_id | ml14a_EN_1.0 | Patient identifier | |
| ml14a01response | ml14a_EN_1.0 | Response status | |
| ml14a01mode | ml14a_EN_1.0 | Questionnaire filled in online or on paper | |
| ml14a01gend | ml14a_EN_1.0 | Gender | |
| ml14a01ageinc | ml14a_EN_1.0 | Age categories at time of diagnosis | |
| ml14a01ageques | ml14a_EN_1.0 | Age categories at time of questionnaire | |
| ml14a01yrsdiag | ml14a_EN_1.0 | Time since diagnosis in categories | |
| ml14a01T_ses3 | ml14a_EN_1.0 | Social economic status | |
| ml14a01tumor | ml14a_EN_1.0 | Tumor | |
| ml14a01stage | ml14a_EN_1.0 | Tumor stage | |
| ml14a01grade | ml14a_EN_1.0 | Tumor differentation | |
| ml14a01sys | ml14a_EN_1.0 | Treatment: Systematic | |
| ml14a01hor | ml14a_EN_1.0 | Treatment: Hormone | |
| ml14a01sur | ml14a_EN_1.0 | Treatment: Surgery | |
| ml14a01rad | ml14a_EN_1.0 | Treatment: Radiotherapy | |
| ml14a01oth | ml14a_EN_1.0 | Treatment: Other | |
| ml14a01non | ml14a_EN_1.0 | Treatment: None | |
| ml14a01unk | ml14a_EN_1.0 | Treatment: Unknow | |
| ml14a02q01 | ml14a_EN_1.0 | What is currently your marital status? | |
| ml14a02q02 | ml14a_EN_1.0 | What is the highest level of education that you have completed? | |
| ml14a02q03 | ml14a_EN_1.0 | Do you have a partner at this moment? | |
| ml14a06q01 | ml14a_EN_1.0 | Do you have a paid job at the moment? | |
| ml14a06q01a | ml14a_EN_1.0 | For how many hours per week are you employed? | |
| ml14a06q01b | ml14a_EN_1.0 | For how many hours per week are you an entrepeneur? | |
| ml14a06q04 | ml14a_EN_1.0 | How many weeks were you unable to work because of cancer? | |
| ml14a06q04a | ml14a_EN_1.0 | Number of weeks unable to work | |
| ml14a06q07a | ml14a_EN_1.0 | Nothing has changed | |
| ml14a06q07b | ml14a_EN_1.0 | I have been retrained | |
| ml14a06q07c | ml14a_EN_1.0 | I got another job due to cancer | |
| ml14a06q07d | ml14a_EN_1.0 | I have quit working due to cancer | |
| ml14a06q07e | ml14a_EN_1.0 | I am working more hours due to cancer | |
| ml14a06q07f | ml14a_EN_1.0 | I am working less hours due to cancer | |
| ml14a06q07g | ml14a_EN_1.0 | I am disabled due to cancer | |
| ml14a06q07h | ml14a_EN_1.0 | I have retired early | |
| ml14a06q07i | ml14a_EN_1.0 | I have been fired due to cancer | |
| ml14a06q07e1 | ml14a_EN_1.0 | Number of hours more working | |
| ml14a06q07f1 | ml14a_EN_1.0 | Number of hours less working | |
| ml14a07q01 | ml14a_EN_1.0 | Heart condition | |
| ml14a07q04 | ml14a_EN_1.0 | Stroke | |
| ml14a07q07 | ml14a_EN_1.0 | High blood pressure | |
| ml14a07q10 | ml14a_EN_1.0 | Asthma, chronic bronchitis, COPD | |
| ml14a07q13 | ml14a_EN_1.0 | Diabetes | |
| ml14a07q16 | ml14a_EN_1.0 | Ulcer | |
| ml14a07q19 | ml14a_EN_1.0 | Kidney disease | |
| ml14a07q22 | ml14a_EN_1.0 | Liver disease | |
| ml14a07q25 | ml14a_EN_1.0 | Anemia / other blood condition | |
| ml14a07q28 | ml14a_EN_1.0 | Thyroid disease | |
| ml14a07q31 | ml14a_EN_1.0 | Depression | |
| ml14a07q34 | ml14a_EN_1.0 | Arthritis | |
| ml14a07q37 | ml14a_EN_1.0 | Backache | |
| ml14a07q40 | ml14a_EN_1.0 | Rheumatism | |
| ml14a07q41 | ml14a_EN_1.0 | Another medical issue | |
| ml14a09q01 | ml14a_EN_1.0 | Trouble doing strenous activities | |
| ml14a09q02 | ml14a_EN_1.0 | Trouble taking a long walk | |
| ml14a09q03 | ml14a_EN_1.0 | Trouble taking a short walk outside of the house | |
| ml14a09q04 | ml14a_EN_1.0 | Need to stay in bed or chair | |
| ml14a09q05 | ml14a_EN_1.0 | Need help eating, dressing, washing, toilet | |
| ml14a09q06 | ml14a_EN_1.0 | Limited in doing work or daily activities | |
| ml14a09q07 | ml14a_EN_1.0 | Limited in pursuing hobbies | |
| ml14a09q08 | ml14a_EN_1.0 | Short of breath | |
| ml14a09q09 | ml14a_EN_1.0 | Have had pain | |
| ml14a09q10 | ml14a_EN_1.0 | Need to rest | |
| ml14a09q11 | ml14a_EN_1.0 | Trouble sleeping | |
| ml14a09q12 | ml14a_EN_1.0 | Felt weak | |
| ml14a09q13 | ml14a_EN_1.0 | Lacked appetite | |
| ml14a09q14 | ml14a_EN_1.0 | Felt nauseated | |
| ml14a09q15 | ml14a_EN_1.0 | Vomited | |
| ml14a09q16 | ml14a_EN_1.0 | Been constipated | |
| ml14a09q17 | ml14a_EN_1.0 | Had diarrhea | |
| ml14a09q18 | ml14a_EN_1.0 | Tired | |
| ml14a09q19 | ml14a_EN_1.0 | Pain interefered with daily activities | |
| ml14a09q20 | ml14a_EN_1.0 | Difficulty concentrating | |
| ml14a09q21 | ml14a_EN_1.0 | Tense | |
| ml14a09q22 | ml14a_EN_1.0 | Worry | |
| ml14a09q23 | ml14a_EN_1.0 | Feel irritable | |
| ml14a09q24 | ml14a_EN_1.0 | Feel depressed | |
| ml14a09q25 | ml14a_EN_1.0 | Difficulty remembering things | |
| ml14a09q26 | ml14a_EN_1.0 | Interfered with family life | |
| ml14a09q27 | ml14a_EN_1.0 | Interfered with social activities | |
| ml14a09q28 | ml14a_EN_1.0 | Caused financial difficulties | |
| ml14a09q29 | ml14a_EN_1.0 | Rate overall health | |
| ml14a09q30 | ml14a_EN_1.0 | Rate quality of life | |
| ml14a09S01 | ml14a_EN_1.0 | Global health scale | |
| ml14a09S02 | ml14a_EN_1.0 | Physical functioning scale | |
| ml14a09S03 | ml14a_EN_1.0 | Role functioning scale | |
| ml14a09S04 | ml14a_EN_1.0 | Emotional functioning scale | |
| ml14a09S05 | ml14a_EN_1.0 | Cognitive functioning scale | |
| ml14a09S06 | ml14a_EN_1.0 | Social functioning scale | |
| ml14a09S07 | ml14a_EN_1.0 | Fatigue scale | |
| ml14a09S08 | ml14a_EN_1.0 | Nausea / Vomiting scale | |
| ml14a09S09 | ml14a_EN_1.0 | Pain scale | |
| ml14a09S10 | ml14a_EN_1.0 | Dyspnoea scale | |
| ml14a09S11 | ml14a_EN_1.0 | Insomnia scale | |
| ml14a09S12 | ml14a_EN_1.0 | Appetite loss scale | |
| ml14a09S13 | ml14a_EN_1.0 | Constipation scale | |
| ml14a09S14 | ml14a_EN_1.0 | Diarhoea scale | |
| ml14a09S15 | ml14a_EN_1.0 | Financial problems scale | |
| ml14a25q01 | ml14a_EN_1.0 | Unsure about future | |
| ml14a25q02 | ml14a_EN_1.0 | Time is running out | |
| ml14a25q03 | ml14a_EN_1.0 | Worry about cancer coming back | |
| ml14a25q04 | ml14a_EN_1.0 | Concerned about my health | |
| ml14a25q05 | ml14a_EN_1.0 | Worry about future | |
| ml14a25q06 | ml14a_EN_1.0 | Worry about new symptoms | |
| ml14a25q07 | ml14a_EN_1.0 | Worry about health | |
| ml14a50q01 | ml14a_EN_1.0 | Special person when in need | |
| ml14a50q02 | ml14a_EN_1.0 | Special person for joys and sorrows | |
| ml14a50q03 | ml14a_EN_1.0 | Family tries to help me | |
| ml14a50q04 | ml14a_EN_1.0 | Emotional help and support | |
| ml14a50q05 | ml14a_EN_1.0 | Source of comfort | |
| ml14a50q06 | ml14a_EN_1.0 | Friends try to help me | |
| ml14a50q07 | ml14a_EN_1.0 | Count on friends | |
| ml14a50q08 | ml14a_EN_1.0 | Talk about problems with family | |
| ml14a50q09 | ml14a_EN_1.0 | Friends for joys and sorrows | |
| ml14a50q10 | ml14a_EN_1.0 | Special person who cares | |
| ml14a50q11 | ml14a_EN_1.0 | Family helps to make decisions | |
| ml14a50q12 | ml14a_EN_1.0 | Talk about problems with friends | |
| ml14a50S01 | ml14a_EN_1.0 | Scale of perceived social support |