Retrospective informal care career > Main measurement
Publisher
CentERdata
Creator
Ellen Verbakel (Radboud University Nijmegen)
Created
Apr 07 2021
Description
This is a retrospective study into informal care careers. A screening questionnaire was first presented to the entire LISS panel about the provision of informal care, i.e. the provision of assistance to acquaintances with health problems. Based on the screening, a selection was made among the respondents who provided informal care. This codebook and data set concern the main measurement.
URL to resource
Panel
lissdata
Begin date
Mar 02 2020
| Name | English | Dutch |
|---|---|---|
| {intro} | In January you indicated in a questionnaire that you have, in the past, provided informal care to people known to you who had health issues… | In januari hebt u in een vragenlijst laten weten ooit in uw leven hulp te hebben gegeven aan bekenden met gezondheidsproblemen. In deze vra… |
| si008 | First we would like to know to whom you provided this informal care. Below we will ask you to indicate all the people known to you to whom … | We willen eerst weten aan wie u hulp hebt gegeven. We vragen u zo meteen om alle bekenden te noteren aan wie u tijdens uw leven ooit hulp h… |
| {v1_persoon1 - v1_persoon7} | Please enter below [if si008 = 1: the person / if si008 > 1 and si008 < 8: all persons / if si008 > 7: seven persons] known to you to whom … | Noteer hieronder [if si008 = 1: de bekende / if si008 > 1 and si008 < 8: alle bekenden / if si008 > 7: zeven bekenden] aan wie u tijdens uw… |
| {intro_meerdandrie} | We wish to ask you some questions about each person to whom you provided informal care. We will have extra questions about three of the peo… | Over elke persoon aan wie u hulp gaf, willen we u enkele vragen stellen. Over 3 personen worden meer vragen gesteld dan over de rest. De co… |
| {A.1.loopA_intro-A.7.loopA_intro} | [if round = 1: The following questions are about [person 1 ]. / if round > 1: We will now continue with [person 2/3/4/5/6/7 ].] | [if round = 1: De volgende vragen gaan over [persoon 1 ]. / if round > 1: We gaan nu verder met [persoon 2/3/4/5/6/7 ].] |
| si009, si108, si207, si306, si405, si504, si603 | Are you still providing care to [person 1/2/3/4/5/6/7] at present? | Helpt u [persoon 1/2/3/4/5/6/7] op dit moment nog steeds? |
| si010, si109, si208, si307, si406, si505, si604 | What [if si009-si603 = 1: is / if si009-si603 = 2: is/was] the nature of your relationship to [person 1/2/3/4/5/6/7]? He or she [if si009-s… | Wat [if si009-si603 = 1: is / if si009-si603 = 2: is/was] uw relatie tot [persoon 1/2/3/4/5/6/7]? Hij of zij [if si009-si603 = 1: is / if s… |
| si011, si110, si209, si308, si407, si506, si605 | Other, namely: | Anders, namelijk: |
| si012, si111, si210, si309, si408, si507, si606 | Is [person 1/2/3/4/5/6/7] male or female? | Is [persoon 1/2/3/4/5/6/7] een man of een vrouw? |
| si013-si014, si112-si113, si211-si212, si310-si311, si409-si410, si508-si509, si607-si608 | When did you start providing informal care to [person 1/2/3/4/5/6/7]? To determine this moment, it might help to recall important situation… | Wanneer begon u met het geven van hulp aan [persoon 1/2/3/4/5/6/7]? Om dit moment te bepalen, kan het helpen terug te denken aan belangrijk… |
| si015-si016, si114-si115, si213-si214, si312-si313, si411-si412, si510-si511, si609-si610 | When did you stop providing care to [person 1/2/3/4/5/6/7]? If you did provide care in some periods but not in other periods to [person 1/2… | Wanneer stopte u met het geven van hulp aan [persoon 1/2/3/4/5/6/7]? Als u in sommige periodes wel en in andere periodes geen hulp gaf aan … |
| si017, si116, si215, si314, si413, si512, si611 | For what reason did you stop providing care to [person 1/2/3/4/5/6/7]? Please indicate the most important reason. | Om welke reden bent u gestopt met het geven van hulp aan [persoon 1/2/3/4/5/6/7]? Noem de belangrijkste reden. |
| si018, si117, si216, si315, si414, si513, si612 | Another reason, namely: | Een andere reden, namelijk: |
| {A.1.loopB_intro-A.7.loopB_intro} | We now will ask you to indicate how much care and what kind of care you provided to [person 1/2/3/4/5/6/7] during the period that you provi… | We vragen u nu hoeveel en welk type hulp u gaf aan [persoon 1/2/3/4/5/6/7] tijdens de periode dat u hulp verleende. |
| si019-si2020, si118-si119, si217-si218, si316-si317, si415-si416, si514-si515, si613-si614 | For how many hours a week, on average, did you provide care... | Hoeveel uur per week besteedde u gemiddeld aan het geven van hulp... |
| si021-si623 | What tasks did you perform... ... at the start of the period in which you provided care to [person 1/2/3/4/5/6/7]? Multiple answers permitt… | Welke taken verrichtte u... ...aan het begin van de periode waarin u hulp gaf aan [persoon 1/2/3/4/5/6/7]? Meerdere antwoorden mogelijk |
| si030-si632 | What tasks did you perform... [if si009-si603 = 1: ...and what tasks do you perform now ? / if si009-si603 = 2: ... at the end of the perio… | Welke taken verrichtte u... [if si009-si603 = 1: ...en welke taken verricht u nu ? / if si009-si603 = 2: ...aan het einde van de periode wa… |
| si039-si638 | Who else provided care to [person 1/2/3/4/5/6/7] besides you... ... at the start of the period in which you provided care to [person 1/2/3/… | Van wie kreeg [persoon 1/2/3/4/5/6/7] nog meer hulp behalve van u... ...aan het begin van de periode waarin u hulp gaf aan [persoon 1/2/3/4… |
| si045-si644 | Who else provided care to [person 1/2/3/4/5/6/7] besides you... [if si009-si603 = 1: ...and who else does so now ? / if si009-si603 = 2: ..… | Van wie kreeg [persoon 1/2/3/4/5/6/7] nog meer hulp behalve van u... [if si009-si603 = 1: ...en van wie nu ? / if si009-si603 = 2: ...aan h… |
| si051-si052, si150-si151, si249-si250, si348-si349, si447-si448, si546-si547, si645-si646 | Where did [person 1/2/3/4/5/6/7] live... | Waar woonde [persoon 1/2/3/4/5/6/7]... |
| {A.1.v13_intro-A.7.v13_intro} | The following questions are about the limitations experienced by [person 1/2/3/4/5/6/7] during the period that you provided [if si012-si606… | De volgende vragen gaan over de beperkingen van [persoon 1/2/3/4/5/6/7] tijdens de periode dat u [if si012-si606 = 1: hem / if si012-si606 … |
| si053-si054, si152-si153, si251-si252, si350-si351, si449-si450, si548-si549, si647-si648 | To what extent did [person 1/2/3/4/5/6/7] have problems with regard to memory, to attention span, to thinking... | In hoeverre had [persoon 1/2/3/4/5/6/7] problemen met geheugen, aandacht en denken... |
| si055-si056, si154-si155, si253-si254, si352-si353, si451-si452, si550-si551, si649-si650 | To what extent did [person 1/2/3/4/5/6/7] suffer from psychological problems, such as depression or a phobia... | In hoeverre had [persoon 1/2/3/4/5/6/7] last van psychische problemen, zoals een depressie of angststoornis... |
| si057-si657 | Which everyday life activities was [person 1/2/3/4/5/6/7] unable to perform independently... ... at the start of the period in which you pr… | Welke activiteiten in het dagelijks leven kon [persoon 1/2/3/4/5/6/7] niet zelfstandig uitvoeren... ...aan het begin van de periode waarin … |
| si064-si664 | Which everyday life activities was [person 1/2/3/4/5/6/7] unable to perform independently... [if si009-si603 = 1: ...and how is that now ? … | Welke activiteiten in het dagelijks leven kon [persoon 1/2/3/4/5/6/7] niet zelfstandig uitvoeren... [if si009-si603 = 1: ...en hoe is dat n… |
| si071, si170, si269, si368, si467, si566, si665 | How old [if si009-si603 = 1: is / if si009-si603 = 2: was] [person 1/2/3/4/5/6/7] [if si009-si603 = 2: when you stopped providing informal … | Hoe oud [if si009-si603 = 1: is / if si009-si603 = 2: was] [persoon 1/2/3/4/5/6/7] [if si009-si603 = 2: toen u stopte met het geven van hul… |
| si072-si083, si171-si182, si270-si281, si369-si380, si468-si479, si567-si578, si666-si677 | We would like to hear about your experiences in providing informal care. Perhaps you had different experiences in the period [if si009-si60… | We zijn benieuwd naar uw ervaringen met het geven van hulp. Misschien wisselden uw ervaringen af tijdens de periode [if si009-si603 = 1: si… |
| si084, si183, si282, si381, si480, si579, si678 | [if si010-si604 = 1: My relationship with [person 1/2/3/4/5/6/7] [if si009-si603 = 1: is suffering / if si009-si603 = 2: suffered] on accou… | [if si010-si604 = 1: Mijn relatie met [persoon 1/2/3/4/5/6/7] heeft [if si009-si603 = 1: te lijden / if si009-si603 = 2: geleden] onder het… |
| si085-si088, si184-si187, si283-si286, si382-si385, si481-si484, si580-si583, si679-si682 | People can help others for various reasons. Can you indicate to what extent the following reasons [if si009-si603 = 1: play / if si009-si60… | Mensen kunnen om verschillende redenen anderen helpen. Kunt u aangeven in welke mate de volgende redenen voor u [if si009-si603 = 1: meespe… |
| {A.1.v19_intro-A.7.v19_intro} | The following questions are about your work situation [if si009-si603 = 1: since you’ve been providing care / if si009-si603 = 2: in the pe… | De volgende vragen gaan over uw werksituatie [if si009-si603 = 1: sinds u hulp geeft / if si009-si603 = 2: in de periode dat u hulp gaf] aa… |
| si089, si188, si287, si386, si485, si584, si683 | [if si009-si603 = 1: Have you had a paid job since providing care / if si009-si603 = 2: Did you have a paid job during the period that you … | Hebt u betaald werk gehad [if si009-si603 = 1: sinds u hulp geeft / if si009-si603 = 2: tijdens de periode dat u hulp gaf] aan [persoon 1/2… |
| si090, si189, si288, si387, si486, si585, si684 | Did you not have a paid job in that period, because you provided care to [person 1/2/3/4/5/6/7]? | Hebt u in die periode geen betaald werk gehad, omdat u hulp gaf aan [persoon 1/2/3/4/5/6/7]? |
| si091-si095, si190-si194, si289-si293, si388-si392, si487-si491, si586-si590, si685-si689 | Did your work situation change at any point because of the care you [if (si009-si603 = 1 and si089-si683 = 1): provide / if (si009-si603 = … | Is uw werksituatie op enig moment veranderd omdat u hulp [if (si009-si603 = 1 and si089-si683 = 1): geeft / if (si009-si603 = 2) or (si009-… |
| si096-si097, si195-si196, si294-si295, si393-si394, si492-si493, si591-si592, si690-si691 | Was your work affected by the consequences listed below because of the care you [if (si009-si603 = 1 and si089-si683 = 1): provide / if (si… | Hebt u onderstaande gevolgen op uw werk ervaren omdat u hulp [if (si009-si603 = 1 and si089-si683 = 1): geeft / if (si009-si603 = 2) or (si… |
| si098-si101, si197-si200, si296-si299, si395-si398, si494-si497, si593-si596, si692-si695 | To what extent do you agree with the following statements? Please consider the entire period [if si009-si603 = 1 and si089-si683 = 1: since… | In hoeverre bent u het eens met de volgende uitspraken? Denk daarbij aan de hele periode [if si009-si603 = 1 and si089-si683 = 1: sinds u h… |
| si102, si201, si300, si399, si498, si597, si696 | [if (si009-si603 = 1 and si089-si683 = 1): Does / if (si009-si603 = 2) or (si009-si603 = 1 and si089-si683 = 2): Did] your manager show any… | [if (si009-si603 = 1 and si089-si683 = 1): Krijgt / if (si009-si603 = 2) or (si009-si603 = 1 and si089-si683 = 2): Kreeg] u begrip van uw l… |
| si103, si202, si301, si400, si499, si598, si697 | [if (si009-si603 = 1 and si089-si683 = 1): Do / if (si009-si603 = 2) or (si009-si603 = 1 and si089-si683 = 2): Did] your direct colleagues … | [if (si009-si603 = 1 and si089-si683 = 1): Krijgt / if (si009-si603 = 2) or (si009-si603 = 1 and si089-si683 = 2): Kreeg] u begrip van uw d… |
| si104, si203, si302, si401, si500, si599, si698 | Please consider now how flexible your job [if (si009-si603 = 1 and si089-si683 = 1): is / if (si009-si603 = 2) or (si009-si603 = 1 and si08… | Denkt u nu aan hoe flexibel uw werk [if (si009-si603 = 1 and si089-si683 = 1): is / if (si009-si603 = 2) or (si009-si603 = 1 and si089-si68… |
| {A.1.v26_intro-A.7.v26_intro} | Finally, we wish to ask about the support that you may have received in providing care to [person 1/2/3/4/5/6/7]. | Tot slot vragen we u naar ondersteuning die u zelf mogelijk ontvangen hebt bij het geven van hulp aan [persoon 1/2/3/4/5/6/7]. |
| si105-si107, si204-si206, si303-si305, si402-si404, si501-si503, si600-si602, si699-si701 | How often did you personally make use of the following forms of support in providing care to [person 1/2/3/4/5/6/7]? | Hoe vaak hebt u zelf gebruik gemaakt van de volgende vormen van ondersteuning bij het geven van hulp aan [persoon 1/2/3/4/5/6/7]? |
| si702–si706 | Note: Please complete the questionnaire until you are returned to the starting screen. Only then will the system register the questionnaire… | NB: Maakt u alstublieft de vragenlijst af totdat u weer bij het beginscherm komt. Pas dan registreert het systeem de vragenlijst als volled… |
| Variable | Dataset | English | Dutch |
|---|---|---|---|
| nomem_encr | si20a | Number of the household member encrypted | |
| si20a_m | si20a | Year and month of the field work period | |
| si20a001 | si20a | Was block B completed for person 1 | |
| si20a002 | si20a | Was block B completed for person 2 | |
| si20a003 | si20a | Was block B completed for person 3 | |
| si20a004 | si20a | Was block B completed for person 4 | |
| si20a005 | si20a | Was block B completed for person 5 | |
| si20a006 | si20a | Was block B completed for person 6 | |
| si20a007 | si20a | Was block B completed for person 7 | |
| si20a008 | si20a | [...] Please take a moment to think about the people known to you to whom you have provided or are providing informal care on account of health issues. What is the total number of people? | |
| si20a009 | si20a | Are you still providing care to [person 1] at present? | |
| si20a010 | si20a | What [if si20a009 = 1: is / if si20a009 = 2: is/was] the nature of your relationship to [person 1]? He or she [if si20a009 = 1: is / if si20a009 = 2: is/was] my... | |
| si20a011 | si20a | What [if si20a009 = 1: is / if si20a009 = 2: is/was] the nature of your relationship to [person 1]? He or she [if si20a009 = 1: is / if si20a009 = 2: is/was] my... - Other, namely | |
| si20a012 | si20a | Is [person 1] male or female? | |
| si20a013 | si20a | When did you start providing informal care to [person 1]? Month | |
| si20a014 | si20a | When did you start providing informal care to [person 1]? Year | |
| si20a015 | si20a | When did you stop providing care to [person 1]? Month | |
| si20a016 | si20a | When did you stop providing care to [person 1]? Year | |
| si20a017 | si20a | For what reason did you stop providing care to [person 1]? Please indicate the most important reason. | |
| si20a018 | si20a | For what reason did you stop providing care to [person 1]? Please indicate the most important reason. - Another reason, namely | |
| si20a019 | si20a | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 1]? | |
| si20a020 | si20a | For how many hours a week, on average, did you provide care...[if si20a009 = 1: and how many hours do you spend now? / if si20a009 = 2: ...at the end of the period in which you provided care to [person 1]?] | |
| si20a021 | si20a | What tasks did you perform at the start of the period - Companionship or emotional support | |
| si20a022 | si20a | What tasks did you perform at the start of the period - Transportation | |
| si20a023 | si20a | What tasks did you perform at the start of the period - Assistance when visiting a doctor | |
| si20a024 | si20a | What tasks did you perform at the start of the period - Administrative help | |
| si20a025 | si20a | What tasks did you perform at the start of the period - Help with housekeeping | |
| si20a026 | si20a | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | |
| si20a027 | si20a | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a028 | si20a | What tasks did you perform at the start of the period - Arranging or coordinating care | |
| si20a029 | si20a | What tasks did you perform at the start of the period - Other care | |
| si20a030 | si20a | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Companionship or emotional support | |
| si20a031 | si20a | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Transportation | |
| si20a032 | si20a | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Assistance when visiting a doctor | |
| si20a033 | si20a | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Administrative help | |
| si20a034 | si20a | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Help with housekeeping | |
| si20a035 | si20a | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | |
| si20a036 | si20a | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a037 | si20a | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Arranging or coordinating care | |
| si20a038 | si20a | Tasks performed [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Other care | |
| si20a039 | si20a | Care of others at the start of the period - One or more other informal care givers | |
| si20a040 | si20a | Care of others at the start of the period - One or more volunteers | |
| si20a041 | si20a | Care of others at the start of the period - Home care workers or district nurses | |
| si20a042 | si20a | Care of others at the start of the period - A private help or domestic worker | |
| si20a043 | si20a | Care of others at the start of the period - Nursing staff in care institution or hospital | |
| si20a044 | si20a | Care of others at the start of the period - No one other than me | |
| si20a045 | si20a | Care of others [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - One or more other informal care givers | |
| si20a046 | si20a | Care of others [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - One or more volunteers | |
| si20a047 | si20a | Care of others [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Home care workers or district nurses | |
| si20a048 | si20a | Care of others [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - A private help or domestic worker | |
| si20a049 | si20a | Care of others [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - Nursing staff in care institution or hospital | |
| si20a050 | si20a | Care of others [if si20a009 = 1: now / if si20a009 = 2: at the end of the period] - No one other than me | |
| si20a051 | si20a | Where did [person 1] live...at the start of the period in which you provided care to [person 1]? | |
| si20a052 | si20a | Where did [person 1] live...[if si20a009 = 1: ...and where does [person 1] live now? / if si20a009 = 2: ... at the end of the period in which you provided care to [person 1]?] | |
| si20a053 | si20a | To what extent did [person 1] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 1]? | |
| si20a054 | si20a | To what extent did [person 1] have problems with regard to memory, to attention span, to thinking...[if si20a009 = 1: ...and how is that now? / if si20a009 = 2: ... at the end of the period in which you provided care to [person 1]?] | |
| si20a055 | si20a | To what extent did [person 1] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 1]? | |
| si20a056 | si20a | To what extent did [person 1] suffer from psychological problems, such as depression or a phobia...[if si20a009 = 1: ...and how is that now? / if si20a009 = 2: ... at the end of the period in which you provided care to [person 1]?] | |
| si20a057 | si20a | Tasks that [person 1] was unable to perform independently at the start of the period - Walking | |
| si20a058 | si20a | Tasks that [person 1] was unable to perform independently at the start of the period - Dressing | |
| si20a059 | si20a | Tasks that [person 1] was unable to perform independently at the start of the period - Eating | |
| si20a060 | si20a | Tasks that [person 1] was unable to perform independently at the start of the period - Housekeeping | |
| si20a061 | si20a | Tasks that [person 1] was unable to perform independently at the start of the period - Grocery shopping | |
| si20a062 | si20a | Tasks that [person 1] was unable to perform independently at the start of the period - Preparing a meal | |
| si20a063 | si20a | Tasks that [person 1] was unable to perform independently at the start of the period - No problems with these activities | |
| si20a064 | si20a | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - Walking | |
| si20a065 | si20a | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - Dressing | |
| si20a066 | si20a | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - Eating | |
| si20a067 | si20a | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - Housekeeping | |
| si20a068 | si20a | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - Grocery shopping | |
| si20a069 | si20a | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - Preparing a meal | |
| si20a070 | si20a | Tasks that [person 1] is/was unable to perform independently [if si20a009=1: now / if si20a009=2: at the end of the period] - No problems with these activities | |
| si20a071 | si20a | How old [if si20a009 = 1: is / if si20a009 = 2: was] [person 1] [if si20a009 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | |
| si20a072 | si20a | I [if si20a009 = 1: have / if si20a009 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 1]. | |
| si20a073 | si20a | Caring for [person 1] [if si20a009 = 1: gives / if si20a009 = 2: gave] me a good feeling. | |
| si20a074 | si20a | I [if si20a009 = 1: find / if si20a009 = 2: found] it difficult to deal with [person 1], for instance because our relationship [if si20a009 = 1: has / if si20a009 = 2: had] changed or because [...] | |
| si20a075 | si20a | My contact with friends and acquaintances has reduced as a result of my providing care to [person 1]. | |
| si20a076 | si20a | By providing care, I [if si20a009 = 1: learn / if si20a009 = 2: learned] new things. | |
| si20a077 | si20a | I [if si20a009 = 1: find / if si20a009 = 2: found] it taxing to provide care to [person 1]. | |
| si20a078 | si20a | [person 1] and I have grown closer. | |
| si20a079 | si20a | My own choices in life have been restricted by the care need of [person 1]. | |
| si20a080 | si20a | My social environment [if si20a009 = 1: appreciates / if si20a009 = 2: appreciated] me for helping [person 1]. | |
| si20a081 | si20a | I [if si20a009 = 1: experience / if si20a009 = 2: experienced] loneliness as a result of my care activity. | |
| si20a082 | si20a | My social environment [if si20a009 = 1: helps / if si20a009 = 2: helped] me by taking over some of my tasks, other than the care for [person 1]. | |
| si20a083 | si20a | I [if si20a009 = 1: experience / if si20a009 = 2: experienced] the care for [person 1] as a duty. | |
| si20a084 | si20a | if si20a010 = 1: My relationship with [person 1] [if si20a009 = 1: is suffering / if si20a009 = 2: suffered] on account of my providing care to [him/her] / if si20a010 ≠1: My relationship with my (then) partner [...] | |
| si20a085 | si20a | I [if si20a009 = 1: feel / if si20a009 = 2: felt] that it’s the right thing to do. | |
| si20a086 | si20a | There [if si20a009 = 1: isn’t / if si20a009 = 2: wasn’t] anyone else available. | |
| si20a087 | si20a | I [if si20a009 = 1: enjoy / if si20a009 = 2: enjoyed] caring for someone. | |
| si20a088 | si20a | It [if si20a009 = 1: is / if si20a009 = 2: was] expected of me. | |
| si20a089 | si20a | [if si20a009 = 1: Have you had a paid job since providing care / if si20a009 = 2: Did you have a paid job during the period that you provided care] to [person 1]? | |
| si20a090 | si20a | Did you not have a paid job in that period, because you provided care to [person 1]? | |
| si20a091 | si20a | Did work situation change because of providing care you - Did you…start working less hours? | |
| si20a092 | si20a | Did work situation change because of providing care you - Did you…stop working? | |
| si20a093 | si20a | Did work situation change because of providing care you - Did you…start doing different work? | |
| si20a094 | si20a | Did work situation change because of providing care you - Did you…start working in self-employment? | |
| si20a095 | si20a | Did work situation change because of providing care you - Did you…stop attending an education program? | |
| si20a096 | si20a | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | |
| si20a097 | si20a | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | |
| si20a098 | si20a | I [if (si20a009 = 1 and si20a089 = 1): find / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): found] it stressful to combine my work with providing care to [person 1]. | |
| si20a099 | si20a | By caring for [person 1], I have developed skills that [if (si20a009 = 1 and si20a089 = 1): make / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): made] me better at my work. | |
| si20a100 | si20a | I [if (si20a009 = 1 and si20a089 = 1): find / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): found] my work a relief for the distraction it [...] from assisting [person 1]. | |
| si20a101 | si20a | I often [if (si20a009 = 1 and si20a089 = 1): feel / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): felt] that caring for [person 1] [...] from my performance as an employee. | |
| si20a102 | si20a | [if (si20a009 = 1 and si20a089 = 1): Does / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): Did] your manager show any understanding with regard to your caring for [person 1]? [...] | |
| si20a103 | si20a | [if (si20a009 = 1 and si20a089 = 1): Do / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 1]? | |
| si20a104 | si20a | [...] To what extent [if (si20a009 = 1 and si20a089 = 1): can / if (si20a009 = 2) or (si20a009 = 1 and si20a089 = 2): could] you arrange your work flexibly to combine the care for [person 1] with your work [...]? | |
| si20a105 | si20a | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | |
| si20a106 | si20a | Forms of support while providing care - Provisions that temporarily [if si20a009 = 1: take / if si20a009 = 2: took] over the care for [person 1] (e.g. day activities, night care, volunteer care). | |
| si20a107 | si20a | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | |
| si20a108 | si20a | Are you still providing care to [person 2] at present? | |
| si20a109 | si20a | What [if si20a108 = 1: is / if si20a108 = 2: is/was] the nature of your relationship to [person 2]? He or she [if si20a108 = 1: is / if si20a108 = 2: is/was] my... | |
| si20a110 | si20a | What [if si20a108 = 1: is / if si20a108 = 2: is/was] the nature of your relationship to [person 2]? He or she [if si20a108 = 1: is / if si20a108 = 2: is/was] my... - Other, namely | |
| si20a111 | si20a | Is [person 2] male or female? | |
| si20a112 | si20a | When did you start providing informal care to [person 2]? Month | |
| si20a113 | si20a | When did you start providing informal care to [person 2]? Year | |
| si20a114 | si20a | When did you stop providing care to [person 2]? Month | |
| si20a115 | si20a | When did you stop providing care to [person 2]? Year | |
| si20a116 | si20a | For what reason did you stop providing care to [person 2]? Please indicate the most important reason. | |
| si20a117 | si20a | For what reason did you stop providing care to [person 2]? Please indicate the most important reason. - Another reason, namely | |
| si20a118 | si20a | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 2]? | |
| si20a119 | si20a | For how many hours a week, on average, did you provide care...[if si20a108 = 1: and how many hours do you spend now? / if si20a108 = 2: ...at the end of the period in which you provided care to [person 2]?] | |
| si20a120 | si20a | What tasks did you perform at the start of the period - Companionship or emotional support | |
| si20a121 | si20a | What tasks did you perform at the start of the period - Transportation | |
| si20a122 | si20a | What tasks did you perform at the start of the period - Assistance when visiting a doctor | |
| si20a123 | si20a | What tasks did you perform at the start of the period - Administrative help | |
| si20a124 | si20a | What tasks did you perform at the start of the period - Help with housekeeping | |
| si20a125 | si20a | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | |
| si20a126 | si20a | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a127 | si20a | What tasks did you perform at the start of the period - Arranging or coordinating care | |
| si20a128 | si20a | What tasks did you perform at the start of the period - Other care | |
| si20a129 | si20a | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Companionship or emotional support | |
| si20a130 | si20a | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Transportation | |
| si20a131 | si20a | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Assistance when visiting a doctor | |
| si20a132 | si20a | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Administrative help | |
| si20a133 | si20a | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Help with housekeeping | |
| si20a134 | si20a | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | |
| si20a135 | si20a | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a136 | si20a | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Arranging or coordinating care | |
| si20a137 | si20a | Tasks performed [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Other care | |
| si20a138 | si20a | Care of others at the start of the period - One or more other informal care givers | |
| si20a139 | si20a | Care of others at the start of the period - One or more volunteers | |
| si20a140 | si20a | Care of others at the start of the period - Home care workers or district nurses | |
| si20a141 | si20a | Care of others at the start of the period - A private help or domestic worker | |
| si20a142 | si20a | Care of others at the start of the period - Nursing staff in care institution or hospital | |
| si20a143 | si20a | Care of others at the start of the period - No one other than me | |
| si20a144 | si20a | Care of others [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - One or more other informal care givers | |
| si20a145 | si20a | Care of others [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - One or more volunteers | |
| si20a146 | si20a | Care of others [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Home care workers or district nurses | |
| si20a147 | si20a | Care of others [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - A private help or domestic worker | |
| si20a148 | si20a | Care of others [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - Nursing staff in care institution or hospital | |
| si20a149 | si20a | Care of others [if si20a108 = 1: now / if si20a108 = 2: at the end of the period] - No one other than me | |
| si20a150 | si20a | Where did [person 2] live...at the start of the period in which you provided care to [person 2]? | |
| si20a151 | si20a | Where did [person 2] live...[if si20a108 = 1: ...and where does [person 2] live now? / if si20a108 = 2: ... at the end of the period in which you provided care to [person 2]?] | |
| si20a152 | si20a | To what extent did [person 2] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 2]? | |
| si20a153 | si20a | To what extent did [person 2] have problems with regard to memory, to attention span, to thinking...[if si20a108 = 1: ...and how is that now? / if si20a108 = 2: ... at the end of the period in which you provided care to [person 2]?] | |
| si20a154 | si20a | To what extent did [person 2] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 2]? | |
| si20a155 | si20a | To what extent did [person 2] suffer from psychological problems, such as depression or a phobia...[if si20a108 = 1: ...and how is that now? / if si20a108 = 2: ... at the end of the period in which you provided care to [person 2]?] | |
| si20a156 | si20a | Tasks that [person 2] was unable to perform independently at the start of the period - Walking | |
| si20a157 | si20a | Tasks that [person 2] was unable to perform independently at the start of the period - Dressing | |
| si20a158 | si20a | Tasks that [person 2] was unable to perform independently at the start of the period - Eating | |
| si20a159 | si20a | Tasks that [person 2] was unable to perform independently at the start of the period - Housekeeping | |
| si20a160 | si20a | Tasks that [person 2] was unable to perform independently at the start of the period - Grocery shopping | |
| si20a161 | si20a | Tasks that [person 2] was unable to perform independently at the start of the period - Preparing a meal | |
| si20a162 | si20a | Tasks that [person 2] was unable to perform independently at the start of the period - No problems with these activities | |
| si20a163 | si20a | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - Walking | |
| si20a164 | si20a | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - Dressing | |
| si20a165 | si20a | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - Eating | |
| si20a166 | si20a | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - Housekeeping | |
| si20a167 | si20a | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - Grocery shopping | |
| si20a168 | si20a | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - Preparing a meal | |
| si20a169 | si20a | Tasks that [person 2] is/was unable to perform independently [if si20a108=1: now / if si20a108=2: at the end of the period] - No problems with these activities | |
| si20a170 | si20a | How old [if si20a108 = 1: is / if si20a108 = 2: was] [person 2] [if si20a108 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | |
| si20a171 | si20a | I [if si20a108 = 1: have / if si20a108 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 2]. | |
| si20a172 | si20a | Caring for [person 2] [if si20a108 = 1: gives / if si20a108 = 2: gave] me a good feeling. | |
| si20a173 | si20a | I [if si20a108 = 1: find / if si20a108 = 2: found] it difficult to deal with [person 2], for instance because our relationship [if si20a108 = 1: has / if si20a108 = 2: had] changed or because [...] | |
| si20a174 | si20a | My contact with friends and acquaintances has reduced as a result of my providing care to [person 2]. | |
| si20a175 | si20a | By providing care, I [if si20a108 = 1: learn / if si20a108 = 2: learned] new things. | |
| si20a176 | si20a | I [if si20a108 = 1: find / if si20a108 = 2: found] it taxing to provide care to [person 2]. | |
| si20a177 | si20a | [person 2] and I have grown closer. | |
| si20a178 | si20a | My own choices in life have been restricted by the care need of [person 2]. | |
| si20a179 | si20a | My social environment [if si20a108 = 1: appreciates / if si20a108 = 2: appreciated] me for helping [person 2]. | |
| si20a180 | si20a | I [if si20a108 = 1: experience / if si20a108 = 2: experienced] loneliness as a result of my care activity. | |
| si20a181 | si20a | My social environment [if si20a108 = 1: helps / if si20a108 = 2: helped] me by taking over some of my tasks, other than the care for [person 2]. | |
| si20a182 | si20a | I [if si20a108 = 1: experience / if si20a108 = 2: experienced] the care for [person 2] as a duty. | |
| si20a183 | si20a | if si20a109 = 1: My relationship with [person 2] [if si20a108 = 1: is suffering / if si20a108 = 2: suffered] on account of my providing care to [him/her] / if si20a109 ≠1: My relationship with my (then) partner [...] | |
| si20a184 | si20a | I [if si20a108 = 1: feel / if si20a108 = 2: felt] that it’s the right thing to do. | |
| si20a185 | si20a | There [if si20a108 = 1: isn’t / if si20a108 = 2: wasn’t] anyone else available. | |
| si20a186 | si20a | I [if si20a108 = 1: enjoy / if si20a108 = 2: enjoyed] caring for someone. | |
| si20a187 | si20a | It [if si20a108 = 1: is / if si20a108 = 2: was] expected of me. | |
| si20a188 | si20a | [if si20a108 = 1: Have you had a paid job since providing care / if si20a108 = 2: Did you have a paid job during the period that you provided care] to [person 2]? | |
| si20a189 | si20a | Did you not have a paid job in that period, because you provided care to [person 2]? | |
| si20a190 | si20a | Did work situation change because of providing care you - Did you…start working less hours? | |
| si20a191 | si20a | Did work situation change because of providing care you - Did you…stop working? | |
| si20a192 | si20a | Did work situation change because of providing care you - Did you…start doing different work? | |
| si20a193 | si20a | Did work situation change because of providing care you - Did you…start working in self-employment? | |
| si20a194 | si20a | Did work situation change because of providing care you - Did you…stop attending an education program? | |
| si20a195 | si20a | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | |
| si20a196 | si20a | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | |
| si20a197 | si20a | I [if (si20a108 = 1 and si20a188 = 1): find / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): found] it stressful to combine my work with providing care to [person 2]. | |
| si20a198 | si20a | By caring for [person 2], I have developed skills that [if (si20a108 = 1 and si20a188 = 1): make / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): made] me better at my work. | |
| si20a199 | si20a | I [if (si20a108 = 1 and si20a188 = 1): find / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): found] my work a relief for the distraction it [...] from assisting [person 2]. | |
| si20a200 | si20a | I often [if (si20a108 = 1 and si20a188 = 1): feel / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): felt] that caring for [person 2] [...] from my performance as an employee. | |
| si20a201 | si20a | [if (si20a108 = 1 and si20a188 = 1): Does / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): Did] your manager show any understanding with regard to your caring for [person 2]? [...] | |
| si20a202 | si20a | [if (si20a108 = 1 and si20a188 = 1): Do / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 2]? | |
| si20a203 | si20a | [...] To what extent [if (si20a108 = 1 and si20a188 = 1): can / if (si20a108 = 2) or (si20a108 = 1 and si20a188 = 2): could] you arrange your work flexibly to combine the care for [person 2] with your work [...]? | |
| si20a204 | si20a | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | |
| si20a205 | si20a | Forms of support while providing care - Provisions that temporarily [if si20a108 = 1: take / if si20a108 = 2: took] over the care for [person 2] (e.g. day activities, night care, volunteer care). | |
| si20a206 | si20a | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | |
| si20a207 | si20a | Are you still providing care to [person 3] at present? | |
| si20a208 | si20a | What [if si20a207 = 1: is / if si20a207 = 2: is/was] the nature of your relationship to [person 3]? He or she [if si20a207 = 1: is / if si20a207 = 2: is/was] my... | |
| si20a209 | si20a | What [if si20a207 = 1: is / if si20a207 = 2: is/was] the nature of your relationship to [person 3]? He or she [if si20a207 = 1: is / if si20a207 = 2: is/was] my... - Other, namely | |
| si20a210 | si20a | Is [person 3] male or female? | |
| si20a211 | si20a | When did you start providing informal care to [person 3]? Month | |
| si20a212 | si20a | When did you start providing informal care to [person 3]? Year | |
| si20a213 | si20a | When did you stop providing care to [person 3]? Month | |
| si20a214 | si20a | When did you stop providing care to [person 3]? Year | |
| si20a215 | si20a | For what reason did you stop providing care to [person 3]? Please indicate the most important reason. | |
| si20a216 | si20a | For what reason did you stop providing care to [person 3]? Please indicate the most important reason. - Another reason, namely | |
| si20a217 | si20a | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 3]? | |
| si20a218 | si20a | For how many hours a week, on average, did you provide care...[if si20a207 = 1: and how many hours do you spend now? / if si20a207 = 2: ...at the end of the period in which you provided care to [person 3]?] | |
| si20a219 | si20a | What tasks did you perform at the start of the period - Companionship or emotional support | |
| si20a220 | si20a | What tasks did you perform at the start of the period - Transportation | |
| si20a221 | si20a | What tasks did you perform at the start of the period - Assistance when visiting a doctor | |
| si20a222 | si20a | What tasks did you perform at the start of the period - Administrative help | |
| si20a223 | si20a | What tasks did you perform at the start of the period - Help with housekeeping | |
| si20a224 | si20a | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | |
| si20a225 | si20a | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a226 | si20a | What tasks did you perform at the start of the period - Arranging or coordinating care | |
| si20a227 | si20a | What tasks did you perform at the start of the period - Other care | |
| si20a228 | si20a | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Companionship or emotional support | |
| si20a229 | si20a | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Transportation | |
| si20a230 | si20a | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Assistance when visiting a doctor | |
| si20a231 | si20a | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Administrative help | |
| si20a232 | si20a | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Help with housekeeping | |
| si20a233 | si20a | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | |
| si20a234 | si20a | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a235 | si20a | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Arranging or coordinating care | |
| si20a236 | si20a | Tasks performed [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Other care | |
| si20a237 | si20a | Care of others at the start of the period - One or more other informal care givers | |
| si20a238 | si20a | Care of others at the start of the period - One or more volunteers | |
| si20a239 | si20a | Care of others at the start of the period - Home care workers or district nurses | |
| si20a240 | si20a | Care of others at the start of the period - A private help or domestic worker | |
| si20a241 | si20a | Care of others at the start of the period - Nursing staff in care institution or hospital | |
| si20a242 | si20a | Care of others at the start of the period - No one other than me | |
| si20a243 | si20a | Care of others [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - One or more other informal care givers | |
| si20a244 | si20a | Care of others [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - One or more volunteers | |
| si20a245 | si20a | Care of others [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Home care workers or district nurses | |
| si20a246 | si20a | Care of others [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - A private help or domestic worker | |
| si20a247 | si20a | Care of others [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - Nursing staff in care institution or hospital | |
| si20a248 | si20a | Care of others [if si20a207 = 1: now / if si20a207 = 2: at the end of the period] - No one other than me | |
| si20a249 | si20a | Where did [person 3] live...at the start of the period in which you provided care to [person 3]? | |
| si20a250 | si20a | Where did [person 3] live...[if si20a207 = 1: ...and where does [person 3] live now? / if si20a207 = 2: ... at the end of the period in which you provided care to [person 3]?] | |
| si20a251 | si20a | To what extent did [person 3] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 3]? | |
| si20a252 | si20a | To what extent did [person 3] have problems with regard to memory, to attention span, to thinking...[if si20a207 = 1: ...and how is that now? / if si20a207 = 2: ... at the end of the period in which you provided care to [person 3]?] | |
| si20a253 | si20a | To what extent did [person 3] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 3]? | |
| si20a254 | si20a | To what extent did [person 3] suffer from psychological problems, such as depression or a phobia...[if si20a207 = 1: ...and how is that now? / if si20a207 = 2: ... at the end of the period in which you provided care to [person 3]?] | |
| si20a255 | si20a | Tasks that [person 3] was unable to perform independently at the start of the period - Walking | |
| si20a256 | si20a | Tasks that [person 3] was unable to perform independently at the start of the period - Dressing | |
| si20a257 | si20a | Tasks that [person 3] was unable to perform independently at the start of the period - Eating | |
| si20a258 | si20a | Tasks that [person 3] was unable to perform independently at the start of the period - Housekeeping | |
| si20a259 | si20a | Tasks that [person 3] was unable to perform independently at the start of the period - Grocery shopping | |
| si20a260 | si20a | Tasks that [person 3] was unable to perform independently at the start of the period - Preparing a meal | |
| si20a261 | si20a | Tasks that [person 3] was unable to perform independently at the start of the period - No problems with these activities | |
| si20a262 | si20a | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - Walking | |
| si20a263 | si20a | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - Dressing | |
| si20a264 | si20a | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - Eating | |
| si20a265 | si20a | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - Housekeeping | |
| si20a266 | si20a | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - Grocery shopping | |
| si20a267 | si20a | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - Preparing a meal | |
| si20a268 | si20a | Tasks that [person 3] is/was unable to perform independently [if si20a207=1: now / if si20a207=2: at the end of the period] - No problems with these activities | |
| si20a269 | si20a | How old [if si20a207 = 1: is / if si20a207 = 2: was] [person 3] [if si20a207 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | |
| si20a270 | si20a | I [if si20a207 = 1: have / if si20a207 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 3]. | |
| si20a271 | si20a | Caring for [person 3] [if si20a207 = 1: gives / if si20a207 = 2: gave] me a good feeling. | |
| si20a272 | si20a | I [if si20a207 = 1: find / if si20a207 = 2: found] it difficult to deal with [person 3], for instance because our relationship [if si20a207 = 1: has / if si20a207 = 2: had] changed or because [...] | |
| si20a273 | si20a | My contact with friends and acquaintances has reduced as a result of my providing care to [person 3]. | |
| si20a274 | si20a | By providing care, I [if si20a207 = 1: learn / if si20a207 = 2: learned] new things. | |
| si20a275 | si20a | I [if si20a207 = 1: find / if si20a207 = 2: found] it taxing to provide care to [person 3]. | |
| si20a276 | si20a | [person 3] and I have grown closer. | |
| si20a277 | si20a | My own choices in life have been restricted by the care need of [person 3]. | |
| si20a278 | si20a | My social environment [if si20a207 = 1: appreciates / if si20a207 = 2: appreciated] me for helping [person 3]. | |
| si20a279 | si20a | I [if si20a207 = 1: experience / if si20a207 = 2: experienced] loneliness as a result of my care activity. | |
| si20a280 | si20a | My social environment [if si20a207 = 1: helps / if si20a207 = 2: helped] me by taking over some of my tasks, other than the care for [person 3]. | |
| si20a281 | si20a | I [if si20a207 = 1: experience / if si20a207 = 2: experienced] the care for [person 3] as a duty. | |
| si20a282 | si20a | if si20a208 = 1: My relationship with [person 3] [if si20a207 = 1: is suffering / if si20a207 = 2: suffered] on account of my providing care to [him/her] / if si20a208 ≠1: My relationship with my (then) partner [...] | |
| si20a283 | si20a | I [if si20a207 = 1: feel / if si20a207 = 2: felt] that it’s the right thing to do. | |
| si20a284 | si20a | There [if si20a207 = 1: isn’t / if si20a207 = 2: wasn’t] anyone else available. | |
| si20a285 | si20a | I [if si20a207 = 1: enjoy / if si20a207 = 2: enjoyed] caring for someone. | |
| si20a286 | si20a | It [if si20a207 = 1: is / if si20a207 = 2: was] expected of me. | |
| si20a287 | si20a | [if si20a207 = 1: Have you had a paid job since providing care / if si20a207 = 2: Did you have a paid job during the period that you provided care] to [person 3]? | |
| si20a288 | si20a | Did you not have a paid job in that period, because you provided care to [person 3]? | |
| si20a289 | si20a | Did work situation change because of providing care you - Did you…start working less hours? | |
| si20a290 | si20a | Did work situation change because of providing care you - Did you…stop working? | |
| si20a291 | si20a | Did work situation change because of providing care you - Did you…start doing different work? | |
| si20a292 | si20a | Did work situation change because of providing care you - Did you…start working in self-employment? | |
| si20a293 | si20a | Did work situation change because of providing care you - Did you…stop attending an education program? | |
| si20a294 | si20a | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | |
| si20a295 | si20a | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | |
| si20a296 | si20a | I [if (si20a207 = 1 and si20a287 = 1): find / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): found] it stressful to combine my work with providing care to [person 3]. | |
| si20a297 | si20a | By caring for [person 3], I have developed skills that [if (si20a207 = 1 and si20a287 = 1): make / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): made] me better at my work. | |
| si20a298 | si20a | I [if (si20a207 = 1 and si20a287 = 1): find / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): found] my work a relief for the distraction it [...] from assisting [person 3]. | |
| si20a299 | si20a | I often [if (si20a207 = 1 and si20a287 = 1): feel / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): felt] that caring for [person 3] [...] from my performance as an employee. | |
| si20a300 | si20a | [if (si20a207 = 1 and si20a287 = 1): Does / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): Did] your manager show any understanding with regard to your caring for [person 3]? [...] | |
| si20a301 | si20a | [if (si20a207 = 1 and si20a287 = 1): Do / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 3]? | |
| si20a302 | si20a | [...] To what extent [if (si20a207 = 1 and si20a287 = 1): can / if (si20a207 = 2) or (si20a207 = 1 and si20a287 = 2): could] you arrange your work flexibly to combine the care for [person 3] with your work [...]? | |
| si20a303 | si20a | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | |
| si20a304 | si20a | Forms of support while providing care - Provisions that temporarily [if si20a207 = 1: take / if si20a207 = 2: took] over the care for [person 3] (e.g. day activities, night care, volunteer care). | |
| si20a305 | si20a | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | |
| si20a306 | si20a | Are you still providing care to [person 4] at present? | |
| si20a307 | si20a | What [if si20a306 = 1: is / if si20a306 = 2: is/was] the nature of your relationship to [person 4]? He or she [if si20a306 = 1: is / if si20a306 = 2: is/was] my... | |
| si20a308 | si20a | What [if si20a306 = 1: is / if si20a306 = 2: is/was] the nature of your relationship to [person 4]? He or she [if si20a306 = 1: is / if si20a306 = 2: is/was] my... - Other, namely | |
| si20a309 | si20a | Is [person 4] male or female? | |
| si20a310 | si20a | When did you start providing informal care to [person 4]? Month | |
| si20a311 | si20a | When did you start providing informal care to [person 4]? Year | |
| si20a312 | si20a | When did you stop providing care to [person 4]? Month | |
| si20a313 | si20a | When did you stop providing care to [person 4]? Year | |
| si20a314 | si20a | For what reason did you stop providing care to [person 4]? Please indicate the most important reason. | |
| si20a315 | si20a | For what reason did you stop providing care to [person 4]? Please indicate the most important reason. - Another reason, namely | |
| si20a316 | si20a | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 4]? | |
| si20a317 | si20a | For how many hours a week, on average, did you provide care...[if si20a306 = 1: and how many hours do you spend now? / if si20a306 = 2: ...at the end of the period in which you provided care to [person 4]?] | |
| si20a318 | si20a | What tasks did you perform at the start of the period - Companionship or emotional support | |
| si20a319 | si20a | What tasks did you perform at the start of the period - Transportation | |
| si20a320 | si20a | What tasks did you perform at the start of the period - Assistance when visiting a doctor | |
| si20a321 | si20a | What tasks did you perform at the start of the period - Administrative help | |
| si20a322 | si20a | What tasks did you perform at the start of the period - Help with housekeeping | |
| si20a323 | si20a | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | |
| si20a324 | si20a | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a325 | si20a | What tasks did you perform at the start of the period - Arranging or coordinating care | |
| si20a326 | si20a | What tasks did you perform at the start of the period - Other care | |
| si20a327 | si20a | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Companionship or emotional support | |
| si20a328 | si20a | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Transportation | |
| si20a329 | si20a | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Assistance when visiting a doctor | |
| si20a330 | si20a | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Administrative help | |
| si20a331 | si20a | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Help with housekeeping | |
| si20a332 | si20a | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | |
| si20a333 | si20a | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a334 | si20a | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Arranging or coordinating care | |
| si20a335 | si20a | Tasks performed [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Other care | |
| si20a336 | si20a | Care of others at the start of the period - One or more other informal care givers | |
| si20a337 | si20a | Care of others at the start of the period - One or more volunteers | |
| si20a338 | si20a | Care of others at the start of the period - Home care workers or district nurses | |
| si20a339 | si20a | Care of others at the start of the period - A private help or domestic worker | |
| si20a340 | si20a | Care of others at the start of the period - Nursing staff in care institution or hospital | |
| si20a341 | si20a | Care of others at the start of the period - No one other than me | |
| si20a342 | si20a | Care of others [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - One or more other informal care givers | |
| si20a343 | si20a | Care of others [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - One or more volunteers | |
| si20a344 | si20a | Care of others [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Home care workers or district nurses | |
| si20a345 | si20a | Care of others [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - A private help or domestic worker | |
| si20a346 | si20a | Care of others [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - Nursing staff in care institution or hospital | |
| si20a347 | si20a | Care of others [if si20a306 = 1: now / if si20a306 = 2: at the end of the period] - No one other than me | |
| si20a348 | si20a | Where did [person 4] live...at the start of the period in which you provided care to [person 4]? | |
| si20a349 | si20a | Where did [person 4] live...[if si20a306 = 1: ...and where does [person 4] live now? / if si20a306 = 2: ... at the end of the period in which you provided care to [person 4]?] | |
| si20a350 | si20a | To what extent did [person 4] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 4]? | |
| si20a351 | si20a | To what extent did [person 4] have problems with regard to memory, to attention span, to thinking...[if si20a306 = 1: ...and how is that now? / if si20a306 = 2: ... at the end of the period in which you provided care to [person 4]?] | |
| si20a352 | si20a | To what extent did [person 4] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 4]? | |
| si20a353 | si20a | To what extent did [person 4] suffer from psychological problems, such as depression or a phobia...[if si20a306 = 1: ...and how is that now? / if si20a306 = 2: ... at the end of the period in which you provided care to [person 4]?] | |
| si20a354 | si20a | Tasks that [person 4] was unable to perform independently at the start of the period - Walking | |
| si20a355 | si20a | Tasks that [person 4] was unable to perform independently at the start of the period - Dressing | |
| si20a356 | si20a | Tasks that [person 4] was unable to perform independently at the start of the period - Eating | |
| si20a357 | si20a | Tasks that [person 4] was unable to perform independently at the start of the period - Housekeeping | |
| si20a358 | si20a | Tasks that [person 4] was unable to perform independently at the start of the period - Grocery shopping | |
| si20a359 | si20a | Tasks that [person 4] was unable to perform independently at the start of the period - Preparing a meal | |
| si20a360 | si20a | Tasks that [person 4] was unable to perform independently at the start of the period - No problems with these activities | |
| si20a361 | si20a | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - Walking | |
| si20a362 | si20a | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - Dressing | |
| si20a363 | si20a | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - Eating | |
| si20a364 | si20a | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - Housekeeping | |
| si20a365 | si20a | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - Grocery shopping | |
| si20a366 | si20a | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - Preparing a meal | |
| si20a367 | si20a | Tasks that [person 4] is/was unable to perform independently [if si20a306=1: now / if si20a306=2: at the end of the period] - No problems with these activities | |
| si20a368 | si20a | How old [if si20a306 = 1: is / if si20a306 = 2: was] [person 4] [if si20a306 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | |
| si20a369 | si20a | I [if si20a306 = 1: have / if si20a306 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 4]. | |
| si20a370 | si20a | Caring for [person 4] [if si20a306 = 1: gives / if si20a306 = 2: gave] me a good feeling. | |
| si20a371 | si20a | I [if si20a306 = 1: find / if si20a306 = 2: found] it difficult to deal with [person 4], for instance because our relationship [if si20a306 = 1: has / if si20a306 = 2: had] changed or because [...] | |
| si20a372 | si20a | My contact with friends and acquaintances has reduced as a result of my providing care to [person 4]. | |
| si20a373 | si20a | By providing care, I [if si20a306 = 1: learn / if si20a306 = 2: learned] new things. | |
| si20a374 | si20a | I [if si20a306 = 1: find / if si20a306 = 2: found] it taxing to provide care to [person 4]. | |
| si20a375 | si20a | [person 4] and I have grown closer. | |
| si20a376 | si20a | My own choices in life have been restricted by the care need of [person 4]. | |
| si20a377 | si20a | My social environment [if si20a306 = 1: appreciates / if si20a306 = 2: appreciated] me for helping [person 4]. | |
| si20a378 | si20a | I [if si20a306 = 1: experience / if si20a306 = 2: experienced] loneliness as a result of my care activity. | |
| si20a379 | si20a | My social environment [if si20a306 = 1: helps / if si20a306 = 2: helped] me by taking over some of my tasks, other than the care for [person 4]. | |
| si20a380 | si20a | I [if si20a306 = 1: experience / if si20a306 = 2: experienced] the care for [person 4] as a duty. | |
| si20a381 | si20a | if si20a307 = 1: My relationship with [person 4] [if si20a306 = 1: is suffering / if si20a306 = 2: suffered] on account of my providing care to [him/her] / if si20a307 ≠1: My relationship with my (then) partner [...] | |
| si20a382 | si20a | I [if si20a306 = 1: feel / if si20a306 = 2: felt] that it’s the right thing to do. | |
| si20a383 | si20a | There [if si20a306 = 1: isn’t / if si20a306 = 2: wasn’t] anyone else available. | |
| si20a384 | si20a | I [if si20a306 = 1: enjoy / if si20a306 = 2: enjoyed] caring for someone. | |
| si20a385 | si20a | It [if si20a306 = 1: is / if si20a306 = 2: was] expected of me. | |
| si20a386 | si20a | [if si20a306 = 1: Have you had a paid job since providing care / if si20a306 = 2: Did you have a paid job during the period that you provided care] to [person 4]? | |
| si20a387 | si20a | Did you not have a paid job in that period, because you provided care to [person 4]? | |
| si20a388 | si20a | Did work situation change because of providing care you - Did you…start working less hours? | |
| si20a389 | si20a | Did work situation change because of providing care you - Did you…stop working? | |
| si20a390 | si20a | Did work situation change because of providing care you - Did you…start doing different work? | |
| si20a391 | si20a | Did work situation change because of providing care you - Did you…start working in self-employment? | |
| si20a392 | si20a | Did work situation change because of providing care you - Did you…stop attending an education program? | |
| si20a393 | si20a | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | |
| si20a394 | si20a | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | |
| si20a395 | si20a | I [if (si20a306 = 1 and si20a386 = 1): find / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): found] it stressful to combine my work with providing care to [person 4]. | |
| si20a396 | si20a | By caring for [person 4], I have developed skills that [if (si20a306 = 1 and si20a386 = 1): make / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): made] me better at my work. | |
| si20a397 | si20a | I [if (si20a306 = 1 and si20a386 = 1): find / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): found] my work a relief for the distraction it [...] from assisting [person 4]. | |
| si20a398 | si20a | I often [if (si20a306 = 1 and si20a386 = 1): feel / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): felt] that caring for [person 4] [...] from my performance as an employee. | |
| si20a399 | si20a | [if (si20a306 = 1 and si20a386 = 1): Does / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): Did] your manager show any understanding with regard to your caring for [person 4]? [...] | |
| si20a400 | si20a | [if (si20a306 = 1 and si20a386 = 1): Do / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 4]? | |
| si20a401 | si20a | [...] To what extent [if (si20a306 = 1 and si20a386 = 1): can / if (si20a306 = 2) or (si20a306 = 1 and si20a386 = 2): could] you arrange your work flexibly to combine the care for [person 4] with your work [...]? | |
| si20a402 | si20a | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | |
| si20a403 | si20a | Forms of support while providing care - Provisions that temporarily [if si20a306 = 1: take / if si20a306 = 2: took] over the care for [person 4] (e.g. day activities, night care, volunteer care). | |
| si20a404 | si20a | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | |
| si20a405 | si20a | Are you still providing care to [person 5] at present? | |
| si20a406 | si20a | What [if si20a405 = 1: is / if si20a405 = 2: is/was] the nature of your relationship to [person 5]? He or she [if si20a405 = 1: is / if si20a405 = 2: is/was] my... | |
| si20a407 | si20a | What [if si20a405 = 1: is / if si20a405 = 2: is/was] the nature of your relationship to [person 5]? He or she [if si20a405 = 1: is / if si20a405 = 2: is/was] my... - Other, namely | |
| si20a408 | si20a | Is [person 5] male or female? | |
| si20a409 | si20a | When did you start providing informal care to [person 5]? Month | |
| si20a410 | si20a | When did you start providing informal care to [person 5]? Year | |
| si20a411 | si20a | When did you stop providing care to [person 5]? Month | |
| si20a412 | si20a | When did you stop providing care to [person 5]? Year | |
| si20a413 | si20a | For what reason did you stop providing care to [person 5]? Please indicate the most important reason. | |
| si20a414 | si20a | For what reason did you stop providing care to [person 5]? Please indicate the most important reason. - Another reason, namely | |
| si20a415 | si20a | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 5]? | |
| si20a416 | si20a | For how many hours a week, on average, did you provide care...[if si20a405 = 1: and how many hours do you spend now? / if si20a405 = 2: ...at the end of the period in which you provided care to [person 5]?] | |
| si20a417 | si20a | What tasks did you perform at the start of the period - Companionship or emotional support | |
| si20a418 | si20a | What tasks did you perform at the start of the period - Transportation | |
| si20a419 | si20a | What tasks did you perform at the start of the period - Assistance when visiting a doctor | |
| si20a420 | si20a | What tasks did you perform at the start of the period - Administrative help | |
| si20a421 | si20a | What tasks did you perform at the start of the period - Help with housekeeping | |
| si20a422 | si20a | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | |
| si20a423 | si20a | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a424 | si20a | What tasks did you perform at the start of the period - Arranging or coordinating care | |
| si20a425 | si20a | What tasks did you perform at the start of the period - Other care | |
| si20a426 | si20a | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Companionship or emotional support | |
| si20a427 | si20a | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Transportation | |
| si20a428 | si20a | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Assistance when visiting a doctor | |
| si20a429 | si20a | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Administrative help | |
| si20a430 | si20a | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Help with housekeeping | |
| si20a431 | si20a | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | |
| si20a432 | si20a | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a433 | si20a | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Arranging or coordinating care | |
| si20a434 | si20a | Tasks performed [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Other care | |
| si20a435 | si20a | Care of others at the start of the period - One or more other informal care givers | |
| si20a436 | si20a | Care of others at the start of the period - One or more volunteers | |
| si20a437 | si20a | Care of others at the start of the period - Home care workers or district nurses | |
| si20a438 | si20a | Care of others at the start of the period - A private help or domestic worker | |
| si20a439 | si20a | Care of others at the start of the period - Nursing staff in care institution or hospital | |
| si20a440 | si20a | Care of others at the start of the period - No one other than me | |
| si20a441 | si20a | Care of others [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - One or more other informal care givers | |
| si20a442 | si20a | Care of others [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - One or more volunteers | |
| si20a443 | si20a | Care of others [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Home care workers or district nurses | |
| si20a444 | si20a | Care of others [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - A private help or domestic worker | |
| si20a445 | si20a | Care of others [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - Nursing staff in care institution or hospital | |
| si20a446 | si20a | Care of others [if si20a405 = 1: now / if si20a405 = 2: at the end of the period] - No one other than me | |
| si20a447 | si20a | Where did [person 5] live...at the start of the period in which you provided care to [person 5]? | |
| si20a448 | si20a | Where did [person 5] live...[if si20a405 = 1: ...and where does [person 5] live now? / if si20a405 = 2: ... at the end of the period in which you provided care to [person 5]?] | |
| si20a449 | si20a | To what extent did [person 5] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 5]? | |
| si20a450 | si20a | To what extent did [person 5] have problems with regard to memory, to attention span, to thinking...[if si20a405 = 1: ...and how is that now? / if si20a405 = 2: ... at the end of the period in which you provided care to [person 5]?] | |
| si20a451 | si20a | To what extent did [person 5] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 5]? | |
| si20a452 | si20a | To what extent did [person 5] suffer from psychological problems, such as depression or a phobia...[if si20a405 = 1: ...and how is that now? / if si20a405 = 2: ... at the end of the period in which you provided care to [person 5]?] | |
| si20a453 | si20a | Tasks that [person 5] was unable to perform independently at the start of the period - Walking | |
| si20a454 | si20a | Tasks that [person 5] was unable to perform independently at the start of the period - Dressing | |
| si20a455 | si20a | Tasks that [person 5] was unable to perform independently at the start of the period - Eating | |
| si20a456 | si20a | Tasks that [person 5] was unable to perform independently at the start of the period - Housekeeping | |
| si20a457 | si20a | Tasks that [person 5] was unable to perform independently at the start of the period - Grocery shopping | |
| si20a458 | si20a | Tasks that [person 5] was unable to perform independently at the start of the period - Preparing a meal | |
| si20a459 | si20a | Tasks that [person 5] was unable to perform independently at the start of the period - No problems with these activities | |
| si20a460 | si20a | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - Walking | |
| si20a461 | si20a | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - Dressing | |
| si20a462 | si20a | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - Eating | |
| si20a463 | si20a | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - Housekeeping | |
| si20a464 | si20a | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - Grocery shopping | |
| si20a465 | si20a | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - Preparing a meal | |
| si20a466 | si20a | Tasks that [person 5] is/was unable to perform independently [if si20a405=1: now / if si20a405=2: at the end of the period] - No problems with these activities | |
| si20a467 | si20a | How old [if si20a405 = 1: is / if si20a405 = 2: was] [person 5] [if si20a405 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | |
| si20a468 | si20a | I [if si20a405 = 1: have / if si20a405 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 5]. | |
| si20a469 | si20a | Caring for [person 5] [if si20a405 = 1: gives / if si20a405 = 2: gave] me a good feeling. | |
| si20a470 | si20a | I [if si20a405 = 1: find / if si20a405 = 2: found] it difficult to deal with [person 5], for instance because our relationship [if si20a405 = 1: has / if si20a405 = 2: had] changed or because [...] | |
| si20a471 | si20a | My contact with friends and acquaintances has reduced as a result of my providing care to [person 5]. | |
| si20a472 | si20a | By providing care, I [if si20a405 = 1: learn / if si20a405 = 2: learned] new things. | |
| si20a473 | si20a | I [if si20a405 = 1: find / if si20a405 = 2: found] it taxing to provide care to [person 5]. | |
| si20a474 | si20a | [person 5] and I have grown closer. | |
| si20a475 | si20a | My own choices in life have been restricted by the care need of [person 5]. | |
| si20a476 | si20a | My social environment [if si20a405 = 1: appreciates / if si20a405 = 2: appreciated] me for helping [person 5]. | |
| si20a477 | si20a | I [if si20a405 = 1: experience / if si20a405 = 2: experienced] loneliness as a result of my care activity. | |
| si20a478 | si20a | My social environment [if si20a405 = 1: helps / if si20a405 = 2: helped] me by taking over some of my tasks, other than the care for [person 5]. | |
| si20a479 | si20a | I [if si20a405 = 1: experience / if si20a405 = 2: experienced] the care for [person 5] as a duty. | |
| si20a480 | si20a | if si20a406 = 1: My relationship with [person 5] [if si20a405 = 1: is suffering / if si20a405 = 2: suffered] on account of my providing care to [him/her] / if si20a406 ≠1: My relationship with my (then) partner [...] | |
| si20a481 | si20a | I [if si20a405 = 1: feel / if si20a405 = 2: felt] that it’s the right thing to do. | |
| si20a482 | si20a | There [if si20a405 = 1: isn’t / if si20a405 = 2: wasn’t] anyone else available. | |
| si20a483 | si20a | I [if si20a405 = 1: enjoy / if si20a405 = 2: enjoyed] caring for someone. | |
| si20a484 | si20a | It [if si20a405 = 1: is / if si20a405 = 2: was] expected of me. | |
| si20a485 | si20a | [if si20a405 = 1: Have you had a paid job since providing care / if si20a405 = 2: Did you have a paid job during the period that you provided care] to [person 5]? | |
| si20a486 | si20a | Did you not have a paid job in that period, because you provided care to [person 5]? | |
| si20a487 | si20a | Did work situation change because of providing care you - Did you…start working less hours? | |
| si20a488 | si20a | Did work situation change because of providing care you - Did you…stop working? | |
| si20a489 | si20a | Did work situation change because of providing care you - Did you…start doing different work? | |
| si20a490 | si20a | Did work situation change because of providing care you - Did you…start working in self-employment? | |
| si20a491 | si20a | Did work situation change because of providing care you - Did you…stop attending an education program? | |
| si20a492 | si20a | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | |
| si20a493 | si20a | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | |
| si20a494 | si20a | I [if (si20a405 = 1 and si20a485 = 1): find / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): found] it stressful to combine my work with providing care to [person 5]. | |
| si20a495 | si20a | By caring for [person 5], I have developed skills that [if (si20a405 = 1 and si20a485 = 1): make / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): made] me better at my work. | |
| si20a496 | si20a | I [if (si20a405 = 1 and si20a485 = 1): find / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): found] my work a relief for the distraction it [...] from assisting [person 5]. | |
| si20a497 | si20a | I often [if (si20a405 = 1 and si20a485 = 1): feel / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): felt] that caring for [person 5] [...] from my performance as an employee. | |
| si20a498 | si20a | [if (si20a405 = 1 and si20a485 = 1): Does / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): Did] your manager show any understanding with regard to your caring for [person 5]? [...] | |
| si20a499 | si20a | [if (si20a405 = 1 and si20a485 = 1): Do / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 5]? | |
| si20a500 | si20a | [...] To what extent [if (si20a405 = 1 and si20a485 = 1): can / if (si20a405 = 2) or (si20a405 = 1 and si20a485 = 2): could] you arrange your work flexibly to combine the care for [person 5] with your work [...]? | |
| si20a501 | si20a | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | |
| si20a502 | si20a | Forms of support while providing care - Provisions that temporarily [if si20a405 = 1: take / if si20a405 = 2: took] over the care for [person 5] (e.g. day activities, night care, volunteer care). | |
| si20a503 | si20a | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | |
| si20a504 | si20a | Are you still providing care to [person 6] at present? | |
| si20a505 | si20a | What [if si20a504 = 1: is / if si20a504 = 2: is/was] the nature of your relationship to [person 6]? He or she [if si20a504 = 1: is / if si20a504 = 2: is/was] my... | |
| si20a506 | si20a | What [if si20a504 = 1: is / if si20a504 = 2: is/was] the nature of your relationship to [person 6]? He or she [if si20a504 = 1: is / if si20a504 = 2: is/was] my... - Other, namely | |
| si20a507 | si20a | Is [person 6] male or female? | |
| si20a508 | si20a | When did you start providing informal care to [person 6]? Month | |
| si20a509 | si20a | When did you start providing informal care to [person 6]? Year | |
| si20a510 | si20a | When did you stop providing care to [person 6]? Month | |
| si20a511 | si20a | When did you stop providing care to [person 6]? Year | |
| si20a512 | si20a | For what reason did you stop providing care to [person 6]? Please indicate the most important reason. | |
| si20a513 | si20a | For what reason did you stop providing care to [person 6]? Please indicate the most important reason. - Another reason, namely | |
| si20a514 | si20a | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 6]? | |
| si20a515 | si20a | For how many hours a week, on average, did you provide care...[if si20a504 = 1: and how many hours do you spend now? / if si20a504 = 2: ...at the end of the period in which you provided care to [person 6]?] | |
| si20a516 | si20a | What tasks did you perform at the start of the period - Companionship or emotional support | |
| si20a517 | si20a | What tasks did you perform at the start of the period - Transportation | |
| si20a518 | si20a | What tasks did you perform at the start of the period - Assistance when visiting a doctor | |
| si20a519 | si20a | What tasks did you perform at the start of the period - Administrative help | |
| si20a520 | si20a | What tasks did you perform at the start of the period - Help with housekeeping | |
| si20a521 | si20a | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | |
| si20a522 | si20a | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a523 | si20a | What tasks did you perform at the start of the period - Arranging or coordinating care | |
| si20a524 | si20a | What tasks did you perform at the start of the period - Other care | |
| si20a525 | si20a | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Companionship or emotional support | |
| si20a526 | si20a | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Transportation | |
| si20a527 | si20a | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Assistance when visiting a doctor | |
| si20a528 | si20a | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Administrative help | |
| si20a529 | si20a | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Help with housekeeping | |
| si20a530 | si20a | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | |
| si20a531 | si20a | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a532 | si20a | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Arranging or coordinating care | |
| si20a533 | si20a | Tasks performed [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Other care | |
| si20a534 | si20a | Care of others at the start of the period - One or more other informal care givers | |
| si20a535 | si20a | Care of others at the start of the period - One or more volunteers | |
| si20a536 | si20a | Care of others at the start of the period - Home care workers or district nurses | |
| si20a537 | si20a | Care of others at the start of the period - A private help or domestic worker | |
| si20a538 | si20a | Care of others at the start of the period - Nursing staff in care institution or hospital | |
| si20a539 | si20a | Care of others at the start of the period - No one other than me | |
| si20a540 | si20a | Care of others [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - One or more other informal care givers | |
| si20a541 | si20a | Care of others [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - One or more volunteers | |
| si20a542 | si20a | Care of others [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Home care workers or district nurses | |
| si20a543 | si20a | Care of others [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - A private help or domestic worker | |
| si20a544 | si20a | Care of others [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - Nursing staff in care institution or hospital | |
| si20a545 | si20a | Care of others [if si20a504 = 1: now / if si20a504 = 2: at the end of the period] - No one other than me | |
| si20a546 | si20a | Where did [person 6] live...at the start of the period in which you provided care to [person 6]? | |
| si20a547 | si20a | Where did [person 6] live...[if si20a504 = 1: ...and where does [person 6] live now? / if si20a504 = 2: ... at the end of the period in which you provided care to [person 6]?] | |
| si20a548 | si20a | To what extent did [person 6] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 6]? | |
| si20a549 | si20a | To what extent did [person 6] have problems with regard to memory, to attention span, to thinking...[if si20a504 = 1: ...and how is that now? / if si20a504 = 2: ... at the end of the period in which you provided care to [person 6]?] | |
| si20a550 | si20a | To what extent did [person 6] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 6]? | |
| si20a551 | si20a | To what extent did [person 6] suffer from psychological problems, such as depression or a phobia...[if si20a504 = 1: ...and how is that now? / if si20a504 = 2: ... at the end of the period in which you provided care to [person 6]?] | |
| si20a552 | si20a | Tasks that [person 6] was unable to perform independently at the start of the period - Walking | |
| si20a553 | si20a | Tasks that [person 6] was unable to perform independently at the start of the period - Dressing | |
| si20a554 | si20a | Tasks that [person 6] was unable to perform independently at the start of the period - Eating | |
| si20a555 | si20a | Tasks that [person 6] was unable to perform independently at the start of the period - Housekeeping | |
| si20a556 | si20a | Tasks that [person 6] was unable to perform independently at the start of the period - Grocery shopping | |
| si20a557 | si20a | Tasks that [person 6] was unable to perform independently at the start of the period - Preparing a meal | |
| si20a558 | si20a | Tasks that [person 6] was unable to perform independently at the start of the period - No problems with these activities | |
| si20a559 | si20a | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - Walking | |
| si20a560 | si20a | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - Dressing | |
| si20a561 | si20a | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - Eating | |
| si20a562 | si20a | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - Housekeeping | |
| si20a563 | si20a | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - Grocery shopping | |
| si20a564 | si20a | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - Preparing a meal | |
| si20a565 | si20a | Tasks that [person 6] is/was unable to perform independently [if si20a504=1: now / if si20a504=2: at the end of the period] - No problems with these activities | |
| si20a566 | si20a | How old [if si20a504 = 1: is / if si20a504 = 2: was] [person 6] [if si20a504 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | |
| si20a567 | si20a | I [if si20a504 = 1: have / if si20a504 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 6]. | |
| si20a568 | si20a | Caring for [person 6] [if si20a504 = 1: gives / if si20a504 = 2: gave] me a good feeling. | |
| si20a569 | si20a | I [if si20a504 = 1: find / if si20a504 = 2: found] it difficult to deal with [person 6], for instance because our relationship [if si20a504 = 1: has / if si20a504 = 2: had] changed or because [...] | |
| si20a570 | si20a | My contact with friends and acquaintances has reduced as a result of my providing care to [person 6]. | |
| si20a571 | si20a | By providing care, I [if si20a504 = 1: learn / if si20a504 = 2: learned] new things. | |
| si20a572 | si20a | I [if si20a504 = 1: find / if si20a504 = 2: found] it taxing to provide care to [person 6]. | |
| si20a573 | si20a | [person 6] and I have grown closer. | |
| si20a574 | si20a | My own choices in life have been restricted by the care need of [person 6]. | |
| si20a575 | si20a | My social environment [if si20a504 = 1: appreciates / if si20a504 = 2: appreciated] me for helping [person 6]. | |
| si20a576 | si20a | I [if si20a504 = 1: experience / if si20a504 = 2: experienced] loneliness as a result of my care activity. | |
| si20a577 | si20a | My social environment [if si20a504 = 1: helps / if si20a504 = 2: helped] me by taking over some of my tasks, other than the care for [person 6]. | |
| si20a578 | si20a | I [if si20a504 = 1: experience / if si20a504 = 2: experienced] the care for [person 6] as a duty. | |
| si20a579 | si20a | if si20a505 = 1: My relationship with [person 6] [if si20a504 = 1: is suffering / if si20a504 = 2: suffered] on account of my providing care to [him/her] / if si20a505 ≠1: My relationship with my (then) partner [...] | |
| si20a580 | si20a | I [if si20a504 = 1: feel / if si20a504 = 2: felt] that it’s the right thing to do. | |
| si20a581 | si20a | There [if si20a504 = 1: isn’t / if si20a504 = 2: wasn’t] anyone else available. | |
| si20a582 | si20a | I [if si20a504 = 1: enjoy / if si20a504 = 2: enjoyed] caring for someone. | |
| si20a583 | si20a | It [if si20a504 = 1: is / if si20a504 = 2: was] expected of me. | |
| si20a584 | si20a | [if si20a504 = 1: Have you had a paid job since providing care / if si20a504 = 2: Did you have a paid job during the period that you provided care] to [person 6]? | |
| si20a585 | si20a | Did you not have a paid job in that period, because you provided care to [person 6]? | |
| si20a586 | si20a | Did work situation change because of providing care you - Did you…start working less hours? | |
| si20a587 | si20a | Did work situation change because of providing care you - Did you…stop working? | |
| si20a588 | si20a | Did work situation change because of providing care you - Did you…start doing different work? | |
| si20a589 | si20a | Did work situation change because of providing care you - Did you…start working in self-employment? | |
| si20a590 | si20a | Did work situation change because of providing care you - Did you…stop attending an education program? | |
| si20a591 | si20a | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | |
| si20a592 | si20a | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | |
| si20a593 | si20a | I [if (si20a504 = 1 and si20a584 = 1): find / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): found] it stressful to combine my work with providing care to [person 6]. | |
| si20a594 | si20a | By caring for [person 6], I have developed skills that [if (si20a504 = 1 and si20a584 = 1): make / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): made] me better at my work. | |
| si20a595 | si20a | I [if (si20a504 = 1 and si20a584 = 1): find / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): found] my work a relief for the distraction it [...] from assisting [person 6]. | |
| si20a596 | si20a | I often [if (si20a504 = 1 and si20a584 = 1): feel / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): felt] that caring for [person 6] [...] from my performance as an employee. | |
| si20a597 | si20a | [if (si20a504 = 1 and si20a584 = 1): Does / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): Did] your manager show any understanding with regard to your caring for [person 6]? [...] | |
| si20a598 | si20a | [if (si20a504 = 1 and si20a584 = 1): Do / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 6]? | |
| si20a599 | si20a | [...] To what extent [if (si20a504 = 1 and si20a584 = 1): can / if (si20a504 = 2) or (si20a504 = 1 and si20a584 = 2): could] you arrange your work flexibly to combine the care for [person 6] with your work [...]? | |
| si20a600 | si20a | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | |
| si20a601 | si20a | Forms of support while providing care - Provisions that temporarily [if si20a504 = 1: take / if si20a504 = 2: took] over the care for [person 6] (e.g. day activities, night care, volunteer care). | |
| si20a602 | si20a | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | |
| si20a603 | si20a | Are you still providing care to [person 7] at present? | |
| si20a604 | si20a | What [if si20a603 = 1: is / if si20a603 = 2: is/was] the nature of your relationship to [person 7]? He or she [if si20a603 = 1: is / if si20a603 = 2: is/was] my... | |
| si20a605 | si20a | What [if si20a603 = 1: is / if si20a603 = 2: is/was] the nature of your relationship to [person 7]? He or she [if si20a603 = 1: is / if si20a603 = 2: is/was] my... - Other, namely | |
| si20a606 | si20a | Is [person 7] male or female? | |
| si20a607 | si20a | When did you start providing informal care to [person 7]? Month | |
| si20a608 | si20a | When did you start providing informal care to [person 7]? Year | |
| si20a609 | si20a | When did you stop providing care to [person 7]? Month | |
| si20a610 | si20a | When did you stop providing care to [person 7]? Year | |
| si20a611 | si20a | For what reason did you stop providing care to [person 7]? Please indicate the most important reason. | |
| si20a612 | si20a | For what reason did you stop providing care to [person 7]? Please indicate the most important reason. - Another reason, namely | |
| si20a613 | si20a | For how many hours a week, on average, did you provide care...at the start of the period in which you provided care to [person 7]? | |
| si20a614 | si20a | For how many hours a week, on average, did you provide care...[if si20a603 = 1: and how many hours do you spend now? / if si20a603 = 2: ...at the end of the period in which you provided care to [person 7]?] | |
| si20a615 | si20a | What tasks did you perform at the start of the period - Companionship or emotional support | |
| si20a616 | si20a | What tasks did you perform at the start of the period - Transportation | |
| si20a617 | si20a | What tasks did you perform at the start of the period - Assistance when visiting a doctor | |
| si20a618 | si20a | What tasks did you perform at the start of the period - Administrative help | |
| si20a619 | si20a | What tasks did you perform at the start of the period - Help with housekeeping | |
| si20a620 | si20a | What tasks did you perform at the start of the period - Personal care (e.g. showering or visiting the toilet) | |
| si20a621 | si20a | What tasks did you perform at the start of the period - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a622 | si20a | What tasks did you perform at the start of the period - Arranging or coordinating care | |
| si20a623 | si20a | What tasks did you perform at the start of the period - Other care | |
| si20a624 | si20a | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Companionship or emotional support | |
| si20a625 | si20a | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Transportation | |
| si20a626 | si20a | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Assistance when visiting a doctor | |
| si20a627 | si20a | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Administrative help | |
| si20a628 | si20a | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Help with housekeeping | |
| si20a629 | si20a | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Personal care (e.g. showering or visiting the toilet) | |
| si20a630 | si20a | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Nursing care (e.g. administering medicine or tending to wounds) | |
| si20a631 | si20a | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Arranging or coordinating care | |
| si20a632 | si20a | Tasks performed [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Other care | |
| si20a633 | si20a | Care of others at the start of the period - One or more other informal care givers | |
| si20a634 | si20a | Care of others at the start of the period - One or more volunteers | |
| si20a635 | si20a | Care of others at the start of the period - Home care workers or district nurses | |
| si20a636 | si20a | Care of others at the start of the period - A private help or domestic worker | |
| si20a637 | si20a | Care of others at the start of the period - Nursing staff in care institution or hospital | |
| si20a638 | si20a | Care of others at the start of the period - No one other than me | |
| si20a639 | si20a | Care of others [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - One or more other informal care givers | |
| si20a640 | si20a | Care of others [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - One or more volunteers | |
| si20a641 | si20a | Care of others [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Home care workers or district nurses | |
| si20a642 | si20a | Care of others [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - A private help or domestic worker | |
| si20a643 | si20a | Care of others [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - Nursing staff in care institution or hospital | |
| si20a644 | si20a | Care of others [if si20a603 = 1: now / if si20a603 = 2: at the end of the period] - No one other than me | |
| si20a645 | si20a | Where did [person 7] live...at the start of the period in which you provided care to [person 7]? | |
| si20a646 | si20a | Where did [person 7] live...[if si20a603 = 1: ...and where does [person 7] live now? / if si20a603 = 2: ... at the end of the period in which you provided care to [person 7]?] | |
| si20a647 | si20a | To what extent did [person 7] have problems with regard to memory, to attention span, to thinking...at the start of the period in which you provided care to [person 7]? | |
| si20a648 | si20a | To what extent did [person 7] have problems with regard to memory, to attention span, to thinking...[if si20a603 = 1: ...and how is that now? / if si20a603 = 2: ... at the end of the period in which you provided care to [person 7]?] | |
| si20a649 | si20a | To what extent did [person 7] suffer from psychological problems, such as depression or a phobia...at the start of the period in which you provided care to [person 7]? | |
| si20a650 | si20a | To what extent did [person 7] suffer from psychological problems, such as depression or a phobia...[if si20a603 = 1: ...and how is that now? / if si20a603 = 2: ... at the end of the period in which you provided care to [person 7]?] | |
| si20a651 | si20a | Tasks that [person 7] was unable to perform independently at the start of the period - Walking | |
| si20a652 | si20a | Tasks that [person 7] was unable to perform independently at the start of the period - Dressing | |
| si20a653 | si20a | Tasks that [person 7] was unable to perform independently at the start of the period - Eating | |
| si20a654 | si20a | Tasks that [person 7] was unable to perform independently at the start of the period - Housekeeping | |
| si20a655 | si20a | Tasks that [person 7] was unable to perform independently at the start of the period - Grocery shopping | |
| si20a656 | si20a | Tasks that [person 7] was unable to perform independently at the start of the period - Preparing a meal | |
| si20a657 | si20a | Tasks that [person 7] was unable to perform independently at the start of the period - No problems with these activities | |
| si20a658 | si20a | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - Walking | |
| si20a659 | si20a | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - Dressing | |
| si20a660 | si20a | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - Eating | |
| si20a661 | si20a | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - Housekeeping | |
| si20a662 | si20a | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - Grocery shopping | |
| si20a663 | si20a | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - Preparing a meal | |
| si20a664 | si20a | Tasks that [person 7] is/was unable to perform independently [if si20a603=1: now / if si20a603=2: at the end of the period] - No problems with these activities | |
| si20a665 | si20a | How old [if si20a603 = 1: is / if si20a603 = 2: was] [person 7] [if si20a603 = 2: when you stopped providing informal care]? If you do not know exactly, please estimate his/her age. | |
| si20a666 | si20a | I [if si20a603 = 1: have / if si20a603 = 2: had] trouble combining my everyday activities (e.g. work, housekeeping, studying, family and leisure time) with my care activities for [person 7]. | |
| si20a667 | si20a | Caring for [person 7] [if si20a603 = 1: gives / if si20a603 = 2: gave] me a good feeling. | |
| si20a668 | si20a | I [if si20a603 = 1: find / if si20a603 = 2: found] it difficult to deal with [person 7], for instance because our relationship [if si20a603 = 1: has / if si20a603 = 2: had] changed or because [...] | |
| si20a669 | si20a | My contact with friends and acquaintances has reduced as a result of my providing care to [person 7]. | |
| si20a670 | si20a | By providing care, I [if si20a603 = 1: learn / if si20a603 = 2: learned] new things. | |
| si20a671 | si20a | I [if si20a603 = 1: find / if si20a603 = 2: found] it taxing to provide care to [person 7]. | |
| si20a672 | si20a | [person 7] and I have grown closer. | |
| si20a673 | si20a | My own choices in life have been restricted by the care need of [person 7]. | |
| si20a674 | si20a | My social environment [if si20a603 = 1: appreciates / if si20a603 = 2: appreciated] me for helping [person 7]. | |
| si20a675 | si20a | I [if si20a603 = 1: experience / if si20a603 = 2: experienced] loneliness as a result of my care activity. | |
| si20a676 | si20a | My social environment [if si20a603 = 1: helps / if si20a603 = 2: helped] me by taking over some of my tasks, other than the care for [person 7]. | |
| si20a677 | si20a | I [if si20a603 = 1: experience / if si20a603 = 2: experienced] the care for [person 7] as a duty. | |
| si20a678 | si20a | if si20a604 = 1: My relationship with [person 7] [if si20a603 = 1: is suffering / if si20a603 = 2: suffered] on account of my providing care to [him/her] / if si20a604 ≠1: My relationship with my (then) partner [...] | |
| si20a679 | si20a | I [if si20a603 = 1: feel / if si20a603 = 2: felt] that it’s the right thing to do. | |
| si20a680 | si20a | There [if si20a603 = 1: isn’t / if si20a603 = 2: wasn’t] anyone else available. | |
| si20a681 | si20a | I [if si20a603 = 1: enjoy / if si20a603 = 2: enjoyed] caring for someone. | |
| si20a682 | si20a | It [if si20a603 = 1: is / if si20a603 = 2: was] expected of me. | |
| si20a683 | si20a | [if si20a603 = 1: Have you had a paid job since providing care / if si20a603 = 2: Did you have a paid job during the period that you provided care] to [person 7]? | |
| si20a684 | si20a | Did you not have a paid job in that period, because you provided care to [person 7]? | |
| si20a685 | si20a | Did work situation change because of providing care you - Did you…start working less hours? | |
| si20a686 | si20a | Did work situation change because of providing care you - Did you…stop working? | |
| si20a687 | si20a | Did work situation change because of providing care you - Did you…start doing different work? | |
| si20a688 | si20a | Did work situation change because of providing care you - Did you…start working in self-employment? | |
| si20a689 | si20a | Did work situation change because of providing care you - Did you…stop attending an education program? | |
| si20a690 | si20a | Consequences at work because of providing care - Have you…missed out on being promoted or being awarded an assignment? | |
| si20a691 | si20a | Consequences at work because of providing care - Have you…had your work duties reduced, against your will? | |
| si20a692 | si20a | I [if (si20a603 = 1 and si20a683 = 1): find / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): found] it stressful to combine my work with providing care to [person 7]. | |
| si20a693 | si20a | By caring for [person 7], I have developed skills that [if (si20a603 = 1 and si20a683 = 1): make / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): made] me better at my work. | |
| si20a694 | si20a | I [if (si20a603 = 1 and si20a683 = 1): find / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): found] my work a relief for the distraction it [...] from assisting [person 7]. | |
| si20a695 | si20a | I often [if (si20a603 = 1 and si20a683 = 1): feel / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): felt] that caring for [person 7] [...] from my performance as an employee. | |
| si20a696 | si20a | [if (si20a603 = 1 and si20a683 = 1): Does / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): Did] your manager show any understanding with regard to your caring for [person 7]? [...] | |
| si20a697 | si20a | [if (si20a603 = 1 and si20a683 = 1): Do / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): Did] your direct colleagues show any understanding with regard to your caring for [person 7]? | |
| si20a698 | si20a | [...] To what extent [if (si20a603 = 1 and si20a683 = 1): can / if (si20a603 = 2) or (si20a603 = 1 and si20a683 = 2): could] you arrange your work flexibly to combine the care for [person 7] with your work [...]? | |
| si20a699 | si20a | Forms of support while providing care - Financial support (e.g. from the personal care budget, travel expense reimbursement) | |
| si20a700 | si20a | Forms of support while providing care - Provisions that temporarily [if si20a603 = 1: take / if si20a603 = 2: took] over the care for [person 7] (e.g. day activities, night care, volunteer care). | |
| si20a701 | si20a | Forms of support while providing care - Psychological support (e.g. peer support, training course, advice) | |
| si20a702 | si20a | Was it difficult to answer the questions? | |
| si20a703 | si20a | Were the questions sufficiently clear? | |
| si20a704 | si20a | Did the questionnaire get you thinking about things? | |
| si20a705 | si20a | Was it an interesting subject? | |
| si20a706 | si20a | Did you enjoy answering the questions? | |
| si20a707 | si20a | Starting date questionnaire | |
| si20a708 | si20a | Starting time questionnair | |
| si20a709 | si20a | End date questionnaire | |
| si20a710 | si20a | End time questionnaire | |
| si20a711 | si20a | Duration in seconds |